Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,479 members • 38,443 posts

All posts for March 2022

Symptoms feel more intense after eating?

Does anyone have their symptoms increase in intensity if they eat the not so right thing? If I eat a small piece of bread or pasta, or something that has a...

Does anyone have their symptoms increase in intensity if they eat the not so rig...

bethm1129

•2 years ago

5 Replies

What our doctors don't/won't tell us about PMR

Trying to clarify a few things from my initial intro to PMR/GCA. After diagnosis and the high dosage of Pred., I initially blamed the Prednisone for what my...

Trying to clarify a few things from my initial intro to PMR/GCA. After diagnosis...

jarn

•2 years ago

11 Replies

Has rage caused my flare?

I am so angry and disappointed that my best attempts to taper prednisolone to the lowest I have achieved in five years has failed. After four years at 8mg and...

I am so angry and disappointed that my best attempts to taper prednisolone to th...

Zebedee44

•2 years ago

35 Replies

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Adrenal glands not working properly

What happens when the adrenal glands are not working properly? Can they improve over time?

What happens when the adrenal glands are not working properly? Can they improve ...

Stevekemp

•2 years ago

2 Replies

Can anyone recommend a rheumatologist in East Sussex?

Preferably nearest to Eastbourne. Self-pay, no GP referral. Looking for an initial consultation, hoping for confirmed diagnosis. Thanks in advance!

Preferably nearest to Eastbourne. Self-pay, no GP referral. Looking for an init...

seagran

•2 years ago

16 Replies

Knee replacement surgery

I am currently on 9 mg. of pred. I am having knee replacement surgery on Mar. 28. Should I stay at 9 mg, reduce or raise the pred. due to the surgery?

I am currently on 9 mg. of pred. I am having knee replacement surgery on Mar. 2...

Summerrental

•2 years ago

5 Replies

Therapeutic prednisone dose question

I have been on Prednisone up and down for 3 years for PMR and GCA . I have been as night as 60 and I am now at 3mg It looks like my PMR and GCA. seem to,be on...

I have been on Prednisone up and down for 3 years for PMR and GCA . I have been...

Darcy2000

•2 years ago

11 Replies

Do any tests differentiate PMR from osteoporosis?

I have had PMR for 3+ years and have managed to reduce to 2mg daily. It has never really "gone" ... still aches, especially around the shoulders and neck....

I have had PMR for 3+ years and have managed to reduce to 2mg daily. It has neve...

Captainjonny

•2 years ago

14 Replies

Prednisolone 1mg gastro-resistant tabs - problem with supply

Hello. I’m in UK. I am currently unable to get any 1mg gastro-resistant prednisolone tablets - the pharmacy’s supplier says they have been discontinued...

Hello. I’m in UK. I am currently unable to get any 1mg gastro-resistant predniso...

Geno24

•2 years ago

39 Replies

Advice on next stage of my journey please.

Yet again I am asking for advice on the next stage of my PMR journey. I have taken 17.5mg pred for 4 weeks and at last felt no pain and felt stable so as...

Yet again I am asking for advice on the next stage of my PMR journey. I have tak...

Pawscat11

•2 years ago

9 Replies

Osteoporosis

Just discovered that my bone density is abnormal so need to take drugs to rebuild my bones. I’m terrified of the awful side effects mentioned in relation to...

Just discovered that my bone density is abnormal so need to take drugs to rebu...

Pandora2

•2 years ago

70 Replies

Mornings

Good morning everyone, Since I’ve reduced prednisolone down to 5mg I have noticed wrist and hand stiffness in the mornings. Sometimes my fingers feel as if...

Good morning everyone, Since I’ve reduced prednisolone down to 5mg I have notice...

Pangolin43

•2 years ago

29 Replies

Something Positive

I thought I would share with you my experience over the last 6 months. Having struggled a few times with getting to a low dose and going back up again, with...

I thought I would share with you my experience over the last 6 months. Having st...

Alazarin

•2 years ago

11 Replies

Hi I have covid again

Hi so I have covid for the second time now I had 3 vaccine and yet still seem to have got it again !!! . Awhile ago I received a letter and a pcr test but...

Hi so I have covid for the second time now I had 3 vaccine and yet still seem to...

Knit23

•2 years ago

4 Replies

Maybe RS3PE on top of the PMR

Has anyone had RS3PE with pain but no swelling? My hands are not swollen but the backs of them are so sore and painful. I haven’t had this pain in the backs of...

Has anyone had RS3PE with pain but no swelling? My hands are not swollen but the...

SusyTe

•2 years ago

16 Replies

Broken ankle

I have broken my ankle. Nothing to do with pred or weak bones. Went over on my boot heel (not even that high) but broken in two places. External then internal...

I have broken my ankle. Nothing to do with pred or weak bones. Went over on my b...

Buttonshutton

•2 years ago

17 Replies

Linear Blaschkitis

I had PMR and have been off pred for over a year, following recovery not long after a hip replacement. On the same leg I’ve had a linear rash ( non itchy)from...

I had PMR and have been off pred for over a year, following recovery not long af...

Casia

•2 years ago

8 Replies

Ear pain

Hi all Do any of you suffer from ear ache or ear pain with GCA?

Graciejack4

•2 years ago

14 Replies

MHRA drug safety update: Hydroxychloroquine

Since it seems rheumies are getting adventurous about using various DMARDs in PMR even though there is no good evidence for their benefit, I thought I would...

Since it seems rheumies are getting adventurous about using various DMARDs in P...

PMRpro

Ambassador•2 years ago

8 Replies

It seems that the U.K. NHS is going to change quite radically in terms of access to Primary of State to make an announcement this afternoon.

I found this rather depressing and I’m worried about those without IT skills who don’t have an iPhone. It explains some of the recent experiences with GP...

I found this rather depressing and I’m worried about those without IT skills who...

SheffieldJane

•2 years ago

102 Replies

Gp unconvinced

I wrote on this forum about weird cramps fatigue etc headaches and although my inflammatory markers are never raised people responded saying it was worth...

I wrote on this forum about weird cramps fatigue etc headaches and although my i...

Mag999

•2 years ago

9 Replies

Polymyaga will it ever go

Iam so confused about Polymyalga, when i was told i had it 18months ago, started on 25mg pred, my doctor said after a couple of months, start to rejuice by...

Iam so confused about Polymyalga, when i was told i had it 18months ago, starte...

Harrigan

•2 years ago

41 Replies

It’s like being on a merry go round

I was tapering nicely down to 3.5 mg Pred when I started to get pain in my shoulders. Guessing it was good old PMR (I’d only suffered with it in my thighs...

I was tapering nicely down to 3.5 mg Pred when I started to get pain in my shoul...

Doraflora

•2 years ago

18 Replies

Is anyone experiencing vertigo with PMR? This is the second time for me and we thought the sulfasalazine was causing it but not the case.

Vertigo?

Helpisontheway_8

•2 years ago

15 Replies

What next after MTX

6 months ago when Rheumatology opened up again I was started on MTX with a reducing dose of Prednisolone. I didn't have any side effects to speak of and I...

6 months ago when Rheumatology opened up again I was started on MTX with a reduc...

Travs

•2 years ago

30 Replies

Inflammation news

https://l.facebook.com/l.php?u=https%3A%2F%2Fon.natgeo.com%2F3MqjpGU%3Ffbclid%3DIwAR2Qbgof7BEJKcrZId5O-rie52MaqixSm6K1_pI-1c9UT_fZBO6Pu0V9h9E&h=AT1_dBnVkBjP8NPq

https://l.facebook.com/l.php?u=https%3A%2F%2Fon.natgeo.com%2F3MqjpGU%3Ffbclid%3D...

Theziggy

•2 years ago

7 Replies

Heartburn

Hello! Back on Prednisolone after a failed taper and accepted it better this time, but heartburn persists GP is aware and monitoring but how does everyone...

Hello! Back on Prednisolone after a failed taper and accepted it better this ti...

Allcraft

•2 years ago

8 Replies

Synacthen Test

Due a synacthen test 19th April. Shoulders and arms very painful at the moment. On 3.5 ml of pred. If I increased the pred for two weeks and then dropped back...

Due a synacthen test 19th April. Shoulders and arms very painful at the moment. ...

daisylazy

•2 years ago

6 Replies

Return of GCA-like symptoms....from 2 months ago

Hello again. Not sure whether to do this as a part of the original post of start a new one. So I'm doing both. I have an update to the last extended and very...

Hello again. Not sure whether to do this as a part of the original post of star...

bright-horizon

•2 years ago

13 Replies

Ultra- Slow taper needed?

I was diagnosed with PMR 18 months ago and am being treated with Prednisolone. In April last year I started DL's 5- week taper routine and have successfully...

I was diagnosed with PMR 18 months ago and am being treated with Prednisolone. I...

Siral

•2 years ago

10 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for March 2022

Symptoms feel more intense after eating?

What our doctors don't/won't tell us about PMR

Has rage caused my flare?

Adrenal glands not working properly

Can anyone recommend a rheumatologist in East Sussex?

Knee replacement surgery

Therapeutic prednisone dose question

Do any tests differentiate PMR from osteoporosis?

Prednisolone 1mg gastro-resistant tabs - problem with supply

Advice on next stage of my journey please.

Osteoporosis

Mornings

Something Positive

Hi I have covid again

Maybe RS3PE on top of the PMR

Broken ankle

Linear Blaschkitis

Ear pain

MHRA drug safety update: Hydroxychloroquine

It seems that the U.K. NHS is going to change quite radically in terms of access to Primary of State to make an announcement this afternoon.

Gp unconvinced

Polymyaga will it ever go

It’s like being on a merry go round

Is anyone experiencing vertigo with PMR? This is the second time for me and we thought the sulfasalazine was causing it but not the case.

What next after MTX

Inflammation news

Heartburn

Synacthen Test

Return of GCA-like symptoms....from 2 months ago

Ultra- Slow taper needed?

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