Am I there yet?: To recap, I'm 81 y/o male first... - PMRGCAuk

PMRGCAuk

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Am I there yet?

squashie profile image
14 Replies

To recap, I'm 81 y/o male first diagnosed October 2018. Apart from a couple of bumps along the way (minor attack of shingles and a flare last year) I've been relatively symptom free since starting pred at 15mg. Only health issues have been soft tissue injuries from my squash addiction.

After my flare in February last year (trying to go to 1.5 from 2), it has been a very slow and steady reduction. I stuck at 5 for a month, and have been going down in .5 increments when the time seemed right. Two weeks back (and 3 years to the day I started pred) I tried zero, and so far so good. I haven't brought the champagne out yet, but I'm getting it ready to go on ice!

As we remain in lockdown (Melbourne has just received the "longest time in lockdown" award) it is still a bit difficult to judge how close to normal I am, but feeling fine and able to exercise freely (although no squash yet).

I've always worked on the basis that the light at the end of the tunnel could still be the train coming the other way, so still not counting my chickens.

Squashie

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squashie profile image
squashie
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14 Replies
SheffieldJane profile image
SheffieldJane

It sounds suspiciously like you’ve cracked this thing, I know ( shshsh). You sound pretty mighty to me, what with the squash and everything. Looking forward to toasting you squashed.

squashie profile image
squashie in reply to SheffieldJane

Must be my Yorkshire heritage SJ - my maternal grandfather emigrated from Kildwick in the late 1900's.

squashie profile image
squashie

And what I omitted to say is that, without the support and information from this site, I'm sure my journey would have been far more fraught. Even though I have a very good GP who is PMR knowledgeable and easily accessible , I'd not have had the confidence nor the detailed understanding that I've gained from here. Thank you.

Bcol profile image
Bcol

Great news Squahie, always good to hear from someone who has ( fingers crossed) made it to the end.

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer

Let’s hope so…..as for that light, so long as it’s because you are walking towards it, and it’s not rushing towards you as it gets bigger, you’ll be okay!

Kendrew profile image
Kendrew

That's great to hear and encouraging for those of us still working towards the same outcome.

jinasc profile image
jinasc

Just remember don't go 🥥🌰🥜 with the squash, no more than 10 mins every other day...........or find another less exhausting exercise 🤔? 🏊 🏊

York54 profile image
York54

Sounding really positive Squashie, great stuff 👍👍

SnazzyD profile image
SnazzyD

Surely no harm in getting that champagne in the fridge though?

Rache profile image
Rache

Good to hear a positive story! Wishing you all the best ☘️

whitefishbay profile image
whitefishbay

fingers crossed.

PMRpro profile image
PMRproAmbassador

A good start - and long may it last!!

Dontwannabesick profile image
Dontwannabesick

Here's to you 🧈🍾🍾🍾

AyJayBass profile image
AyJayBass

Another sport mad Aussie! My two grandsons in Melbourne are similarly afflicted; one is mad on soccer, the other tennis and he has just taken up boxing (at 14)! Well done Squashie!!

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