Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,432 members • 38,319 posts

All posts for June 2021

Problems when walking

Hi everyone, I’ve just joined this group. I’ve had PMR since last August & am currently tapering my prednisolone to 7.5mg from 15mg. I am not in any real...

Hi everyone, I’ve just joined this group. I’ve had PMR since last August & am c...

Hidden

•3 years ago

55 Replies

how long does it take stomach ulcers to heal

how long does it take for ulcers to heal

pollyg263

•3 years ago

5 Replies

Major flare

I was so happy to reduce to 5mg and was fine for weeks, felt great. Then a major flare, wiped me out, succumbed to depression. A complete mess. GP put me up to...

I was so happy to reduce to 5mg and was fine for weeks, felt great. Then a major...

Abbey17

•3 years ago

23 Replies

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Doxycycline for lymes

I have recently been diagnosed with lymes disease having developed a rash and gp prescribed doxycycline for three weeks, 100 mg twice daily. After one week on...

I have recently been diagnosed with lymes disease having developed a rash and gp...

Bobbikins

•3 years ago

8 Replies

Knee saga might have started with worn out shoes

As some of you know I've had a year of knee issues, first twisting one knee and then slamming the other on the floor. Today I *finally* got new sneakers. I'd...

As some of you know I've had a year of knee issues, first twisting one knee and ...

HeronNS

•3 years ago

16 Replies

Reducing to 12mg very tired

Hi all, I am on week 2 of reducing to 12mg but feel very tired and right leg achy. Tried to get down from 15 to 12.5mg before but struggled so have been...

Hi all, I am on week 2 of reducing to 12mg but feel very tired and right leg ac...

Rosshigh

•3 years ago

89 Replies

Why do I have crazy symptoms at night?

Hello everyone, I’m currently taking 10mg of enteric coated Pred which I take before bed 10:30pm. Around this time I do also get a ‘niggling’ of symptoms....

Hello everyone, I’m currently taking 10mg of enteric coated Pred which I take ...

Pangolin43

•3 years ago

20 Replies

Sweating

Goodness! Woke up about midnight and it was like I'd had a bed bath, literally! The sheets, duvet and pillow were saturated, yuck! I wouldn't mind but I have...

Goodness! Woke up about midnight and it was like I'd had a bed bath, literally! ...

Jooster

•3 years ago

23 Replies

Newbie

Hi everybody, I'm a newly PMR diagnosed 55 year old and struggling a little to get to grips with the diagnosis. I'm glad I've found this forum - reading the...

Hi everybody, I'm a newly PMR diagnosed 55 year old and struggling a little to ...

chess430

•3 years ago

41 Replies

Steroids and COVID vaccine

Has anyone have impact that being on steroids for PMR/GCA COVID vaccine is not effective. We do not have antibodies from vaccine and should be tested.

Has anyone have impact that being on steroids for PMR/GCA COVID vaccine is not e...

Cycles4fun

•3 years ago

13 Replies

Hot flushes

Hi all does anyone have a sort of hot flush type of sweating after doing something, which last few minutes I've notice this happening only the last few days...

Hi all does anyone have a sort of hot flush type of sweating after doing somethi...

Hidden

•3 years ago

29 Replies

Have I made the right decision?

Hi guys. After giving in to doctor and Rheumatologist I came off pred in February 1918. Have been through the mill with cataract removal and still am...

Hi guys. After giving in to doctor and Rheumatologist I came off pred in Februar...

marigolds

•3 years ago

31 Replies

Advice regarding use of herbal licorice to help with taper

I recently had a consult with a Naturopath for general well-being health recommendations. I also spoke of my prednisone use and my difficulties with withdrawal...

I recently had a consult with a Naturopath for general well-being health recomme...

GratefulBailey

•3 years ago

24 Replies

Slow Pred taper for PMR and GCA

Recently on top of everything else I was put on an array of heart meds for Cardiomyopathy. Plavix, Bisopropolol and temisartan for BP. I am also on Actemra . I...

Recently on top of everything else I was put on an array of heart meds for Cardi...

Darcy2000

•3 years ago

8 Replies

Pred and insect bites

I live in the Mediterranean and there are mosquitoes and other biting insects. I have never suffered with bites and never taken precautions. Whereas my...

I live in the Mediterranean and there are mosquitoes and other biting insects. ...

Kalacik

•3 years ago

19 Replies

Sunscreen issues

Hi all I'm having real issues with sunscreen this year with a bright red face with small raised red bumps. It's quite uncomfortable. I've always had to be...

Hi all I'm having real issues with sunscreen this year with a bright red face wi...

Coffeebeans

•3 years ago

30 Replies

Is it safe to have Shingles jab?

Hi everyone, have now been off Pred for six months after having Pmr for nearly seven years. I have been offered a shingles jab, but am reluctant to have it in...

Hi everyone, have now been off Pred for six months after having Pmr for nearly s...

Attic

•3 years ago

4 Replies

Steroid or PMR or something else ?

I reduced to 9mg of pred just over a week ago. When I get up in morning I feel fine but by the afternoon I have a really muzzy, swimmy head which gets worse...

I reduced to 9mg of pred just over a week ago. When I get up in morning I feel f...

Decsgran

•3 years ago

7 Replies

Tapering pred and 'safe' dosage

I was diagnosed with GCA in March 2019 confirmed by biopsy. I was prescribed 40mg Prednisolone daily with no advice on how long to maintain this dosage and no...

I was diagnosed with GCA in March 2019 confirmed by biopsy. I was prescribed 40m...

Hidden

•3 years ago

26 Replies

Steroids upsetting stomach help!

Hi , my mum is really struggling and I’m looking for suggestions. She has GCA and is on prednisone for it. It’s working well but is giving her severe sickness...

Hi , my mum is really struggling and I’m looking for suggestions. She has GCA a...

Sandrebecca

•3 years ago

22 Replies

Diet - my story so far!

When diagnosed with PMR...within 2 months I was diagnosed prediabetic. I was already overweight from steroids for lung issues a few years ago, and hadn't been...

When diagnosed with PMR...within 2 months I was diagnosed prediabetic. I was alr...

Pixix

•3 years ago

25 Replies

Comparison of systemic corticosteroids

This morning I accidently opened this site I'd bookmarked some time ago. As occasionally there are questions about the action of different medications I...

This morning I accidently opened this site I'd bookmarked some time ago. As occ...

HeronNS

•3 years ago

11 Replies

weaker than ever

Just hit year 2. Tapered down nicely to 5.5mg. I was walking 3 miles a day for months .I tried walking some hills for several days and I think that did me...

Just hit year 2. Tapered down nicely to 5.5mg. I was walking 3 miles a day for ...

Paperroses

•3 years ago

3 Replies

Thank you to our volunteers!

It's national volunteers week and we'd like to say a huge thank you to all our volunteers. Here on the PMRGCAuk forum we have PMRPro, DorsetLady and Mrs Nails...

It's national volunteers week and we'd like to say a huge thank you to all our v...

Fran_Benson

Partner•3 years ago

33 Replies

Site Change??

Asking the Experts please.... Has this site changed? I haven't seen any posts regarding daily living with interesting photos from Crazy Fitness etc. It now...

Asking the Experts please.... Has this site changed? I haven't seen any posts r...

diana1998

•3 years ago

9 Replies

Pmr

I’m on 3 mg prednisone for pmr barely working ,dr added hydoxychloroquine this week has anyone had luck with this drug and have you been able to reduce or...

I’m on 3 mg prednisone for pmr barely working ,dr added hydoxychloroquine this w...

Boater1302

•3 years ago

8 Replies

Recently diagnosed with GCA. What the hell !

57 yo male diagnosed with biopsy for GCA May 15. Was on 120 pred for a few days in hospital. Now on 60 a day. Starting the Actemra injection 1x per week at...

57 yo male diagnosed with biopsy for GCA May 15. Was on 120 pred for a few day...

GlennStephen

•3 years ago

18 Replies

Abdominal pain

Hi everyone, I had a horrible experience yesterday and wondered whether it could have had anything to do with pred (now on 11mg having started on 15 on 10th...

Hi everyone, I had a horrible experience yesterday and wondered whether it could...

LeighDelaine

•3 years ago

26 Replies

PMR pred anxiety

has anyone else suffered severe anxiety and mental health problems from pred? No previous history

has anyone else suffered severe anxiety and mental health problems from pred? No...

Lellylam

•3 years ago

11 Replies

Few quick questions if anyone would be kind enough to reply

Hi, Doc has prescribed Adcal-D3 tablets. twice daily. says on the packet each tablet contains 1500mg calcium carbonate (=600mg calcium) and 400 I.U....

Hi, Doc has prescribed Adcal-D3 tablets. twice daily. says on the packet each...

Hidden

•3 years ago

3 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for June 2021

Problems when walking

how long does it take stomach ulcers to heal

Major flare

Doxycycline for lymes

Knee saga might have started with worn out shoes

Reducing to 12mg very tired

Why do I have crazy symptoms at night?

Sweating

Newbie

Steroids and COVID vaccine

Hot flushes

Have I made the right decision?

Advice regarding use of herbal licorice to help with taper

Slow Pred taper for PMR and GCA

Pred and insect bites

Sunscreen issues

Is it safe to have Shingles jab?

Steroid or PMR or something else ?

Tapering pred and 'safe' dosage

Steroids upsetting stomach help!

Diet - my story so far!

Comparison of systemic corticosteroids

weaker than ever

Thank you to our volunteers!

Site Change??

Pmr

Recently diagnosed with GCA. What the hell !

Abdominal pain

PMR pred anxiety

Few quick questions if anyone would be kind enough to reply

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