zyflamend anyone?: Hello, I am wondering if any of... - PMRGCAuk

PMRGCAuk

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zyflamend anyone?

SandyBoots profile image
16 Replies

Hello,

I am wondering if any of you have tried zyflamend to help with reducing inflammation and pain due to PMR? I am reducing down and am now at 2 mg. prednisone and have begun to feel mild discomfort in my hips and thighs in the last couple days. I received my second covid vaccine 2 weeks ago and felt fine up until now.

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SandyBoots profile image
SandyBoots
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16 Replies
piglette profile image
piglette

It sounds as if your current pred dose is not quite enough. It is worth increasing a bit and ensuring that the PMR is under control and then reduce again. I am very cynical about a lot of supplements. The majority of which make a lot of money for the suppliers and do very little for the person who is taking them.

SandyBoots profile image
SandyBoots in reply to piglette

Thank you. I agree that you have to be very careful about companies that promote their supplements.

Harrywogan profile image
Harrywogan

Sandy boots have never heard of this what is it,and can you get it over counter.x

HeronNS profile image
HeronNS in reply to Harrywogan

mskcc.org/cancer-care/integ...

HeronNS profile image
HeronNS in reply to HeronNS

Quotation from the website, "Inflammation: A few lab studies suggest that Zyflamend reduces inflammation, but there are no data from clinical trials."

piglette profile image
piglette in reply to HeronNS

I like the way they say “Studies in humans are quite limited.”!!!

PMRpro profile image
PMRproAmbassador

ncbi.nlm.nih.gov/pmc/articl...

pubmed.ncbi.nlm.nih.gov/313...

I found a couple of papers from respectable sources looking at its use - but mainly in mouse models. It does appear to be interesting in the context of pancreatic cancer (although anything even slightly beneficial there would be interesting) but I have to say I can't identify anything in there that would be relevant to what is known about the nflammatory processes in PMR.

I suppose if it isn't too expensive it is worth a try - but I wouldn't believe anything in the marketing bumpf!!!

Megams profile image
Megams

~I always have an open mind within the integrative medicine field however I would suggest tread very carefully - weight up all your options.I say this in light of my own recent addition of borage flowers to ice cubes + salad. A wonderful new superfood growing in my garden.

I was violently ill which I believe set my system cascading downwards big time.

Prior to PMR my body would have accepted this new food - good luck with your decision~

SandyBoots profile image
SandyBoots in reply to Megams

Thanks all for your replies. Yes, sometimes what is supposed to be a good thing can turn in to a bad thing. I have very thin skin (just like my Mother had). If I barely bump myself I get a spot where blood has pooled. It makes me look like I am on xarelto! I started taking fish oil supplements for their anti-inflammatory properties only to find out they thin your skin even more. I had to stop because I was noticing spontaneous bruising without even a bump!

Megams profile image
Megams in reply to SandyBoots

~I haven't heard fish oil thinning skin but may thin blood & yes you will bruise a bit more. I am never without a good quality (only) fish oil for my joints. I am often bumping myself, use Arnica asap after the knock ~

SandyBoots profile image
SandyBoots in reply to Megams

Oops. Meant to say fish oil thins the blood not the skin. I am going to try arnica- great tip. I have really bad ezcema (face, hands mainly) so I am always smearing something on me!

Megams profile image
Megams in reply to SandyBoots

~I use (amongst other natural creams) pure Peony" 100% organic remedial skin repair designed especially for eczema.

purepeony.com

PMRpro profile image
PMRproAmbassador in reply to SandyBoots

Moisturise, moisturise, moisturise. But above all - stop using soap! My bruises/scrapes aren't at all bad - and I AM on anticoagulant therapy!

SandyBoots profile image
SandyBoots in reply to PMRpro

Thanks. What do you use to cleanse with if not soap? Oils? I try to use a soap with Shea butter and emollients but still dry and ezcema prone. The ezcema on my face was actually better when I was on a higher dose of prednisone (not a surprise). It has come back with a vengeance now that I am down to 2 mg - ugh!

PMRpro profile image
PMRproAmbassador in reply to SandyBoots

If you MUST "cleanse" then something like Diprobase or Doublebase products are good, prescribed for severe eczema but affordable enough. Anything that foams strips the natural oils from your skin - with the obvious result.

healthline.com/health/beaut...

I don't use soap except for hands and any time I get really dirty. We don't GET dirty and we wash far too much - I shower with water and shampoo my hair once every 3 weeks at most - unless there is a very good reason. I don't smell - except of me. There is a lot of talk about the biome these days - and your skin is your largest organ, also dependent on a healthy set of bacteria to keep it healthy. Once they are in balance - you won't smell ofstale sweat. It is the action of "bad" bacteria that cause BO - but the cleansing industry has ingrained in us that we "smell" and need chemicals to stop that. I stopped using deodorant in the early days of PMR because they made me smell even worse - within 3 months I no longer developed an unpleasant smell after exercise so I stopped the search for an aluminium-free deodorant. I just stood under the shower for a couple of minutes a bit more often. Eventually I didn't need to do even that,

SandyBoots profile image
SandyBoots in reply to PMRpro

Thank you PMRpro for your really helpful thoughts. I am planning to follow suit!

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