light headed , room spinning

[Staffieblue]

Woke up this morning and my head is spinning didn’t know this till I tried to get out of bed trying to sit up gradually it’s horrible feeling …. Is this down to the steroids ?

[123-go]

I don't think this is steroid related per se. I have had of bouts where the coving at ceiling level has appeared to slide sideways-horrible, but I just stayed in bed for the day and was recovered by the next. It may be ear-related: wax build-up??

There have been others here with similar experiences who will be along soon, I'm sure.

If you look in 'Related Posts' at the side of your screen you may get more information. Take care.

[Staffieblue in reply to 123-go]

Thank you 123-go , just not been to good this week have also been having to dash to the toilet for a pee, no indication of UTI showing though.

[123-go in reply to Staffieblue]

Sorry to hear you've been feeling out of sorts. Just be aware of any other symptoms that may appear. Of course it would be the weekend when surgeries are closed but if you become concerned about anything ring 111 for advice.

Take it slowly and easily. Lets us know how things go.

[Staffieblue in reply to 123-go]

Thank you , I appreciate your advice and kindness 🌸

[jinasc]

pubmed.ncbi.nlm.nih.gov/314...

Patient Reported Involvement of 8th Cranial Nerve. This relates to your ears.

If it continues I would be seeking my GP. Download and take it with you, they probably will not have seen it.

[Staffieblue in reply to jinasc]

Thank you will look into it 👍

[PMRpro Ambassador]

It might be - but you can't blame pred for everything and they don't excuse us from other problems!

Has it improved? Is it just while moving from lying to sitting to standing? Are you feeling sick as well? Any other new or worsened symptoms?

[Staffieblue in reply to PMRpro]

Hello PMRpro,

I have been passing urine a lot , did see doc no obvious UTI showing up this has been all week .

Thanks for advice am up and about now but got a wobble head 😵‍💫

[Uglow in reply to Staffieblue]

hi are you diabetic

[Staffieblue in reply to Uglow]

Hi , no I’m not diabetic .

[Seacat30]

I am not at all surprised by your weeing. I was struck by a sudden desire to go to the loo when I started taking prednisolone. I was being invested for another issue which required several urine tests by my GP and referral to Urology for an ultrasound and cystoscopy. None of these revealed a UTI or anything else sinister. I still want to wee more than I used to but not as dramatically.

[Staffieblue in reply to Seacat30]

Feel bit more reassured now thanks for sharing your experience .

[WHL67 in reply to Seacat30]

same here Seacat30 I’m weeing all the time worse at night nearly every 1-2hrs driving me mad 😡😡although I do drink lots of water up until about mid afternoon and I’m currently on 45mg pred at the mo!!

[yogabonnie]

I just had this but the EPLEY maneuver I did at home worked!! google it. Probably from "crystal loose in ear canal" It worked before and this time it worked again. !

[Suedeshayes in reply to yogabonnie]

Me too, and it worked. Sounds a bit like vertigo.

[piglette]

My brother had a similar problem. He mentioned it over lunch one day and I had just seen something on TV about it with the Epley manoeuvre. His GP refused to do it, but he got a physio to do it for him. I believe you can do it yourself.

[Bridge31]

My bouts of dizziness are not as severe as that but I have moments where I think “whoa “ and I have to stop completely for a short while. I don’t feel safe to move until it passes. ( It happens both sitting and standing .)

I have always assumed they are caused by the steroids as these bouts hadn’t happened before PMR.

[Staffieblue in reply to Bridge31]

Thank you appreciate your reply ,

[Sophiestree]

I think they may have refused due to the possible after effects and the patient feeling worse, hence taking up their scheduled appt time. Only two GPs in my practice do this and you have to book a double appt. One time they sent me to a private consultant which I was embarrassed about as the cost to them was crazy. But it certainly works.

[discoballs]

A few years ago I had a problem called Benign ? ? and was prescribed Buccustem sp? It was awful and I would randomly go giddy and feel sick.

It has now gone

David

[discoballs in reply to discoballs]

benign paroxysmal positional vertigo

[yogabonnie in reply to discoballs]

that’s what eply maneuver is for!! Easy to do at home! If it ever happens again

[Staffieblue in reply to discoballs]

Thank you for your info

[Pixix]

I have bouts of vertigo, this sounds similar, but shoukd be diagnosed by a doctor, I think. I have tablets which help the sickness, and recommended by gp todo the Brandt daroff manoeuvre rather than Epley, I tried Epley but it made me too sick, I couldn’t complete it. The room spins a lot at times, it’s horrible! Maybe Google it, but it’s best to get a diagnosis, I think! Vertigo is horrible, I hope you don’t have it!

[PMRpro Ambassador in reply to Pixix]

entsurrey.com/Download/ENT-...

swbh.nhs.uk/wp-content/uplo...

[Pixix in reply to PMRpro]

Yes! That’s the one! Thanks for adding the link! S x

[Staffieblue in reply to Pixix]

Thank you it has passed but I still feel bit wobbly head , I’m just staying at home in pjs day

[Pixix in reply to Staffieblue]

Tbh, if it’s passed that quickly, I doubt it was vertigo…in my experience it lasts until the treatment works, the quickest bout I got over was about ten days, & the bout I’m working through now has been since June, but is better than it was!! S x

[Staffieblue in reply to Pixix]

gosh sorry to hear that is very debilitating .

[Theadmiral]

Sounds like an attack of vertigo. I have had two such attacks but before I was taking prednisone. The first time I thought I was having a stroke. It's caused by a tiny crystal, about the size of a grain of salt, becoming dislodged in your ear.

[Exflex]

up until Thursday last week both my ears were blocked with wax, the right one being the worst. After 7 days of olive oil (obtained from the chemist purified for ears) I had the wax removed by a procedure called micro suction. The pain in the right temple rapidly receded, and my experience of dizziness I spoke about earlier may have been implicated - who knows. I will be oiling my left ear shortly after our house move and having the wax removed, hopefully.

[tangocharlie]

Could be one of many things, including possibly one of many different types of vertigo, there are dozens, you need to see a doctor if it happens again. Glad it seems to have settled

[Staffieblue in reply to tangocharlie]

Thank you for your message , yes I had it once before many years ago this just felt different much better now thanks again