tingling body at night

[Bedwell]

I have posted akready about throbbing knees and feet at night.. still a problem but can manage somehow.. with a fan on my feet and cool pads on my knees. But last night I woke and my whole body was tingling! From my face ..down to my arms and legs. Has anyone experienced anything like that! I have just been on 7.5 for a week after 4 weeks on 8.

[Bedwell]

ps! And today I’ve been sweating so much. It’s all round the back of my neck I have had that quite often but not the tingling!!

[PMRpro Ambassador in reply to Bedwell]

Have you had any other symptoms that might suggest s return of the PMR?

[Bedwell in reply to PMRpro]

very slight new problem in left shoulder at night. But I didn’t have tingling like this when I had pmr

[Bedwell in reply to Bedwell]

also! I seem to remember someone highly recommending a female rheumy in St Albans. How can I find her again please! Apparently very keen on the forum!

[PMRpro Ambassador in reply to Bedwell]

Put up a new post asking. But I think you mean Charlotte WIng

nhs.uk/profiles/consultant/...

[Bedwell in reply to PMRpro]

ah thank you! I will investigate

[Bedwell in reply to PMRpro]

yes that seems to be her. I will get cracking!

[Bedwell in reply to PMRpro]

is that a classic symptom of pmr?

[Bedwell in reply to PMRpro]

sorry replied in wrong place. Is tingling at night a classic pmr symptom then?

[PMRpro Ambassador in reply to Bedwell]

Not one you hear talked about a lot. I get strange shooting sensations, and some tingling but what it is I've never really considered!

[Bedwell]

woukd like to hear more from someone on this forum who was starting on the 6 week green juice program ?!

[agingfeminist]

what is making the juice green? if it is spinach, that's not a great idea...it has a chemical that binds with calcium (which you need for your bones) and forms a calcium compound (calcium oxalate) which is a problem for your kidneys. What else is going in the juice? fruits aren't a good idea because juicing breaks down all the cells and all the sugars are released in one go...a sugar spike is never a good idea and even worse when you are on pred.

Hope your tingling gets better soon.

[Heron82]

I have the painful feet and legs of a night and the awful head and neck sweats several times a day. I get tingling in the toes and fingers but not all over. I hope it resolves soon for you.

[Bedwell in reply to Heron82]

what dose are you on now? I reduced from 8.0 to 7.5 after 4 weeks but was so exhausted I’ve gone back to 8 for another week! Swings and roundabouts!!!

[Heron82 in reply to Bedwell]

9.5 mg with sc methotrexate and hydroxychloroquin.

[bussell]

Yes, this tingling in feet and lower legs is very familiar. I seem to be super sensitive to temperature. Unless it is exactly right my feet are like ice, but warm them up too much and the tingling becomes a nightmare and I'm sticking them out from under the duvet and can't sleep. A cold bedroom and intermittent use of a hotwater bottle seem to help a lot right now. Fingers (and toes) crossed. Hoping you find a solution. It is more than annoying! PS And yes, once in a while it spreads for a minute or two to whole body.

[Bedwell in reply to bussell]

oh that’s comforting to hear,,!!

[Suffererc]

I have tingling lower legs and feet. Has calmed down a bit lately.

My legs are very painful around 3-4 every morning which last abot an hour. Have noticed a big increase in varicose veins. Mentioned painful legs to my GP on ASKMYGP with f2f and has been dismissed as conversation turned to length of time on Pred. Never to be mentioned again 😂🤣😂❤️

[Hunter134]

I get tingling too some days.Strange feeling and I know it can come with b 12 deficiency.Anxiety will do it too.Which I do have.

[Bedwell in reply to Hunter134]

it’s mainly throbbing knees and feet! The tingling was anew surprise!!! Certainly anxiety.. which is one of preds lovely side effects!!!

[HamiltonCANADA in reply to Bedwell]

I too get tingling in feet and hands. Some days and times worse than others. Sometime spreading up legs or up arms. Perhaps related to more stressful days. I was wondering if the tingling was a Prednizone side effect or related to GCA and PMA - I have both. Currently on 25mg Prednizone daily.

[Missus835]

Yes. My feet tingle a lot, at random times. I'm just up to 14 mg from 12.5 due to increasing pain in backs of upper arms, upper thighs and butt. Also down sides of legs and arms are tender to the touch. Someone mentioned sweating. Yes. Around this donut of a neck...all over really. Could compare it to sweats and hotflashes (which I also have), which occur with menopause, but I did not experience these during menopause. So tingling...yes, with me, it is a thing.

[Singr]

yes. I experienced that tingling right up until I reached 6mg. Not so bad anymore. It used to keep me awake at night. I hope it doesn’t stay around too long.

[Googleeyes1]

I have same symptoms at moment I'm having blood tests done for diabetes and myeloma. think out of the box

[Bedwell]

anyone know about a Bbc programme about steroids ? Think it was yesterday 14th November around midday … not sure if it was tv or sound? But can’t find it!

[DorsetLady PMRGCAuk volunteer in reply to Bedwell]

Part of the Jeremy Vind show on radio 2 yesterday -but rather disappointing -

healthunlocked.com/pmrgcauk...

You might be able to catch up on BBC sounds

[Bedwell in reply to DorsetLady]

oh what a shame disappointing! Maybe won’t bother to search then!

[DorsetLady PMRGCAuk volunteer in reply to Bedwell]

no shouldn’t bother, didn’t learn anything useful…

[Bedwell]

ok thanks, does anyone experience stuffy nose at night particularly with predisolone? Just another thing to disturb my sleep!!!!!

[Bedwell]

nobody?????

[PMRpro Ambassador in reply to Bedwell]

When you ask a question in the middle of an existing thread not many people will see it unless they actively followed the thread as DL and I do, few others do.