Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,342 members • 38,113 posts

All posts for September 2022

Should I hold my nose when I jump?

Well, four years and two months after I started this GCA journey, today is (I hope) the first day of the rest of my life. Today is the day I won't be taking...

Well, four years and two months after I started this GCA journey, today is (I ho...

Dontwannabesick

•2 years ago

21 Replies

clicking and cracking joints

Good morning. I’m finding that my joints click and crack all the time. Never used to notice before. Is this a symptom of a PMR flare, or nothing to worry...

Good morning. I’m finding that my joints click and crack all the time. Never us...

Jacuzzi

•2 years ago

12 Replies

Hand problems.

morning all, I’ve only been diagnosed with PMR for a month now and I’m on 15mgs of Pred. I do feel better but every morning I’m waking up with pains in my...

morning all, I’ve only been diagnosed with PMR for a month now and I’m on 15mgs ...

kentish61

•2 years ago

3 Replies

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It seems to take hours for my Prednisolone to take effect

I have been taking Prednisolone for several months now. I take it in the morning between about 8am and 9am. I vary a bit from day to day but from the beginning...

I have been taking Prednisolone for several months now. I take it in the morning...

Siena62

•2 years ago

65 Replies

my fourth rheumatologist

Today Sunday I had an appointment to see my fourth rheumatologist in four years of my GCA and PMR journey. I have over these four years had no advice on...

Today Sunday I had an appointment to see my fourth rheumatologist in four years ...

Reddev

•2 years ago

19 Replies

Low ESR and CRP levems

Hi all, I'm wondering if anyone can explain to me why some people get high ESR and CRP readings and some don't?! I'm one of the don'ts! I have been in such...

Hi all, I'm wondering if anyone can explain to me why some people get high ESR a...

watercolours

•2 years ago

21 Replies

Quick question on tapering with insulin.

Hi all, On 3mg of pred & due to taper to 2.5 tomorrow. I’m type2 diabetic on liquid Metformin & Gliclazide & hyperglycaemic now for 3 months.. After 2 visits...

Hi all, On 3mg of pred & due to taper to 2.5 tomorrow. I’m type2 diabetic on li...

Cact

•2 years ago

6 Replies

thoughts

I am scheduled to travel to Rome and a 10 day cruise to Greece in a couple of days (9-26-23). I went to the ER (9-24-22) with a lump on...

I am scheduled to travel to Rome and a 10 day cruise to Greece in a couple of da...

Kd19778167

•2 years ago

8 Replies

Flare I think.

I've been aware of an aching, unlike any aching I have suffered with for several years. It's been around for about 2 weeks and is gradually intensifying...

I've been aware of an aching, unlike any aching I have suffered with for several...

IdasMum

•2 years ago

6 Replies

missed dose AA

on holiday I have forgotten to take my Sunday dose of Alendronic Acid. I have already taken my 7am pred and omniprazole - what should I do? Can I miss it for...

on holiday I have forgotten to take my Sunday dose of Alendronic Acid. I have a...

Jantayl

•2 years ago

22 Replies

Is it worth taking Methotroxate when on a low dose of prednisilone?

Hallo wonderful people I am trying to taper from 2 mg of pred. to 1.5, without much success; I have been on 2 mg for about 3 months. I had a call the other...

Hallo wonderful people I am trying to taper from 2 mg of pred. to 1.5, without ...

humlies

•2 years ago

42 Replies

It is too late for imaging for GCA?

Hi again, I'm a GCA patient, having been on PRED for 5 weeks, starting at 60 MG for 2 weeks, then 50 for 2 weeks, and now 40 MG for another week. My original...

Hi again, I'm a GCA patient, having been on PRED for 5 weeks, starting at 60 MG...

montebello

•2 years ago

15 Replies

allergy to meds taken for GCA

diagnosed about 6 weeks ago. Put on prednisolone, Lansaprosol , Vitamin D & Alendronate. Last week ended up at A&E with severe allergic rash my body is just...

diagnosed about 6 weeks ago. Put on prednisolone, Lansaprosol , Vitamin D & Ale...

CavalierKC3

•2 years ago

4 Replies

SEVERE LOWER BACK PAIN

SEVERE BACK PAIN I am 83 and have been suffering from GCA/PMR for about 6 years. I am on 7mgms prednisolone. Co codamol helps pain a bit but obviously cant...

SEVERE BACK PAIN I am 83 and have been suffering from GCA/PMR for about 6 years...

astley123

•2 years ago

25 Replies

Covid Risk Based Approach to Travelling Abroad

https://healthunlocked.com/vasculitis-uk/posts/148560134/covid-risk-based-approach-to-travelling-abroad This was posted on the Vasculitis Thread. I thought...

https://healthunlocked.com/vasculitis-uk/posts/148560134/covid-risk-based-approa...

jinasc

•2 years ago

8 Replies

light headed , room spinning

Woke up this morning and my head is spinning didn’t know this till I tried to get out of bed trying to sit up gradually it’s horrible feeling …. Is this down...

Woke up this morning and my head is spinning didn’t know this till I tried to ge...

Staffieblue

•2 years ago

33 Replies

Bilateral rotary cuff in shoulders after coming off pred....

After 3.5 years tapering pred I have been left with bilateral rotary cuff which is excruciating. I have had it a year now and finally have an MRI Monday. Apart...

After 3.5 years tapering pred I have been left with bilateral rotary cuff which ...

Seriola

•2 years ago

64 Replies

Too Soon??

Having been finally very relieved to at least have a diagnosis for my symptoms I was started on 15mg Prednisolone just one week ago with a follow up call from...

Having been finally very relieved to at least have a diagnosis for my symptoms I...

Windy183

•2 years ago

70 Replies

New on this site!

Hello all. I am not sure if there are any members of this group from NZ, However that does not matter as PMR seems universal in its symptoms and treatment. I...

Hello all. I am not sure if there are any members of this group from NZ, However...

Matua

•2 years ago

28 Replies

hypertension anxiety and trying to reduce steroids

hi I am currently starting to reduce my steroids for PMR. Went up to 25mg and now after a month on it reduced over two months too 20mg I have hypertension and...

hi I am currently starting to reduce my steroids for PMR. Went up to 25mg and no...

debzone24

•2 years ago

9 Replies

New study: Baking Soda may help against autoimmune diseases

https://bigthink.com/surprising-science/daily-dose-of-baking-soda-may-help-against-autoimmune-diseases/

https://bigthink.com/surprising-science/daily-dose-of-baking-soda-may-help-aga...

Newcomer22

•2 years ago

10 Replies

My mother died

My mother died yesterday after a horrible period. My stress level is rocket high and my body needs cortisone. Puls over 100, so fatigue I have not felt since...

My mother died yesterday after a horrible period. My stress level is rocket high...

krillemy

•2 years ago

48 Replies

thank you

Dorset lady so good to see you again. We used to correspond quite regularly years ago. I have let my hair go Grey during covid and absolutely love it, I see...

Dorset lady so good to see you again. We used to correspond quite regularly year...

DeliaGray

•2 years ago

2 Replies

tocilizumab after relapse

Hi having felt unwell again and 8 weeks of steroids, reducing to zero I have had a positive ct pet scan again. Now back on steroids and a plan to commence...

Hi having felt unwell again and 8 weeks of steroids, reducing to zero I have had...

Devoid

•2 years ago

3 Replies

Flying with flareup of GCA

I have planned a trip to England from the United States to England for several Months now. I am supposed to leave the U.S. on Monday 26th September. Now my...

I have planned a trip to England from the United States to England for several M...

DeliaGray

•2 years ago

38 Replies

at a loss to know what’s what

I posted a while ago to say I was seeing a new rheumatologist saw him in June have just finished having tests which included spinal mri , X-rays on hips and...

I posted a while ago to say I was seeing a new rheumatologist saw him in June ha...

Visby

•2 years ago

4 Replies

finally a diagnosis

after 4-5 months of severe aches and pains and initially being treated for PMR, which then stopped as I didn’t respond to pred my rheumatologist ordered a...

after 4-5 months of severe aches and pains and initially being treated for PMR, ...

Bluepin

•2 years ago

43 Replies

Rheumy's opinion of my blood results

I posted a couple of weeks ago about my blood results. My CRP was up to 21 but no ESR result as there wasnt enough blood. I went for a repeat blood test. CRP...

I posted a couple of weeks ago about my blood results. My CRP was up to 21 but n...

Broseley

•2 years ago

18 Replies

An early warning sign for the presence of giant cell arteritis in patients with polymyalgia rheumatica

https://arthritis-research.biomedcentral.com/articles/10.1186/s13075-022-02754-5 I came across this this morning while looking for something else - very...

https://arthritis-research.biomedcentral.com/articles/10.1186/s13075-022-02754-5...

PMRpro

Ambassador•2 years ago

41 Replies

Adrenal insuffiency and Colonoscopy and Endoscopy

Am due to have both of those procedures on 3rd of October and just wondered if taking the prep would put me in any danger re Adrenal Insuffiency Also should I...

Am due to have both of those procedures on 3rd of October and just wondered if t...

daisylazy

•2 years ago

11 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for September 2022

Should I hold my nose when I jump?

clicking and cracking joints

Hand problems.

It seems to take hours for my Prednisolone to take effect

my fourth rheumatologist

Low ESR and CRP levems

Quick question on tapering with insulin.

thoughts

Flare I think.

missed dose AA

Is it worth taking Methotroxate when on a low dose of prednisilone?

It is too late for imaging for GCA?

allergy to meds taken for GCA

SEVERE LOWER BACK PAIN

Covid Risk Based Approach to Travelling Abroad

light headed , room spinning

Bilateral rotary cuff in shoulders after coming off pred....

Too Soon??

New on this site!

hypertension anxiety and trying to reduce steroids

New study: Baking Soda may help against autoimmune diseases

My mother died

thank you

tocilizumab after relapse

Flying with flareup of GCA

at a loss to know what’s what

finally a diagnosis

Rheumy's opinion of my blood results

An early warning sign for the presence of giant cell arteritis in patients with polymyalgia rheumatica

Adrenal insuffiency and Colonoscopy and Endoscopy

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