Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,643 members • 38,794 posts

All posts for October 2021

Tapering.

Tapering prednisone and doing pretty well. I know about lowering in small increments but am stuck with what the doctor says...it's worked okay so far. Today I...

Tapering prednisone and doing pretty well. I know about lowering in small increm...

mgrogers99

•3 years ago

47 Replies

CBD

I did try it the strongest one without highs, it helped seemingly for a while with sleep, nothing else. Good luck it may work for you, I was just 120 pounds...

I did try it the strongest one without highs, it helped seemingly for a while wi...

Blomps

•3 years ago

3 Replies

Efficiency of Actemra injection in GCA

Are actemra injection weekly with prednisone have better control of GCA, compare with prednisone alone in treatment of GCA ?

Are actemra injection weekly with prednisone have better control of GCA, compar...

Rajuguide

•3 years ago

4 Replies

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What would you do?

I have had what I think is PMR for many years. I think it sort of went away but now it is back. I'm taking 15mg a day and it is not enough. The dr refuses...

I have had what I think is PMR for many years. I think it sort of went away but...

Trevgrrl

•3 years ago

21 Replies

GCA something big has happened to me. Big as in being hit by a truck- not winning a million dollars. Spent the day in ER yesterday.

Four weeks ago I taper to 6,5 prednisone. Struggled with soreness and fatigue. 2 weeks ago I got the civud booster. Sick as a mutt and functioning at a low...

Four weeks ago I taper to 6,5 prednisone. Struggled with soreness and fatigue. ...

Blurry62

•3 years ago

38 Replies

Flu vaccine - 2021 update

If you’re still dithering about getting the flu jab, the following links may help you make the decision - from British Heart Foundation -...

If you’re still dithering about getting the flu jab, the following links may hel...

DorsetLady

PMRGCAuk volunteer•3 years ago

25 Replies

Booster vaccines

I’ve been reading posts for some years but as yet haven’t posted myself. I’ve just had a text from surgery to ask me to have my 3rd Covid jab at same time as...

I’ve been reading posts for some years but as yet haven’t posted myself. I’ve ju...

Jilldrog

•3 years ago

9 Replies

Methotrexate Hair Loss

This question is aimed at those of you on Methotrexate, I’d really appreciate your input. This is not merely a vanity question, I am starting on it today and...

This question is aimed at those of you on Methotrexate, I’d really appreciate yo...

Abbey17

•3 years ago

52 Replies

Quick question re pneumonia vaccination

I had a battle last year to get the pneumonia vaccination, even though my consultant recommended it, and I have yearly CT scans of my lungs due to a nodule and...

I had a battle last year to get the pneumonia vaccination, even though my consul...

Sophiestree

•3 years ago

14 Replies

Was this an adrenal problem

Last week I went to our orthopedic hospital for an infusion to help my osteoporosis. As the bottle emptied into my arm I felt fine if a little bored as it...

Last week I went to our orthopedic hospital for an infusion to help my osteopor...

Cobnut

•3 years ago

4 Replies

Welcome to our new members - Sept/Oct 2021

Hello and welcome to all our new forum members. We hope you've had a chance to look around and find answers to your questions. Here's a quick guide to get you...

Hello and welcome to all our new forum members. We hope you've had a chance to l...

Fran_Benson

Partner•3 years ago

4 Replies

Walking?

Good Morning! I've just been reading Uglow's post "Crying", and really find it difficult to understand various people's replies about "walking therapy". I...

Good Morning! I've just been reading Uglow's post "Crying", and really find it ...

ChrisinNam

•3 years ago

29 Replies

Guess what I got from my husband?

Yes, that’s right. Covid 19. I thought I had a cold but it turned into Cv19. I’m so happy I’ve been doubly vaccinated. I have a cough, can’t taste, did...

Yes, that’s right. Covid 19. I thought I had a cold but it turned into Cv19. ...

whitefishbay

•3 years ago

14 Replies

alternative treatment to steroids

only days after diagnosis, i do NOT want to take steroids today i start acupuncture and then a full body scan ( not in a machine !)has anyone been down this...

only days after diagnosis, i do NOT want to take steroids today i start acupunct...

manxfoodie

•3 years ago

15 Replies

Does anyone use CBD oil?

Just wondering if anyone has experience of using CBD oil (the one without the highs!) alongside Prednisolone? I’ve been doing some research and it seems it...

Just wondering if anyone has experience of using CBD oil (the one without the hi...

PMRZ

•3 years ago

4 Replies

PMR or not?

When I was initially diagnosed with PMR in August 2020 it was mainly in my arms. Trying to push myself up from my floor cushion or trying to turn over in bed...

When I was initially diagnosed with PMR in August 2020 it was mainly in my arms....

Lauterbach

•3 years ago

12 Replies

PMR after PFIZER SHOT

Hello from Ontario, Canada. After suffering with sudden "pain" for a number of weeks, my GB (no in person appointments) told me to go to Emergency Dept. at the...

Hello from Ontario, Canada. After suffering with sudden "pain" for a number of w...

SeekingPMRinfo

•3 years ago

11 Replies

Crying

I honestly don’t think I’m depressed and my family and friends don’t. But I seem to get an overview tearful bout every now and again. I feel like everyone else...

I honestly don’t think I’m depressed and my family and friends don’t. But I seem...

Uglow

•3 years ago

138 Replies

DSNS Taper

Hi all, me again. Have been on 4mgs pred for year now, resisted tapering further as moving house but now tried 3.5 on dsns method. Neck and shoulders scream at...

Hi all, me again. Have been on 4mgs pred for year now, resisted tapering further...

Poshdog

•3 years ago

8 Replies

Face fuzz

Morning you lovely people. Any tips on dealing with fluffy face fuzz. Bought a ladies face razor but that just made my face sore and I don't want stubble!

Morning you lovely people. Any tips on dealing with fluffy face fuzz. Bought a l...

Crommie

•3 years ago

33 Replies

Fatigue, lethargy and brain fog - is there a positive side?

Don't get me wrong I hate it all and I'm looking forward to the day when I am free of these demons. I don't wish it on anyone. However, I am wondering whether...

Don't get me wrong I hate it all and I'm looking forward to the day when I am fr...

ChinaWuntoo

•3 years ago

27 Replies

MRI Scan

Hi all. Off tomorrow for a much waiting scan on head. I have had no sign of pmr in 9 months now except for dreadfull head and eye problem. Optitian said...

Hi all. Off tomorrow for a much waiting scan on head. I have had no sign of ...

Cosmos22Marigold

•3 years ago

14 Replies

update

My diverticulitis turned into a bowel perforation. I managed to avoid surgery (for now at least), but did manage to develop brachycardia (extremely low heart...

My diverticulitis turned into a bowel perforation. I managed to avoid surgery (...

winfong

•3 years ago

12 Replies

Struggling

I am struggling tonight. I have completed an aqua aerobics class today. I told the instructor I had PMR. I don’t think she really knew what it was. I have...

I am struggling tonight. I have completed an aqua aerobics class today. I told ...

Elizabethjane7861

•3 years ago

36 Replies

Test post for new website

Test post to see if my tech-addled brain got me to the new website

Mstiles

•3 years ago

11 Replies

Mornings

New here. Recently diagnosed, does the morning stiffness subside while being treated with prednisone? Or what can I expect moving forward?

New here. Recently diagnosed, does the morning stiffness subside while being tre...

Snowshoe1

•3 years ago

12 Replies

Advice please

I was diagnosed with PMR five and a half years ago and have been following a very slow reduction in prednisolone , at the start of 2021, I was on 2 and a half...

I was diagnosed with PMR five and a half years ago and have been following a ver...

dolphin39

•3 years ago

15 Replies

Query on hair growth and unusual cessation of perspiration

Another question - so grateful to all of you here as I feel I can ask any question and not be judged ! 😅 So while on steroids and weaning - I stopped growing...

Another question - so grateful to all of you here as I feel I can ask any questi...

Ballywilliam

•3 years ago

17 Replies

Third Primary Vaccine

Had my third vaccine last night (Phizer this time) and apart from a slightly achy arm I am feeling fine.🤞🤞

Had my third vaccine last night (Phizer this time) and apart from a slightly ac...

Hollybee21

•3 years ago

14 Replies

Scared of test results

Spoke to my GP yesterday about something else. In conversation she said my results from the rheumatologist were ok. I said wasn't sure what being tested for...

Spoke to my GP yesterday about something else. In conversation she said my resul...

Buttonshutton

•3 years ago

31 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for October 2021

Tapering.

CBD

Efficiency of Actemra injection in GCA

What would you do?

GCA something big has happened to me. Big as in being hit by a truck- not winning a million dollars. Spent the day in ER yesterday.

Flu vaccine - 2021 update

Booster vaccines

Methotrexate Hair Loss

Quick question re pneumonia vaccination

Was this an adrenal problem

Welcome to our new members - Sept/Oct 2021

Walking?

Guess what I got from my husband?

alternative treatment to steroids

Does anyone use CBD oil?

PMR or not?

PMR after PFIZER SHOT

Crying

DSNS Taper

Face fuzz

Fatigue, lethargy and brain fog - is there a positive side?

MRI Scan

update

Struggling

Test post for new website

Mornings

Advice please

Query on hair growth and unusual cessation of perspiration

Third Primary Vaccine

Scared of test results

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