Sed rate has sky rocketed to an all out high

[Amkoffee]

So my last sed rate was normal 3 months ago. And this time I asked my rheumatologist to check my sed rate and my CRP. The only results I've got back so far is my sed rate and it's 89! Normally it shouldn't be higher then 39. This is the highness it's ever been even at the beginning of my PMR diagnosis. But here's the thing... I had to stop my pred about a year ago. Then this April I was diagnosed with addrenial insufficiency so I was told to start taking hydrocortisone and that I would be on it for my entire life. I suffer from several painful conditions so I don't always recognize my PMR pain. I don't know if this is an indication that I still have PMR or I have RA or something else. My dr is also checking for RA although I was negative 3 years ago when it was checked. I know that I need to wait for the results of the other tests but this result really surprised me.

[yogabonnie]

so sorry you are having pain and finding a high SED rate!! hope it is all better soon. keep us posted!!

[piglette]

Snap my sed rate is 90. My GP says Satisfactory on my notes.

[Amkoffee in reply to piglette]

This is not a competion to see whose sed rate is highest. I'm sorry that your having similar problems.

[piglette in reply to Amkoffee]

Please don’t trivialise my post. My SED rate is of great worry to me so I am always interested in other people with the same problem.

[Amkoffee in reply to piglette]

I was not trying to trivialize your comment which is why I wrote the second sentence. This is something we both worry about. But I took your comment as if you were trying to one up me because your sed rate was higher then mine. I think this whole thing might have not happened if we were talking face to face instead of readinf/writing words.

[piglette in reply to Amkoffee]

I always thought Snap meant we were the same.

[Here1am in reply to Amkoffee]

Isn’t it awful to be so sensitive because we are constantly trying to figure out what these numbers mean and they indicate different things with all our different conditions. For myself it’s having all normal numbers and no definitive understanding of why I’m in so much pain! Argh!

[PMRpro Ambassador]

It really could be ANYTHING - the sed rate is very non-specific.

[Amkoffee in reply to PMRpro]

That's what I thought. Is the CPR also non-specific?

[PMRpro Ambassador in reply to Amkoffee]

Yes - in that a range of things raise it including lung and cardiac issues. The only time I have everhad a raised CRP was on a day where I had a bad episode of atrial fibrillation. The following week, with the same PMR symptoms, it was back to normal range