Hi, After several months on zero dose I've started to have occasional twinges/stiffness in my arms/shoulders. These are nothing like as bad as when I first completely stiffened up nearly three years ago, when 20mg cleared it up. Is it best to start on 1mg a day or go to 5mg or half a 5mg and then reduce, as I have a supply of these preds left over? Contacting doctors here is nigh on impossible. Any suggestions?
Should I start again: Hi, After several months on... - PMRGCAuk
Should I start again
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Probably sensible to try 2.5mg for a week or two as a trial.
But you do need to contact GP -because you will need to replenish Pred if it is a return of PMR.
If you try and reduce too quickly this time , the same is likely to happen again.
As well as the PMR issue, have you started any new activity or been doing anything for longer periods, even sitting still ones?
How occasional? Does it link to something new or that you have increased, or do in a different way? It is often mentioned on here that it can take up to a year for everything to return to 'normal' after coming off pred.
It's probably better to make an appointment with your Dr to rule out other potential causes before restarting pred.
If the impossible contact is by phone, why not go, in person, to your surgery? They can’t ignore you face to face…just a small suggestion?