Glasgow Support Group: I attended my first PMR... - PMRGCAuk

PMRGCAuk

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Glasgow Support Group

Spittal9 profile image
12 Replies

I attended my first PMR support group meeting on Glasgow on Monday. I was diagnosed in June with PMR and since then have been trying to find out as much as I can about it. I did this forum to be so informative and answers a lot if my questions.

It was so good to be amongst others with the same condition and to share experiences. People were at various stages in their recovery. A couple of newbies, which included me, right through to people who have come out the other side of all of this. I came away from the meeting feeling very positive. Luckily for me I have a great GP and share with her what I'm learning about PMR and we are working together on this.

It was great to meet everyone on Monday and I'm looking forward to catching up with them again in the future.

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Spittal9 profile image
Spittal9
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12 Replies
DorsetLady profile image
DorsetLadyPMRGCAuk volunteer

Hi

Glad your first meeting was so helpful - it does make a difference if you can discuss with others who really understand.

Spittal9 profile image
Spittal9 in reply to DorsetLady

It certainly does. Lots of good advice and sharing of knowledge. Everyone was very positive and encouraging.

PMRpro profile image
PMRproAmbassador

Thank you for posting. I think it would be nice if people posted after their local support group meetings more often. It might encourage others to start a group local to them.

Spittal9 profile image
Spittal9 in reply to PMRpro

I'm really glad I went along. Good to be with people 'who get it'.

PMRpro profile image
PMRproAmbassador in reply to Spittal9

Saves a lot of explaining doesn't it!

Spittal9 profile image
Spittal9 in reply to PMRpro

Definitely!

RichardC profile image
RichardC

Great to hear that you found the meeting worthwhile - I hope things went well for you the next day. See you in November.

Spittal9 profile image
Spittal9 in reply to RichardC

Hi Richard, I was glad I came along to the meeting. So good to meet everyone. My operation went well. Six week recovery period now and then onwards and upwards.

Seagu11 profile image
Seagu11

Hi There

I did not know Glasgow had support group.,boy do I need it!

How do I get in touch?

PMRpro profile image
PMRproAmbassador in reply to Seagu11

pmrgca.co.uk/groups/

There is a contact for Scotland in general here. Or you could look here:

pmrgcascotland.com/

where you will see a list of all groups in Scotland. There is also always a notification posted on the forum shortly before the next Glasgow meeting.

Spittal9 profile image
Spittal9 in reply to Seagu11

Hi Seagu11

The Glasgow group meet every two months , so that next meeting is in November. I'm sure they said it is always on the second Monday of the month. Details will be posted nearer the time. I found it very interesting and useful. Hope to see you there!

Cristine

Seagu11 profile image
Seagu11 in reply to Spittal9

Thank you so much. There is so much I would like to discuss with others in my position, see you there I hope , Mary . I had GCA but my rheumy was adamant I reduced steroids asap It has been hellish....however it seems now I need a total hip replacement I have never had joint pain before steroids guess this was all the hurry ? I would say to anyone tapering we are all different ,be careful.

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