Every morning I have chat with myself. I say what is PMR going to fling at me today. It maybe nothing it maybe a new pain but then I say you can deal with it. Take what medication you can to help then just do the day. It might be most rest it might be I can go for a walk but I’m grateful Iv woken up to have the chance to even deal with the day. I keep telling myself I’m going to get out the other side of this but just one day at a time. Who’s with me. X
Positive talking to myself : Every morning I have... - PMRGCAuk
Positive talking to myself
Something we can all apply to most things in our life. Great advice xxxxxxx
All of us who had or have to come to terms with dealing with something we would not wish on our worst enemy.
Hi Uglow 😊
Funnily enough I tend to start the day by thinking of other things, ie chores I need to get done, people to contact, news to follow etc. I do what I can, for as long as I can, trying to ignore the meds, the tiredness, sometimes pain too.
For me, it’s at the end of the day that I think of PMR and various other conditions, worry about how I’ll cope and what tomorrow will bring…..no wonder I don’t sleep well!
Maybe you have it a better way round than me, but I think we all, in our own ways, take each day as it comes, and make the most of it when we can. What else can we do?
Wishing you many more good days than bad! All the best 😊
Nextoneplease x
I agree! I just get on with life. Once I’ve checked the posts to see if I can help a little or anything interesting, I don’t think of PMR at all. I just get on with my things to do, or go out walking...if I can only do a short walk I will soon find that out! If I’m too tired at home doing what I’m doing I can stop. I seem to be different to all others in the forum!!
I am definitely with you!
I am and thank you , nice to see the written word !🌷
I'm where I am with PMR/GCA because circumstances drove my body to its limit. It wasn't that I didn't listen to my tension and anxiety - I just had to get through a bad patch. This illness came like a bolt from the blue, the high dose of Pred that originally controlled my GCA (diagnosed immediately by an alert GP) was horrible but taught me to manage side effects, to rest and accept that I must now listen to my body. PMR is I think part of GCA and that restricted me further. To see your life dwindling, your face and hair aging is hard to accept but it is so. BUT a good hair cut, a lockdown garden that is beautiful with a new pond and overflowing veggies, a sneaked hug with the littlest grand-child on her 5th birthday, Chloe the cat snuggling up when I have the essential afternoon sleep - all these I do have. I am lucky.
Best way to deal with chronic illness is to live in the moment and count your blessings. Accept what state your body is in and plan accordingly. That's how I have coped over the last six years.