Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,568 members • 38,621 posts

All posts for September 2019

Is this normal ?

Hi all I am new to this as I was only diagnosed 3 weeks ago so am just looking for a bit of info. I am taking prednisalone which is definately helping but only...

Hi all I am new to this as I was only diagnosed 3 weeks ago so am just looking f...

lindtbunnynut

•5 years ago

25 Replies

High white blood cell count on prednisone

Just a little question. Is it normal to have a very high count of white blood cells with Prednisone? My rheumatologist says it's normal, but I thought I'd...

Just a little question. Is it normal to have a very high count of white blood ce...

PMRgo

•5 years ago

10 Replies

Dizziness

Anyone else experienced dizzy spells on 60mg preds. Today has been particularly bad with pounding headache. Usually clears by lunchtime.

Anyone else experienced dizzy spells on 60mg preds. Today has been particularly ...

Ann-1

•5 years ago

10 Replies

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Rayos Time release prednisone

Hi, Haven’t posted in a while, but read every day. Update be 5 years next month for pmr In five years in December positive biopsy for GCA. Started 20 mg for...

Hi, Haven’t posted in a while, but read every day. Update be 5 years next month ...

casse

•5 years ago

14 Replies

Stressed

My dear husband has been diagnosed with heart problems and needs triple heart by pass he is73 fit well never had a days illness and only found out as mentioned...

My dear husband has been diagnosed with heart problems and needs triple heart by...

Lynnray

•5 years ago

27 Replies

Why Stress is a Good Thing....Read on if you have PMR/ GCA , Fibro, or any Chronic Pain Condition and I will explain why I've not gone Mad!

Morning all Forum Folks and Faraway Friends , Auntie Bleary-eyed here . I hope the title of my post hasn't made you spill your morning brew in shock , thinking...

Morning all Forum Folks and Faraway Friends , Auntie Bleary-eyed here . I hope t...

Blearyeyed

•5 years ago

51 Replies

Not happy

I had a missed phone call from the hospital today, when I rang back it was a recorded message saying that Oxfordshire hospitals has tried to ring and will try...

I had a missed phone call from the hospital today, when I rang back it was a rec...

Poppylop

•5 years ago

4 Replies

Not again

Third appointment with rheumy cancelled. This time with no alternative follow up date given. Fortunately I’m getting on fairly ok at the moment and have a very...

Third appointment with rheumy cancelled. This time with no alternative follow up...

DDKRM

•5 years ago

13 Replies

Hello PMR Forum I am new here.

I have PMR. I wish I had never heard of it, but once it gets you, you will never be the same again. My doctor had no idea what was causing my pain and for...

I have PMR. I wish I had never heard of it, but once it gets you, you will neve...

Hidden

•5 years ago

23 Replies

It never rains, it pours!☔️

I posted last week asking for some advice around a flare I was experiencing and thank you to those who responded. I’m sorry to be needy, but right now I need a...

I posted last week asking for some advice around a flare I was experiencing and ...

Nerak12

•5 years ago

66 Replies

TRURO Meet Up Group

Camborne Group has been renamed “Truro Meet Up Group” as, for sometime, we have been meeting every 2nd Monday regularly at TRURO Golf Club. Our contact...

Camborne Group has been renamed “Truro Meet Up Group” as, for sometime, we have ...

Pollyanna16

•5 years ago

9 Replies

Tapering Severe Return of Symptoms

I began 20 mgs of Pred approx. 3 months ago after an unsuccessful attempt to reduce from my initial starting dose of 15. 20 kept symptoms under control and I...

I began 20 mgs of Pred approx. 3 months ago after an unsuccessful attempt to red...

mcrossbonfire

•5 years ago

8 Replies

Glasgow Support Group

I attended my first PMR support group meeting on Glasgow on Monday. I was diagnosed in June with PMR and since then have been trying to find out as much as I...

I attended my first PMR support group meeting on Glasgow on Monday. I was diagno...

Spittal9

•5 years ago

12 Replies

Update "Hospital" (Geriatric ward)!

I've been refused! I'm too healthy!🤣🤣🤣🤣🤣 You've got to laugh! It tickled me no end. Was called for a pre exam, twisted, bent, bloods, etc etc. Result...

I've been refused! I'm too healthy!🤣🤣🤣🤣🤣 You've got to laugh! It tickled ...

Constance13

•5 years ago

49 Replies

Rheumotologist wants to change from prednisone to methotrexate...

Has anyone been switched from prednisone to methotrexate? My rheumatologist wants to do this. I’ve had PMR since November 2017. I’m down to 7 1/2 mg. I did go...

Has anyone been switched from prednisone to methotrexate? My rheumatologist wan...

Lever

•5 years ago

18 Replies

Weary and confused

GP told me Latest blood tests good and I should reduce my dosage of steroids. My GP is good but I feel he's a bit too desperate to get me off the steroids. He...

GP told me Latest blood tests good and I should reduce my dosage of steroids. My...

JsyAnne

•5 years ago

20 Replies

Success! Off of prednisone and Actemra.

Hi. GCA/PMR 8-2017, start 60mg prednisone. 10-2017 started weekly shots of Actemra and started tapering prednisone. Miracle happen Feb. 1,2018... I found...

Hi. GCA/PMR 8-2017, start 60mg prednisone. 10-2017 started weekly shots of Act...

Kentucky5

•5 years ago

16 Replies

Tapering

Hi l took your advice on going back to 25mgs pred from 20mgs nearly 2 weeks ago hoping it would help me feel better but so l seem to be feeling worse. Still...

Hi l took your advice on going back to 25mgs pred from 20mgs nearly 2 weeks ago ...

Ryliefew123dogcat

•5 years ago

7 Replies

GCA, tapering and blood tests.

I see Ann 1 asked a similar question and I am wondering about further tapering. I went down from 50 for three weeks or so to 45 last week (Rheumy had said to...

I see Ann 1 asked a similar question and I am wondering about further tapering. ...

Pippah45

•5 years ago

20 Replies

Comfort in food

Here's an interesting observation. I was doing low carb and noticed my back pain and knee pain went away. I also felt more alert and focused. Fell off the...

Here's an interesting observation. I was doing low carb and noticed my back pain...

Singr

•5 years ago

62 Replies

Rheumy update

Saw the rheumy last week and although I didn’t get the results yet for the DXA scan on 2nd August, I am to stick with the Prednisolone and a slow taper....

Saw the rheumy last week and although I didn’t get the results yet for the DXA s...

Cyclegirl54

•5 years ago

8 Replies

"When Grief Gets Physical"

Great article! I was diagnosed with GCA & PMR just 6 months after the (unexpected) death of my brother. "A recent article in Psychosomatic Medicine (2019)...

Great article! I was diagnosed with GCA & PMR just 6 months after the (unexpect...

Hidden

•5 years ago

9 Replies

Another funny turn

Hi all, I had another funny turn last night, pretty much the same as Friday night, really burning headache in my forehead, my face went bright red and burning,...

Hi all, I had another funny turn last night, pretty much the same as Friday nigh...

Poppylop

•5 years ago

20 Replies

Steroids and sickness

I have been on steroids for three years now with GCA and got down to 1mg and last month been diagnosed with PMR and up to 20mgs but now down to 12 1/2 mgs , In...

I have been on steroids for three years now with GCA and got down to 1mg and las...

Gran6

•5 years ago

6 Replies

Something New to Worry About

To my dismay, have just been Dx osteopeanic T femur -0.9, spine -1.6. Yet to see GP but likely to consider Bisphosphonates as recommended on report. I’m 59 yr...

To my dismay, have just been Dx osteopeanic T femur -0.9, spine -1.6. Yet to se...

Tonch

•5 years ago

4 Replies

Painful and swollen hand

I've had PMR for 3.5 years now and have been reducing slowing from 20 mg without any major flairs. I've had pains here and there and exhaustion, which went...

I've had PMR for 3.5 years now and have been reducing slowing from 20 mg without...

kulina

•5 years ago

16 Replies

Yet more negative blood tests!

Hello again! You may remember my somewhat reckless steroid reduction from0mg to zero in 9 days. I've just been discharged by the ophthalmologist who says I...

Hello again! You may remember my somewhat reckless steroid reduction from0mg to ...

Linda3009

•5 years ago

10 Replies

Leflunomide

Has anyone had experience of this drug for PMR?? Any info would be most welcome- have had PMR since May 2018 and Rheumy desperate to get me onto a DMARD THANKS

Has anyone had experience of this drug for PMR?? Any info would be most welcome-...

bakingD

•5 years ago

35 Replies

Tapering

Was diognosed June 2017 have been tapering using dsm from 20mg since then got to 31/2mg then started to ache and Gp suggested that I go back up to 4mg which...

Was diognosed June 2017 have been tapering using dsm from 20mg since then got to...

ali5son

•5 years ago

24 Replies

Thank you, thank you for advice re. Pony share - and trip to Manchester to see grandson

Update: I went to see Tony (the pony!) yesterday and had a good chat with his lovely owner. It helped both of us to see how I was - when I said slow walk to...

Update: I went to see Tony (the pony!) yesterday and had a good chat with his lo...

Enfin

•5 years ago

14 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for September 2019

Is this normal ?

High white blood cell count on prednisone

Dizziness

Rayos Time release prednisone

Stressed

Why Stress is a Good Thing....Read on if you have PMR/ GCA , Fibro, or any Chronic Pain Condition and I will explain why I've not gone Mad!

Not happy

Not again

Hello PMR Forum I am new here.

It never rains, it pours!☔️

TRURO Meet Up Group

Tapering Severe Return of Symptoms

Glasgow Support Group

Update "Hospital" (Geriatric ward)!

Rheumotologist wants to change from prednisone to methotrexate...

Weary and confused

Success! Off of prednisone and Actemra.

Tapering

GCA, tapering and blood tests.

Comfort in food

Rheumy update

"When Grief Gets Physical"

Another funny turn

Steroids and sickness

Something New to Worry About

Painful and swollen hand

Yet more negative blood tests!

Leflunomide

Tapering

Thank you, thank you for advice re. Pony share - and trip to Manchester to see grandson

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