Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,635 members • 38,785 posts

All posts for August 2020

Can anyone recommend anything for my mums buzzing in her head and headaches.she has GCA, they do not want to increase her steriods,shes 80.

Hi, I am wondering if someone could help with advice for my mum, she is 80 years old and has been diagnosed with PMR and GCA. She as had these conditions...

Hi, I am wondering if someone could help with advice for my mum, she is 80 years...

Alliosne1

•4 years ago

9 Replies

PMR inflammation and heart health

PMR inflammation and heart disease? So I’m wondering if the inflammation we experience with PMR affects our vascular health. Does the inflammation cause...

PMR inflammation and heart disease? So I’m wondering if the inflammation we expe...

Whitner

•4 years ago

21 Replies

Low Sodium when taking Prednisolone

Has anyone else found that they have low sodium which could be due to taking Prednisolone? I have had it since January and didn’t have a blood test for 4...

Has anyone else found that they have low sodium which could be due to taking Pre...

JanetT58

•4 years ago

20 Replies

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Masks - good or bad!

I would be interested to know if anyone has any opinions or medical knowledge about how wearing a mask might affect the immune system if it’s compromised....

I would be interested to know if anyone has any opinions or medical knowledge ab...

Hummingbird28

•4 years ago

86 Replies

NHS staff are really the best in the world and True Hero's

I had rant about my treatment yesterday. What was I really complaining about though? It's the system not the staff. Without the dedication and commitment the...

I had rant about my treatment yesterday. What was I really complaining about tho...

Estellemac

•4 years ago

1 Reply

Preds and Covid-19

I am looking for some information on the affected of the Preds and working. When I was diagnosed back in June, my doctor said that if I went back to work, in...

I am looking for some information on the affected of the Preds and working. Whe...

Verwood

•4 years ago

5 Replies

Surgery and steroids

Advice please. In the past I have seen posts on whether to increase steroids if you are going to have surgery. I am struggling anyway right now with reducing...

Advice please. In the past I have seen posts on whether to increase steroids i...

lizzie47

•4 years ago

13 Replies

Amitriptyline

Hi all, just had a disappointing phone consultation with a new Rheumy as my old one has left. It was the usual lets get you off the pred, your blood markers...

Hi all, just had a disappointing phone consultation with a new Rheumy as my old ...

jlyndauk2002

•4 years ago

16 Replies

Curly hair

I have read posts about this subject in the past and now find that this has happened to me. Have been losing my hair quite rapidly over the last 18 months...

I have read posts about this subject in the past and now find that this has happ...

jaycee444

•4 years ago

8 Replies

Swollen feet, ankles and legs

Went up into the mountains of Maine and stayed in a little cabin for four days. Took long walks up the mountain. Days were quite hot and I’m sure I didn’t...

Went up into the mountains of Maine and stayed in a little cabin for four days. ...

Blackcatlover

•4 years ago

10 Replies

My start on GCA

Hello Warriors! Just to share my journey on the starting blocks for a GCA run. Having had arthritis symptoms (pains in the back) since I was 12 years old and...

Hello Warriors! Just to share my journey on the starting blocks for a GCA run. H...

Hidden

•4 years ago

28 Replies

New Trustee

I am delighted to see that Dr Chetan Mukhtar my Consultant Rheumatologist at the Norfolk and Norwich Hospital is now a Trustee of PMRGCAuk.

I am delighted to see that Dr Chetan Mukhtar my Consultant Rheumatologist at the...

casca312

•4 years ago

3 Replies

Rheumatology recommendations.

Thanks everyone for your advice and support today regarding my mum and her polymyalgia. I think it’s well worth us going privately to see a rheumatologist. We...

Thanks everyone for your advice and support today regarding my mum and her polym...

Hidden

•4 years ago

8 Replies

Blood Sugar Chart for SJ

This is the chart I check my sugar against.

Estellemac

•4 years ago

5 Replies

Vulnerability chart

Can anyone point men to the chart produced by North Bristol Trust RheumatologyDept which shows vulnerability groups. It’s been on here before but I cannot find...

Can anyone point men to the chart produced by North Bristol Trust RheumatologyDe...

Lakesider

•4 years ago

12 Replies

how my visit with my rheumatologist went today

I had a telemedicine visit with my rheumatologist today. Since I've shared my history and asked for advice here in the recent past, I thought I'd share how it...

I had a telemedicine visit with my rheumatologist today. Since I've shared my h...

benhemp

•4 years ago

7 Replies

Advice needed please for my mum!

Good morning. I’m after knowledge and advice for my mum please. She is 75 years old and was diagnosed with polymyalgia almost 4 years ago now. She was put on...

Good morning. I’m after knowledge and advice for my mum please. She is 75 years...

Hidden

•4 years ago

49 Replies

Achenbach syndrome

Woke up today and got to work where I noticed Centre of index finger, palm side, was black And blue! No pain at all. Now diminishing. Googled and came up with...

Woke up today and got to work where I noticed Centre of index finger, palm side,...

Pongo13

•4 years ago

7 Replies

Feeling depressed, so excuse me venting!

Have just been seen at a complex MSK clinic. My doctor told me I had inflammation markers, but according to the consultant I just saw, I haven’t. I went...

Have just been seen at a complex MSK clinic. My doctor told me I had inflammati...

Toods

•4 years ago

21 Replies

Rheumatologist Recommendation Surrey

As per title, who is recommende in the Surry area?

Gopherit

•4 years ago

4 Replies

PMR

relapse symptoms

Gopherit

•4 years ago

5 Replies

Solid extended stomach.

Anyone else suffering from a stomach that looks as if it doesn’t belong to them. That’s what I have. It’s uncomfortable especially when I have eaten. Also...

Anyone else suffering from a stomach that looks as if it doesn’t belong to them....

keeptalking

•4 years ago

11 Replies

Anti-inflammatory Cook books

Has anyone tried an anti-inflammatory cookbook and are they any good please ?

Retallack

•4 years ago

9 Replies

Fuming

Hi everyone, just an update on previous posts. Please excuse the comments but I need to release some anger and frustration. I have been trying to taper down my...

Hi everyone, just an update on previous posts. Please excuse the comments but I ...

maxgarry

•4 years ago

11 Replies

allergy to prednisolone

Is it possible to develop an allergy to prednisolone? Or perhaps an allergy to something as yet unknown that is triggered by prednisolone?

Is it possible to develop an allergy to prednisolone? Or perhaps an allergy to ...

fitzida

•4 years ago

23 Replies

Recommendation for a rheumatologist

Can anyone please recommend a private rheumatologist specialising in PMR in the London area? I’ve lost faith in the NHS at Mile End Hospital ever since the...

Can anyone please recommend a private rheumatologist specialising in PMR in the ...

Zhenya

•4 years ago

10 Replies

New symptoms following tapering

Hi everyone. Having been diagnosed with GCA Sept 2019 I have been tapering from 80 mg and today I am on 1 mg and due to finish on 31 Aug. However... since...

Hi everyone. Having been diagnosed with GCA Sept 2019 I have been tapering from ...

Gurufjm

•4 years ago

17 Replies

Tozilizumab/Actemra

I am interested in anyone in the UK who has been prescribed Tozilizumab for "refractory GCA". I was diagnosed with GCA and PMR in July 2015 and prescribed 40mg...

I am interested in anyone in the UK who has been prescribed Tozilizumab for "ref...

LizMitchell

•4 years ago

69 Replies

Spam mail

Has anyone else been contacted on this site by a prince someone or the other with a photo of a sheik asking what language I would like to converse in?.

Has anyone else been contacted on this site by a prince someone or the other wit...

Suet3942

•4 years ago

22 Replies

Long nights

I am so pleased to be taking prednisilone; I realise the short term and long term effects and the need to reduce the dosage quickly and to taper off the dosage...

I am so pleased to be taking prednisilone; I realise the short term and long ter...

Hidden

•4 years ago

43 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for August 2020

Can anyone recommend anything for my mums buzzing in her head and headaches.she has GCA, they do not want to increase her steriods,shes 80.

PMR inflammation and heart health

Low Sodium when taking Prednisolone

Masks - good or bad!

NHS staff are really the best in the world and True Hero's

Preds and Covid-19

Surgery and steroids

Amitriptyline

Curly hair

Swollen feet, ankles and legs

My start on GCA

New Trustee

Rheumatology recommendations.

Blood Sugar Chart for SJ

Vulnerability chart

how my visit with my rheumatologist went today

Advice needed please for my mum!

Achenbach syndrome

Feeling depressed, so excuse me venting!

Rheumatologist Recommendation Surrey

PMR

Solid extended stomach.

Anti-inflammatory Cook books

Fuming

allergy to prednisolone

Recommendation for a rheumatologist

New symptoms following tapering

Tozilizumab/Actemra

Spam mail

Long nights

Search posts

Pinned Posts

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A quick SURVEY on COVID-19 & PMR/GCA/LVV Since the start of the COVID-19 pandemic have you experienced any of the following? Part 2

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