I have been on prednisone for 10 years. After doses of 60 40 30 20 15 10 milligrams, I am finally down to where the prednisone does less harm. I never thought I would see 7 mg. I was told by my rheumy that 7mg is the dose that does the least harm since it is what our body makes each day.
So now I am trying to get down lower. I made it to 6mg. That took 3 months, dropping from 7 to 6. I am stuck at 6. When I try to go lower I get sick with a fever. Has anyone else had a fever when trying to reduce prednisone?
My rheumy wants the eventual goal to be 5mg a day. He says once we get to 5mg he wants me staying there for a long time.
I also developed gastritis. I have chronic dyspepsia , but it has been well controlled on minimal Pepcid for a few years. Now it has gone crazy. It may be part Pandemic fatigue, but I think the prednisone withdrawal is doing it. My primary doubled my Pepcid dose. That is working. When her nurse called back to tell me to double the Pepcid she sounded like she had been saying that to a lot of people, so the pandemic may be playing some part.
Also since I dropped from 7 to 6 I have been having chills and being cold in the afternoon has become an issue. I am fairly certain it is from a lack of prednisone in the afternoon.
Yesterday I took 5.5mg and ran a fever last night. Scared me because of Covid, but this morning I am fine. I take my prednisone in the morning.
Anybody else go through something like this?
Oh, and in the last 6 weeks of sheltering in place I have lost 4#. Not trying, just no appetite, nausea. Is that a symptom of prednisone withdrawal?
Hi, PMRpro put this up a while back. Your symptoms do fit some of the symptoms for pred withdrawal. It's quite useful to reread. I often get a low grade fever. But that has been the case with PMR full stop.
I hadn’t seen that. Very helpful indeed. Thank you 🌺
If you check out the pinned posts there are lots of things that are helpful. X