Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,301 members • 38,032 posts

All posts for February 2021

Taking Pred late evening/early morning

I have been reading the posts about taking Prednisolone late evening/early morning & wondered about the leaflet recommendation of "with or after food". What or...

I have been reading the posts about taking Prednisolone late evening/early morni...

Springer2210

•3 years ago

47 Replies

zyflamend anyone?

Hello, I am wondering if any of you have tried zyflamend to help with reducing inflammation and pain due to PMR? I am reducing down and am now at 2 mg....

Hello, I am wondering if any of you have tried zyflamend to help with reducing i...

SandyBoots

•3 years ago

16 Replies

Pain today

Hi all, hope yr all well, not so tired today headache is a dull annoying pain unlike last 2 days, hopefully it's going, but aches and pains is really bad, just...

Hi all, hope yr all well, not so tired today headache is a dull annoying pain un...

Hidden

•3 years ago

6 Replies

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Re fasting

Hi I'm sorry I dont know if you can reply to everyone who replied to my in one go so I thought this was the easiest way to do it thanks for all the great...

Hi I'm sorry I dont know if you can reply to everyone who replied to my in one ...

Rrnijmv

•3 years ago

4 Replies

Dehydration

Hi do any of you suffer from dehydration? I do very badly and even though I'm drinking lots I am still getting the headaches and nausea...I know its...

Hi do any of you suffer from dehydration? I do very badly and even though I'm dr...

pammy_hyland

•3 years ago

24 Replies

Frozen shoulder

Hi, wonder if anyone can help, I had my COVID jab 4weeks ago, everything very efficiently done, but ever since I have had a frozen shoulder, well I think it’s...

Hi, wonder if anyone can help, I had my COVID jab 4weeks ago, everything very ef...

Dancingrosie13

•3 years ago

14 Replies

Can I increase pred for a couple of days

I was diagnosed with GCA in 2018. I was off prednisolone for three weeks but had to restart because PMR returned. Started on 5 mgs but had jaw claudication and...

I was diagnosed with GCA in 2018. I was off prednisolone for three weeks but had...

Reddev

•3 years ago

11 Replies

Weird!

Was diagnosed with PMR seven years ago and it's never gone away. I'm convinced it was triggered by a 'flu jab few weeks before and have been on varying doses...

Was diagnosed with PMR seven years ago and it's never gone away. I'm convinced i...

samitzi

•3 years ago

32 Replies

Who is taking AA

Would like to here your coments about taking AA.

Harrywogan

•3 years ago

31 Replies

Tocilizumab registry and Biobank

Dear all, Not sure if this has already been highlighted- the fact that I had to tell my Rheumatologist about it suggests not many people will have picked it...

Dear all, Not sure if this has already been highlighted- the fact that I had to ...

Suzita76

•3 years ago

8 Replies

GCA/RA and Apixaben

Hi..new here but just off the phone with rheumy.Within a week my symptoms have blown up.swilling to hands and feet and bumps on fingers.pain in should (told it...

Hi..new here but just off the phone with rheumy.Within a week my symptoms have b...

LaPainting

•3 years ago

12 Replies

PMR RESULTS HELP!

Just received my PMR results. CRP .3 ESR 16. Appear both midrange. Why am I so miserable? Tests forwarded to me and my OB/GYN (whom I trust) will be...

Just received my PMR results. CRP .3 ESR 16. Appear both midrange. Why am I ...

pomeranion

•3 years ago

8 Replies

About fasting

Hi again I have been going back on some old post and looked at YouTube about Dr Jason Fong. Can you fast when on high dose pred I'm on 60mg . Does anyone know...

Hi again I have been going back on some old post and looked at YouTube about Dr ...

Rrnijmv

•3 years ago

15 Replies

Pain relievers for osteoarthritis

Hello all, What do you use to relieve osteoarthritis pain. I’m having a lot of hip and sacral joint pain. Currently on 13 mg pred where I’ve been...

Hello all, What do you use to relieve osteoarthritis pain. I’m having a l...

Mstiles

•3 years ago

36 Replies

finished prednisolone 2 weeks back, still aching

Wish I'd found this forum earlier, thank you to all for helpful advice and comments. I was diagnosed in Jan 2019 with PMR and my GP def thought I had GCA...

Wish I'd found this forum earlier, thank you to all for helpful advice and comme...

Mercedes321

•3 years ago

10 Replies

Pain in legs

Can I have yet more advice please? I’m tapering down to 6mg on your DSNS plan- I’ve had PMR since October 2019. I am feeling a fair bit of pain and stiffness...

Can I have yet more advice please? I’m tapering down to 6mg on your DSNS plan- I...

Bubble56

•3 years ago

6 Replies

any side effects with taking steroids?

I believe my GP has finally diagnosed PMR. Im concerned that there will be side effects? Eswpecially as i take Ropinarole for Restless legs syndrome.

I believe my GP has finally diagnosed PMR. Im concerned that there will be side ...

briansnail

•3 years ago

12 Replies

Burning Feet & Legs/still flare problems

The last 3 nights I have had very disturbed sleep due to a burning feeling and heaviness in my feet and legs could this be due to Pred? Its a new symptom to...

The last 3 nights I have had very disturbed sleep due to a burning feeling and h...

HappyDiamonds

•3 years ago

18 Replies

Recovery from injury

Does Pred affect recovery from injury. About 5 months ago I picked up a mild Achilles strain towards the end of a gentle run. Despite trying testing,...

Does Pred affect recovery from injury. About 5 months ago I picked up a mild Ach...

Bncc

•3 years ago

10 Replies

GCA splitting pred dose

I’ve been on 50mg of pred for 9 days now, 45mg before that for a couple of weeks. Symptoms much improved but later in the day and into the night I’m getting...

I’ve been on 50mg of pred for 9 days now, 45mg before that for a couple of weeks...

Rosina1871

•3 years ago

10 Replies

PMG and virus

Hi I have PMG and am doing really well, have lowered prednisone to 9mg due to go to 8mg and managed to keep up with regular exercise. Two weeks ago my husband...

Hi I have PMG and am doing really well, have lowered prednisone to 9mg due to go...

Renesch

•3 years ago

2 Replies

Enteric 1mg pred

Does anyone in the UK get coated 1mg tablets? I know they are more expensive. But seems strange the 2.5mg are always the brown coated ones but 1mg and 5mg...

Does anyone in the UK get coated 1mg tablets? I know they are more expensive. ...

diana1998

•3 years ago

37 Replies

Covid vaccine oxford

Hi all hope yr all well? I had my1st dose of oxford covid vaccine at 10.30 this morning about 11 hrs ago and side effects so far is about 2 hrs after headache...

Hi all hope yr all well? I had my1st dose of oxford covid vaccine at 10.30 this ...

Hidden

•3 years ago

7 Replies

Why such a deterioration in my symptoms?

I posted on my second and last visit visit to rheumi about how very well I felt. The same night that all changed when my legs felt like concrete and I wanted...

I posted on my second and last visit visit to rheumi about how very well I felt....

merril

•3 years ago

11 Replies

Does anyone have a successful experience using hydroxychloroquine to lower prednisone and control PMR?

Thank you very much for the HealthUnlocked network helping PMR and GCA patients. This is the first time I am posting a question, having benefited from the...

Thank you very much for the HealthUnlocked network helping PMR and GCA patients...

rosemw

•3 years ago

45 Replies

reducing prednisone very slowly

There is a schedule for reducing prednisone dosage very slowly, for those of us at 5mg. I lost my copy and can't seem to find it on this blog. Help?? f

There is a schedule for reducing prednisone dosage very slowly, for those of us ...

Twolady

•3 years ago

1 Reply

Interesting & informative conversation with rheumatology specialist nurse

I've just been prescribed hydroxychloroquine after my rheumatologist had a meeting with haematology and lymphoma teams over concerns about my blood count and...

I've just been prescribed hydroxychloroquine after my rheumatologist had a meeti...

Topcar

•3 years ago

15 Replies

As Etta James so eloquently put it....."AT LAST"

Yaaay! 😃😃 Just wanted to say I've finally got my first covid vaccination on Saturday. 🥳🥳 Second one booked too. Such a relief. ❤❤

Yaaay! 😃😃 Just wanted to say I've finally got my first covid vaccination on Sa...

Kendrew

•3 years ago

17 Replies

Slow tapering Prednisolone below 10mg

Hello everyone, I was diagnosed with PMR and GCA in September 2019 and have been steadily tapering Prednisolone from an initial 40mg to now getting to 9mg....

Hello everyone, I was diagnosed with PMR and GCA in September 2019 and have been...

gardenning

•3 years ago

7 Replies

Nsaids and a fracture

I have been reading that nsaids are really bad when recovering from a fracture. I couldn't find any definitive as to whether or not prednisone interferes with...

I have been reading that nsaids are really bad when recovering from a fracture. ...

Linny3

•3 years ago

4 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for February 2021

Taking Pred late evening/early morning

zyflamend anyone?

Pain today

Re fasting

Dehydration

Frozen shoulder

Can I increase pred for a couple of days

Weird!

Who is taking AA

Tocilizumab registry and Biobank

GCA/RA and Apixaben

PMR RESULTS HELP!

About fasting

Pain relievers for osteoarthritis

finished prednisolone 2 weeks back, still aching

Pain in legs

any side effects with taking steroids?

Burning Feet & Legs/still flare problems

Recovery from injury

GCA splitting pred dose

PMG and virus

Enteric 1mg pred

Covid vaccine oxford

Why such a deterioration in my symptoms?

Does anyone have a successful experience using hydroxychloroquine to lower prednisone and control PMR?

reducing prednisone very slowly

Interesting & informative conversation with rheumatology specialist nurse

As Etta James so eloquently put it....."AT LAST"

Slow tapering Prednisolone below 10mg

Nsaids and a fracture

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