My mother died

[krillemy]

My mother died yesterday after a horrible period. My stress level is rocket high and my body needs cortisone. Puls over 100, so fatigue I have not felt since beginning of PMR, brain is a mess so I just lay here waiting for the extra 5 mg to kick in so I can sleep. I find this lack of cortisone production to be so disabling !!!

[DorsetLady PMRGCAuk volunteer]

My heartfelt condolences to you in such a difficult time.

Unfortunately as many of us know our own body doesn’t kick in with the extra cortisol required in such stressful situations…but not a lot we can do about that when on higher doses.

Hopefully the extra you have taken will help get you through, or at least enough to help you function a little better.

Please take all the help you are offered, there is a lot to be considered at such a time…you don’t have to do it all personally -even if you want to, or think you should 🌸

[Elispeth]

Dear Krillemy. I am so very sorry for your loss. Please try to rest now and look after yourself as best that you can. This is a difficult time for you! It sounds as if you have been through a very difficult time. My thoughts are with you at this time xxx

[PMRpro Ambassador]

Hugs - no words I can say will help. xxxx

If you feel really ill - don't hesitate to call the emergency services. Make a note of your pred history and dose etc. - just in case.

[SheffieldJane]

So sorry krillemy. No wonder you feel completely slapped flat. Somehow we keep going whilst the crisis is happening and when it stops we feel lost and totally bereft, and utterly exhausted. You have probably been running on fumes for ages. Wishing you love and comfort and the support of family and friends. Above all, the strength to face this, like you face everything else. 🌸🌷💐🌺

[jinasc]

So sorry for your loss and you are in for a stressful period. I noticed from your post that 11 days ago you were on 17.5mg - so the extra 5mg should kick, but as PMRpro says, make a note of your full history and illnesses just in case.

[Bella59 in reply to jinasc]

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[TheMoaningViolet]

I am so very sorry for your loss. 😔

[HeronNS]

🌼

[JanetRosslyn]

Big gentle hugs from me xx

[Jackoh]

So sorry for your loss. It is always so difficult when we have very stressful times while we’re on pred. Good you’ve taken the extra and as folks have said do try to get as much help as you can. Do try to look after yourself. Thinking and praying for you. 💐

[Janet57]

So sorry for your loss. As well as you can look after yourself and take each day as it comes. I hope the Pred helps a little. 💐

[Pink_and_Black]

Heartfelt condolences Krillemy. Sending love and hugs. Xx

[agingfeminist]

So sorry Krillemy to read of your loss. Such an impossibly tough time. Perhaps contact your doc and explain how you are feeling physically...do look after yourself.

[2013mayo]

so very sorry to hear of your loss.

You will be under a great deal of stress, take it one day at a time.

Xx

[CathyM64]

So sorry to hear of the sad loss of your mum my thoughts are with you and your family at this very upsetting time x

[Lochy]

I feel your pain. My mum died last November. We cared for her at home with little support. Various issues there caused a huge amount of stress and with hindsight I can’t believe I didn’t preempt my reaction! Apart from devastated I felt fine physically until literally days after the funeral. My body took over and the pains appeared in places I’d never had before. I’ve been suffering with this for 6years so am pretty experienced in all variety of pains. My rheumatologist saw me within days. I’d already increased my dose by then just all too late. It was the first time since diagnosis that I’ve experienced feeling absolutely fine and in control of my PMR then wham bam everything went wrong. I was experiencing the stress reaction. You must take care and get as much medical support as you can. I’m always the one who copes in my family and organised and demanded the care that my mum needed, it took its toll.

Sending you hugs, I still feel my mums loss desperately.

[Megams]

~Sending abundant blessings & sincere condolences your way to comfort you in some small way.

Stress has no respect on how it damages your body - please go gently in the days ahead even though your mind will naturally be everywhere else ~

[CathyMeg]

so sorry. Such a hard time and to not be able to rely on your body makes it worse. But extra Pred should help. I remember though the really intense fatigue after my mum and dad. Sleep nap whenever you can and get into nature my only tips. Sending love ❤️

[Abcd123455]

sending my condolences and thinking of you. Look after yourself x

[Pixix]

Sending hugs, sorry for your loss. S x

[Obinan]

Please know that there are people sending you love and caring about you. I’m so sorry for your loss.

[S4ndy]

So sorry for your loss. Treat yourself very gently. Thinking of you xxx

[CarolF1312]

So sorry for your loss. Sending hugs and strength to get you through this awful time. 🤗🤗

[Broseley]

I am so sorry for your loss. You now have to focus on yourself as number one. Is there anyone else who can help with all the inevitable arrangements that follow?

[Nightingales]

Heartfelt condolences and so sorry you have the added burden of your own health at this difficult time 🌸

[Miacaro45]

I do not know you personally but I know what you are experiencing. Losing a parent( or any loved one) is devastating. Reach out to your doctor for help whether it will be for medicine or for giving you the name of a therapist. Please take care of YOU. Sending you hugs (as you need as many as you can get). I am so sorry for your loss.

[Staffieblue]

My sincerest condolences 🌹🌹

[Tiggy70]

So sorry for your loss Krillemy. Take things one day at a time 🌸🌸

[Telian]

So sorry for your loss krillemy. 🌺. Take your time and rest, you’ve done your duty. 🌺

[herdysheep]

So sorry for your loss, krillemy. Slow down as much as you possibly can and be kind to yourself. As others have said, accept whatever help is around. Hugs

[krillemy]

Dear fantastic people here.

All you words and thoughts means a lot to me. I was a mess yesterday, and still not well, but better though. I cannot believe the fatigue I had yesterday - it is really frightening, and then higher dose keeps you from sleeping longer than 4 hours. But I am not alone in this and it did help with the extra 5 mg. Thank you all

[DorsetLady PMRGCAuk volunteer in reply to krillemy]

good -and old cliché that it is -one day at a time….

If you feel fatigue due to lack of sleep then rest on the bed or in a chair when you need. Doesn’t matter if you drop off, or if you don’t, listen to some relaxing music/audio book/podcast -anything to stop your brain working overtime….🌸

[catdance in reply to krillemy]

Sending you a hug of support and understanding!

[Sharitone in reply to krillemy]

Lots of sympathy, Krillemy. Would it be worth getting some mild sleeping tablets to help you over the next few weeks?💐

[krillemy in reply to Sharitone]

I am better. The stress level of taking care of a sick but complicated person is lifting. Sleeping pills any kind of benzos are impossible to get by here in denmark - but I have slept the past 2 nights - Thanks

[singingloud]

My condolences to you. Rest and take time to grieve. ❤️🌹💔

[MrsNails]

Sincere Condolences 💐

[yogabonnie]

I am so sad for you. It is so hard to lose our sweet mothers. Sending big condolences. Take care of yourself now. Rest as best you can. Let others help you. I hope she comes to you in a lovely dream!

[perceptual63]

My condolences to you and your family, krillemy.

[Twopies]

there are no words that I can think of to comfort you. Please take extra special care of yourself during this very difficult time, and know that you are not alone.

[Karendeena]

so so sorry for you xx

[prunus]

So sorry to hear of your terrible loss. My thoughts are with you at this sad time. x

[montebello]

The title of your message said it all -- and the outpouring of heartfelt feeling for you shows the kinds of people that are on this forum. We care. As much as possible, we share in your pain, especially those of us who have also lost loved ones, and even more especially those of us who are struggling with these diseases. Bless you.

[loomweaver]

So sorry for your loss, thinking of you, take care. xx

[Ryeland]

Good evening Krillemy. You’ve been in my thoughts today. So many of us lose a parent at a time in our lives which can be very stressful for other reasons anyway. Just go very gently and be confident that time will help.

[Wallysma]

krillemy, I am so sorry about your mother. I wish you peace of mind and heart and care from others during this important time. Please be easy on yourself especially with dealing with PMR. Make sure you rest and eat and take a deep breathe. I hope your loving memories overtake the sadness soon. Take care.

[PMRCanada]

Endings are tough and grief surrounding loss of a loved one unfolds for each of us differently. In the coming weeks and months be patient with yourself and seek out whatever you need, including support from others. Do take care of your physical health as well as your emotional well-being. Hoping the extra 5mg addresses your fatigue and that your disease activity/symptoms are manageable during this stressful, difficult time. Please be mindful that you are mourning whilst having a chronic condition (which may require additional self care).

[Hunter134]

So sorry for your loss.Sending hugs and take care of yourself💕