Just noticed

[Theziggy]

That there are no GCA/PMR support groups in Northern Ireland!!!!!

Maybe nobody has GCA/PMR in Northern Ireland lpl

Stay safe folks

[PMRpro Ambassador]

I think we have had a couple who dropped in briefly - obviously didn't like us!!

[123-go]

My son lives in Northern Ireland. I'll print off some info about the charity, send it to him and ask him to take it to his surgery for the noticeboard. Mind you, the waiting lists for appointments over there would make your eyes water!!

I was at my surgery this morning where the receptionist said her sister has PMR and is suffering badly. I suggested she recommends her sister joining PMRGCAUK and she said, "Oh, no. She's the type who puts up with things and suffers in silence." 🤦🏻‍♀️

[Theziggy in reply to 123-go]

Too true regarding waiting lists in NI 😢

[PMRpro Ambassador in reply to Theziggy]

Before Covid it was 18 months and more - I assume it is worse now?

[123-go in reply to PMRpro]

5-6 years for first appointment!

[PMRpro Ambassador in reply to 123-go]

Dear lord!!!!!!! Suppose it saves money - you could be dead by then!!

I suggested to my daughter I'd have come over to London when she goes down for her birthday treat (the big 4-0) in December if they'd invited me - she immediately said "you don't want to come here!"

[123-go in reply to PMRpro]

Wise woman.

[PMRpro Ambassador in reply to 123-go]

She works in the middle of it! I only meant for a couple of days and my insurance covers repatriation if I need hospital treatment! The level of cover I have is after 3 days but the top level is immediate where possible.

[123-go in reply to PMRpro]

She must have great strength in more ways than one 😇.

[PMRpro Ambassador in reply to 123-go]

I asked if she still existed the other day: "Work, eat, sleep. Rinse and repeat ..."

[123-go in reply to PMRpro]

How she and her colleagues keep up with everything is mind-boggling! They are certainly worth their weight in gold (some hope!😏).

[123-go in reply to Theziggy]

Four years for herniated discs!

[Hidden]

Hi Thezigggy,

We did have a Support Group in Lisburn, which was really successful. However, the Group Organiser became unwell during lockdown and was no longer able to run the group. If you would like to set up a group - it can be as straightforward as meeting in a cafe once a month - with our support, do message me and we can contact people on our database who live close by to where you are, to find out whether they would be interested in meeting up.

123-go, I can send you some posters to put up in your son's surgery and/or local libraries if that works for you. Again, message me and we can see what we can do.

CandyH

[123-go in reply to Hidden]

Thank you. Will message you now.

[Theziggy in reply to Hidden]

Thank you CandyH

[MrsNails]

Hey Ziggy - how are you doing - just returning to The Forum after a week of Grandchildren 7days & 5night Stop Overs!

We’re both pooped but we enjoyed it just young Theo likes to wake twice at night 🤦🏻

[Theziggy in reply to MrsNails]

You could do with a break now Mrs Nails!!!