Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,342 members • 38,113 posts

All posts for March 2022

How to get from 1mg to 0 pred

I was diagnosed with PMR in Oct 20 on 15mg and in April 21 told it was highly unlikely I ever had PMR and just needed to now getting off steroids . At that...

I was diagnosed with PMR in Oct 20 on 15mg and in April 21 told it was highly un...

Sydney0503

•2 years ago

10 Replies

Help, not sure what to do next!

Firstly please accept my apologies for the long post but I feel I have to explain in detail as I am in such I dilemma as to what I should do next. I was...

Firstly please accept my apologies for the long post but I feel I have to explai...

Paininthenck

•2 years ago

42 Replies

My journey and experience with PMR

My journey and experience with PMR since September 2021. I had some core inclusion criteria for PMR, including blood results ( ESR and CRP ) were high. I was...

My journey and experience with PMR since September 2021. I had some core inclusi...

Hidden

•2 years ago

7 Replies

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Josie-Anne

Hi I have just been diagnosed with Barrett’s disease which my siblings also have and gastritis, I had bloods done lately as I’d go to go have an eye check up...

Hi I have just been diagnosed with Barrett’s disease which my siblings also hav...

Josie-Anne

•2 years ago

1 Reply

Reducing Prednisplone

I have now been on 20mg pred Since the 7th of January and my symptoms of PMR have almost gone little stiff in the shoulders in the morning but nothing like...

I have now been on 20mg pred Since the 7th of January and my symptoms of PMR hav...

DJmusic

•2 years ago

4 Replies

Taper while having other treatments?

Hi everyone. I am about to embark about the 21st of this month on a 6 weeks course of radiotherapy to my neck and cheek. I shall be at week 6 of a 8 week taper...

Hi everyone. I am about to embark about the 21st of this month on a 6 weeks cour...

paintpots

•2 years ago

9 Replies

Vasculitis and prednisolone

Thank you. I've just done that.

villalatina

•2 years ago

1 Reply

Can you have a flare when on 1.5mg pred?

After eight years of pred I am finally down to 1.5mg per day using dead slow method. My energy levels are starting to improve which means i am doing more but...

After eight years of pred I am finally down to 1.5mg per day using dead slow me...

Crochetgirl65_

•2 years ago

17 Replies

Advice on Prednisolone please

My GP has put me on 30mg prednisolone reducing by one tablet each week. This is the 2nd time I've been on them but don't remember having such bloating and...

My GP has put me on 30mg prednisolone reducing by one tablet each week. This is...

villalatina

•2 years ago

31 Replies

Yet another side effect of Prednisone: tendonopathy

I was diagnosed in April 2019 with PMR, put on 20mg prednisone. I've done the usual up and down, now tapering to 7mg with the 'safety net' of Leflonamide. (My...

I was diagnosed in April 2019 with PMR, put on 20mg prednisone. I've done the us...

HelenDaisy

•2 years ago

22 Replies

PMR Rheumatologist- Looking for recommendations

Hi Looking for recommendations for a Rheumatologist who specialises in PMR, I am based in Lancashire but willing to travel for the right Specialist. Many...

Hi Looking for recommendations for a Rheumatologist who specialises in PMR, I am...

Keos

•2 years ago

9 Replies

Changes to taper plan website?

I use the site at steroidtaper.azurewebsites.net to automatically generate my taper schedules for the DSNS plan. When I went there today the structure on the...

I use the site at steroidtaper.azurewebsites.net to automatically generate my ta...

WelshSmallholder

•2 years ago

23 Replies

Wondering if anyone the same as me.

Since cutting pred to 3mg iam feeling very low, is this a normal thing iam putting I down tothat and just getting on with everything.x

Since cutting pred to 3mg iam feeling very low, is this a normal thing iam putti...

Harrywogan

•2 years ago

7 Replies

Simvastatin - long term use

Simvastatin, side effects from long term use, any experiences and have these changed with an alteration to another type of statin.

Simvastatin, side effects from long term use, any experiences and have these cha...

Hidden

•2 years ago

18 Replies

PMR and COVID

Sorry if I've missed recent posts but got Covid last Sunday. Still testing positive. early symptoms gone but today, Day 7, absolutely exhausted. been on Pred...

Sorry if I've missed recent posts but got Covid last Sunday. Still testing posi...

Gostick

•2 years ago

17 Replies

Endocrinologist and Hydrocortisone

Hello all After many months of waiting I finally got to see an Endocrinologist as I have been unable to reduce prednisolone below 3mg without feeling really...

Hello all After many months of waiting I finally got to see an Endocrinologist a...

Skodadet

•2 years ago

18 Replies

To reduce two weeks on 30 ml that was upt from too low 15 of three weeks. I’m sure far too early, what do you think.

Here we go again reducing doctor wants me reduce to 25. She says 30 is a very high Dose 😱🤷🏽‍♂️ Thinking I might try and not tell them ,as it looks like...

Here we go again reducing doctor wants me reduce to 25. She says 30 is a very hi...

Ronzy

•2 years ago

9 Replies

Update

I ve been on 20mg for eight days I just started to feel better two days ago.I don't have a telephone appt til March 14.Any advice if I should start all over...

I ve been on 20mg for eight days I just started to feel better two days ago.I do...

Hunter134

•2 years ago

7 Replies

Alternative to prednisone

I am about to be tapered off prednisone and put on the biologic medication Actemra (Tocilizumab) as my rheumatologist says the long term effects of prednisone...

I am about to be tapered off prednisone and put on the biologic medication Actem...

Strelitzia

•2 years ago

21 Replies

Interesting article confirming what I have experienced with PMR

On those rare occasions that I carefully watch both the quality and quantity of food I eat I have without a doubt empirically experienced what this article...

On those rare occasions that I carefully watch both the quality and quantity of ...

rocketman42

•2 years ago

7 Replies

Liver function tests with Tocilizumab.

My Liver function tests are slightly out of range (0-35) mine were 42 last time and 46 recently. My Rheumatologist proposes that I come off Tocilizumab and...

My Liver function tests are slightly out of range (0-35) mine were 42 last time ...

SheffieldJane

•2 years ago

138 Replies

What is the difference between Polymyalgia Arthriticia and Polymyalgia Rheumatica ( please excuse the spelling!)

can anyone help please what is ( if any) difference between the two? husband insists its Arthritica not Rheumatica need to get this correct...

can anyone help please what is ( if any) difference between the two? h...

Jayjay27

•2 years ago

4 Replies

Always Good to get Good News

Hi all, I had my first blood tests for a few months, last one we cancelled due to lack of test tubes or something. Any way all is good. Everything normal...

Hi all, I had my first blood tests for a few months, last one we cancelled due ...

Bcol

•2 years ago

10 Replies

More about masks and Covid - get a set of FFP2 masks, wear them consistently and get out more. Just make sure your nose is covered too!!!

https://www.sciencedaily.com/releases/2022/03/220301093655.htm This study has shown that wearing masks DOES make a big difference. I wear one whenever outside...

https://www.sciencedaily.com/releases/2022/03/220301093655.htm This study has sh...

PMRpro

Ambassador•2 years ago

41 Replies

Update to previous post

I saw the GP yesterday for a follow-up to my on-going problems. The 24 hour blood pressure monitor showed blood pressure ok but she’s still not had the results...

I saw the GP yesterday for a follow-up to my on-going problems. The 24 hour bloo...

Janann25

•2 years ago

16 Replies

Sciatica and prednisolone

This is probably a strange question but will upping my prednisolone help my sciatica please

This is probably a strange question but will upping my prednisolone help my scia...

Koalajane

•2 years ago

15 Replies

Email lost in the ether?

I haven’t received my usual email. Is there a problem? I feel quite bereft without my daily read about fellow sufferers. Best wishes to all

I haven’t received my usual email. Is there a problem? I feel quite bereft with...

Ana-16

•2 years ago

12 Replies

Any hints for diet and/or lifestyle living with PMR?

I’ve been living with the condition for approx 18 months now, and from what I read here my experience is pretty standard; in fact, I’m probably getting off...

I’ve been living with the condition for approx 18 months now, and from what I re...

calibriel

•2 years ago

23 Replies

Mixing tablets and capsules

Would mixing a 2.5 mg plain pred tablet and a 1 mg plain gelatine pred capsule have the same effect as taking 3.5 mg in tablet form only? I’m wondering about...

Would mixing a 2.5 mg plain pred tablet and a 1 mg plain gelatine pred capsule h...

Prahran

•2 years ago

8 Replies

GP update

I am now into my 3rd week of taking 15mg Pred and feeling much better. Spoke to GP this week who seemed much more knowledgable about PMR than when I spoke to...

I am now into my 3rd week of taking 15mg Pred and feeling much better. Spoke to ...

Middleton22

•2 years ago

14 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for March 2022

How to get from 1mg to 0 pred

Help, not sure what to do next!

My journey and experience with PMR

Josie-Anne

Reducing Prednisplone

Taper while having other treatments?

Vasculitis and prednisolone

Can you have a flare when on 1.5mg pred?

Advice on Prednisolone please

Yet another side effect of Prednisone: tendonopathy

PMR Rheumatologist- Looking for recommendations

Changes to taper plan website?

Wondering if anyone the same as me.

Simvastatin - long term use

PMR and COVID

Endocrinologist and Hydrocortisone

To reduce two weeks on 30 ml that was upt from too low 15 of three weeks. I’m sure far too early, what do you think.

Update

Alternative to prednisone

Interesting article confirming what I have experienced with PMR

Liver function tests with Tocilizumab.

What is the difference between Polymyalgia Arthriticia and Polymyalgia Rheumatica ( please excuse the spelling!)

Always Good to get Good News

More about masks and Covid - get a set of FFP2 masks, wear them consistently and get out more. Just make sure your nose is covered too!!!

Update to previous post

Sciatica and prednisolone

Email lost in the ether?

Any hints for diet and/or lifestyle living with PMR?

Mixing tablets and capsules

GP update

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