Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,643 members • 38,793 posts

All posts for October 2021

BACH FLOWER REMEDIES

I have found that since having PMR, I have an increase in my anxiety levels. I am on Pred (currently 4mg) and don't want to take any other strong medications...

I have found that since having PMR, I have an increase in my anxiety levels. I a...

Francesbarbara

•3 years ago

25 Replies

Knee and hip replacement hampered by Covid lockdown then PMR was

Can anyone advise, please? I was put on the list for a knee replacement and also the opposite hip replacement some 3 to 4 years ago. Then diagnosed with PMR...

Can anyone advise, please? I was put on the list for a knee replacement and als...

Pinkcuffs

•3 years ago

15 Replies

Problems with hospital

I had an annoying experience with my last hospital appointment, which was meant to be a telephone appointment with my rheumatologist or one of her colleagues,...

I had an annoying experience with my last hospital appointment, which was meant ...

Marijo1951

•3 years ago

41 Replies

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When is a 'Cancelled' Rheumatology Appointment not a cancelled appointment?

I received a letter saying that, we are sorry but, your Rheumatology appointment on 25 October has had to be cancelled. In the same envelope, a letter signed...

I received a letter saying that, we are sorry but, your Rheumatology appointmen...

DAW28

•3 years ago

37 Replies

“Shriveling” and losing fat and muscle

Hello everyone, In the last few months I’ve gotten a lot more wrinkly and my extremities are beginning to resemble toothpicks. Especially noticeable in...

Hello everyone, In the last few months I’ve gotten a lot more wrinkly and m...

Mstiles

•3 years ago

10 Replies

Duration of PMR and Prednisone’s role

Is there an average time of duration of PMR from onset to remission and is prednisone a critical component in pushing the disease into remission? I understand...

Is there an average time of duration of PMR from onset to remission and is predn...

Twadds

•3 years ago

11 Replies

PMR pain vs DDD pain

Many of you know my history of multiple health issues. I've been on Actemra off & on (mostly on) since early 2020. Discontinued prednisone July 2021. Braces on...

Many of you know my history of multiple health issues. I've been on Actemra off ...

Spanky2019

•3 years ago

15 Replies

Advice needed on fine tuning prednisolone

I’d be grateful for confirmation of my present issue with Polymyalgia from anyone on the site. I’m coming up to two years since diagnosis and having started on...

I’d be grateful for confirmation of my present issue with Polymyalgia from anyon...

Jackie_boy

•3 years ago

11 Replies

Pmr, Rheumy,Pred and GP's

Wow, I was diagnosed about 2013 with PMR when the private physios decided it was not something they could work out what the problem was. No refund. Went to a...

Wow, I was diagnosed about 2013 with PMR when the private physios decided it was...

KCRoyals

•3 years ago

6 Replies

PREDNISOLONE - THE WHATS, THE WHYS & ???????

Hi Folks, I just this morning came across this hidden away in a folder on my desktop. I haven't a clue where I got it, but it might help someone(s) better...

Hi Folks, I just this morning came across this hidden away in a folder on my de...

Benos123

•3 years ago

12 Replies

rheumyLetter mentioning the COVID vaccine

Thought this was quite interesting on the bottom of a lengthy copy of a letter from my rheumatologist to my GP I've said all along I was fine till had the jab...

Thought this was quite interesting on the bottom of a lengthy copy of a letter f...

Buttonshutton

•3 years ago

61 Replies

Vitamin B12 tummy trouble

I’ve been prescribed Vitamin B12 as I am low in this and folate. I am adjusting my diet . Does anyone experiencing mild tummy trouble whilst taking this ? I am...

I’ve been prescribed Vitamin B12 as I am low in this and folate. I am adjusting ...

Elizabethjane7861

•3 years ago

3 Replies

Hip Replacement and PMR

Dear friends, I've picked up from your posts that quite a few of you have had replacement surgery while on Pred and would like some advice. I have severe...

Dear friends, I've picked up from your posts that quite a few of you have had r...

oscarandchloe

•3 years ago

29 Replies

Levels of acceptable pain

After 2 years of taking prednisone with 2 different consultants and yoyoing around my latest consultant is trying to get me down to lower levels. I am...

After 2 years of taking prednisone with 2 different consultants and yoyoing arou...

Pawscat11

•3 years ago

2 Replies

Is this a flare or asteroid withdrawal symptoms?

HI All. I have been tapering since mid-July and last Saturday (2nd October) tapered down from 17.5 mgs to 15 mgs (starting dose was 30 mg). Sunday commenced...

HI All. I have been tapering since mid-July and last Saturday (2nd October) tap...

LBM1953

•3 years ago

4 Replies

On/Off Nausea

Has anyone else suffered from persistent queasiness? I emailed my rheumie, very nice, who I haven't had to see for 5 years. I asked if my nausea since 27th...

Has anyone else suffered from persistent queasiness? I emailed my rheumie, ver...

diana1998

•3 years ago

13 Replies

Can not stand prednisone anymore. Can I get off the last 5 mg. adap?

On since 2017. I am at 5 mg and really would like to be off as soon as possible. Also on Actrmra. I am not happy with the advice of my endocrinologist. Can...

On since 2017. I am at 5 mg and really would like to be off as soon as possible...

Aleish

•3 years ago

8 Replies

Carry on actemra injection while traveling in flight out of USA

My wife is under weekly course of actemra injection for GCA , she will be travelling to India next month for 2 months . Can she carry 8 injection with her in...

My wife is under weekly course of actemra injection for GCA , she will be travel...

Rajuguide

•3 years ago

4 Replies

Am I there yet?

To recap, I'm 81 y/o male first diagnosed October 2018. Apart from a couple of bumps along the way (minor attack of shingles and a flare last year) I've been...

To recap, I'm 81 y/o male first diagnosed October 2018. Apart from a couple of ...

squashie

•3 years ago

14 Replies

Tablets.

Just got on question,does anyone know,if you,can take panadol soluble tablets.thanks.

Just got on question,does anyone know,if you,can take panadol soluble tablets.th...

Flosy

•3 years ago

2 Replies

3rd Primary Vaccine

I know there have been several posts on this subject, but I feel as though I have won a small battle! Following posts from Mrs Nails and others, I knew that my...

I know there have been several posts on this subject, but I feel as though I hav...

Grantoday

•3 years ago

15 Replies

After much debate trying MTX

After a telephone app today with my Rheumy finally decided to give Methotrexate a go , I just yo yo on prednisolone from 5 to 2.5 Mg and back up again have...

After a telephone app today with my Rheumy finally decided to give Methotrexate ...

Gaz227

•3 years ago

72 Replies

Heart irregularity

Had PMR nearly 2 yrs flare up in July possible GCA. Neck pain and vision loss (only few seconds). Upped pred and now lowering gradually again. But now have...

Had PMR nearly 2 yrs flare up in July possible GCA. Neck pain and vision loss (...

Hannah183

•3 years ago

19 Replies

Polymyalgia victim!

I have just been diagnosed with polymyalgia which arrived without warning and very suddenly and am now taking prednisolone. Any advice would be gratefully...

I have just been diagnosed with polymyalgia which arrived without warning and ve...

Jayveedee

•3 years ago

75 Replies

Have really bad stomach pains/constipation since changing to the chewable tablets. Anyone else?

I have been taking Caltrate calcium + Vit D3 supplements for over a year with no problems at all. Sadly I can't get these in Cyprus anymore so I've bought an...

I have been taking Caltrate calcium + Vit D3 supplements for over a year with no...

Pr0jection

•3 years ago

6 Replies

Joining you now .. needing help

Simply introducing myself. Hello suffering friends. My home is in B.C. Canada. I was diagnosed with PMR 11 months ago .. up and down trip; tried reduction from...

Simply introducing myself. Hello suffering friends. My home is in B.C. Canada. I...

DrRon

•3 years ago

15 Replies

Stomach problems due to Prednisalone.

I currently take 8 mgs of gastric coated Prednisalone and fortnightly subcutaneous injections of Tocilizumab. I became concerned that I was having absorption...

I currently take 8 mgs of gastric coated Prednisalone and fortnightly subcutaneo...

SheffieldJane

•3 years ago

56 Replies

uncontrollable laughing on Hydroxychloroquine?

Hydroxychloroquine: leaflet @ side effects.... Common (may affect up to 1 in 10 people) Changes in mood with uncontrollable laughing or crying!!! They are...

Hydroxychloroquine: leaflet @ side effects.... Common (may affect up to 1 in 10...

ignatz

•3 years ago

4 Replies

COVID-19 DRUG TRIAL

Check out this drug trial for a COVID-19 preventative nasal spray. camcovidtrials.net/trials/v... If that link doesn't work try this :...

Check out this drug trial for a COVID-19 preventative nasal spray. camcovidtrial...

Hoofprints

•3 years ago

2 Replies

Recovered from covid, need to increase prednisone. How much?

My life is in a spin right now. I was hospitalized earlier in September because i passed out 3x while sick with covid. Doctors found no real cause other than...

My life is in a spin right now. I was hospitalized earlier in September because...

Paperroses

•3 years ago

18 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for October 2021

BACH FLOWER REMEDIES

Knee and hip replacement hampered by Covid lockdown then PMR was

Problems with hospital

When is a 'Cancelled' Rheumatology Appointment not a cancelled appointment?

“Shriveling” and losing fat and muscle

Duration of PMR and Prednisone’s role

PMR pain vs DDD pain

Advice needed on fine tuning prednisolone

Pmr, Rheumy,Pred and GP's

PREDNISOLONE - THE WHATS, THE WHYS & ???????

rheumyLetter mentioning the COVID vaccine

Vitamin B12 tummy trouble

Hip Replacement and PMR

Levels of acceptable pain

Is this a flare or asteroid withdrawal symptoms?

On/Off Nausea

Can not stand prednisone anymore. Can I get off the last 5 mg. adap?

Carry on actemra injection while traveling in flight out of USA

Am I there yet?

Tablets.

3rd Primary Vaccine

After much debate trying MTX

Heart irregularity

Polymyalgia victim!

Have really bad stomach pains/constipation since changing to the chewable tablets. Anyone else?

Joining you now .. needing help

Stomach problems due to Prednisalone.

uncontrollable laughing on Hydroxychloroquine?

COVID-19 DRUG TRIAL

Recovered from covid, need to increase prednisone. How much?

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