To recap, I'm 81 y/o male first diagnosed October 2018. Apart from a couple of bumps along the way (minor attack of shingles and a flare last year) I've been relatively symptom free since starting pred at 15mg. Only health issues have been soft tissue injuries from my squash addiction.
After my flare in February last year (trying to go to 1.5 from 2), it has been a very slow and steady reduction. I stuck at 5 for a month, and have been going down in .5 increments when the time seemed right. Two weeks back (and 3 years to the day I started pred) I tried zero, and so far so good. I haven't brought the champagne out yet, but I'm getting it ready to go on ice!
As we remain in lockdown (Melbourne has just received the "longest time in lockdown" award) it is still a bit difficult to judge how close to normal I am, but feeling fine and able to exercise freely (although no squash yet).
I've always worked on the basis that the light at the end of the tunnel could still be the train coming the other way, so still not counting my chickens.
Squashie
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squashie
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It sounds suspiciously like you’ve cracked this thing, I know ( shshsh). You sound pretty mighty to me, what with the squash and everything. Looking forward to toasting you squashed.
And what I omitted to say is that, without the support and information from this site, I'm sure my journey would have been far more fraught. Even though I have a very good GP who is PMR knowledgeable and easily accessible , I'd not have had the confidence nor the detailed understanding that I've gained from here. Thank you.
Let’s hope so…..as for that light, so long as it’s because you are walking towards it, and it’s not rushing towards you as it gets bigger, you’ll be okay!
Another sport mad Aussie! My two grandsons in Melbourne are similarly afflicted; one is mad on soccer, the other tennis and he has just taken up boxing (at 14)! Well done Squashie!!
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