Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,342 members • 38,113 posts

All posts for September 2019

Learning all the time

It’s been a week since I started Pred at 15mg. Blood tests did not show anything but how I feel now proves that it’s PMR. Much less pain, able to relax and...

It’s been a week since I started Pred at 15mg. Blood tests did not show anything...

Libs66

•5 years ago

6 Replies

Question about calcium supplements

I have PMR-GCA dx. Also heart condition. My question is about calcium. If my blood labs show I am receiving sufficient calcium from diet, do I need to...

I have PMR-GCA dx. Also heart condition. My question is about calcium. If my blo...

Anniegal

•5 years ago

46 Replies

Please watch Video (Giant Cell and PMR and Tocilizumab)

Forgive me if this has already been discussed on here but this is a video put out about a month ago called "Giant Cell Arteritis: Breaking Down Barriers to...

Forgive me if this has already been discussed on here but this is a video put ou...

lemarie1

•5 years ago

7 Replies

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One good thing about PMR

It can bring people together. Because of this forum, I’ve recently met a fellow PMR sufferer from my town. She looks great, so I never would’ve guessed if...

It can bring people together. Because of this forum, I’ve recently met a fellow...

OutdoorsyGal

•5 years ago

39 Replies

Off Prednisone... Quick Journey... Again..

Five months after diagnosis of PMR and starting Prednisone, I am off. I went for a 2nd opinion and the 2nd Rhuematologist wanted me off Prednisone as quickly...

Five months after diagnosis of PMR and starting Prednisone, I am off. I went for...

Hidden

•5 years ago

45 Replies

Let’s avoid fake news.

I’m a bit concerned that posts are appearing that remind me of the trouble that has been caused by the fake “research” that has got us into big trouble with...

I’m a bit concerned that posts are appearing that remind me of the trouble that ...

Roltuba

•5 years ago

14 Replies

Initial tapering in GCA

If original symptoms have resolved but jaw claudication remains (albeit reduced) would that necessarily prevent tapering. Experience/ knowledge appreciated.

If original symptoms have resolved but jaw claudication remains (albeit reduced)...

Ann-1

•5 years ago

7 Replies

Guys, asking for advice once more!

I have been suffering quite bad neck muscle pain for about 2 weeks, independent from PMR I think. Then on Friday night I experienced the worst pain ever,...

I have been suffering quite bad neck muscle pain for about 2 weeks, independent ...

Breconblue

•5 years ago

3 Replies

Tapering after a flare up

I've had a flare up of symptoms after a workout injury to my elbow. I'm currently on 2mg of prednisone. I'm wondering if I increase my dose to 10 to overcome...

I've had a flare up of symptoms after a workout injury to my elbow. I'm currentl...

PMR48

•5 years ago

5 Replies

Pred and pressure

Hi all ,wondering if the pred is the cause of raise ocular pressure, never had trouble before and had cataracts surgery 3years ago. The leaflet with side...

Hi all ,wondering if the pred is the cause of raise ocular pressure, never had ...

Lancashirelass07

•5 years ago

13 Replies

Help please!

After nearly 2 years of PMR & Pred I have in the last month finally got down to 8 mgs of Pred. After about a week I could feel the inflammation ramping up...

After nearly 2 years of PMR & Pred I have in the last month finally got down to ...

Nerak12

•5 years ago

14 Replies

The journey on the other side of PMR/pred?

Hello all. I'm 54 and celebrating 4 years of PMR/Pred., Currently I'm taking, on alternate days, 1/2mg & 1/4mg of pred., (I got here using the ultra slow...

Hello all. I'm 54 and celebrating 4 years of PMR/Pred., Currently I'm taking, ...

CornishCliff

•5 years ago

11 Replies

Dumb question of the day

I know I should know this but just to confirm getting the flu jab is not a problem for those with PMR is it? I do sometimes wonder what kicked off my PMR and...

I know I should know this but just to confirm getting the flu jab is not a probl...

whitefishbay

•5 years ago

77 Replies

Still here and pain in hip,groin and knee

Hi all, ages since I wrote but still follow, this last 4 months I am getting like pinching in my groin and goes down muscle into my knee. The pinching is...

Hi all, ages since I wrote but still follow, this last 4 months I am getting lik...

Margaret1951

•5 years ago

34 Replies

Feeling wierd

Hi, sorry it's me again, I had a really funny turn last night, I decided to take my pred a bit later before I go to bed because I've been taking it after my...

Hi, sorry it's me again, I had a really funny turn last night, I decided to take...

Poppylop

•5 years ago

17 Replies

'YOUR EARS': RESEARCH RESULT: 8TH CRANIAL NERVE INVOLVEMENT.

First of all, thank you to the people who responded to the call on HU and Patient.info to participate in YOUR EARS: RESEARCH PROJECT. RESULT OF ‘Your Ears’...

First of all, thank you to the people who responded to the call on HU and Patien...

jinasc

•5 years ago

25 Replies

Change of time to take pred

I have to have an investigative procedure in hospital on Tuesday which means I can’t eat all day before it. I take my pred with breakfast normally. Will it...

I have to have an investigative procedure in hospital on Tuesday which means I ...

GracieSimp

•5 years ago

3 Replies

Hair loss

I’ve been on pred for 8 months for GCA- started on 60mg and now on 9mg. I get the awful thinned skinned bruising all the time, but I have also lost so much...

I’ve been on pred for 8 months for GCA- started on 60mg and now on 9mg. I get th...

GracieSimp

•5 years ago

31 Replies

Vitamin D: High Doses Don't Strengthen Bones

Surprising effects seen in randomized trial: actual adverse effects seen with supplementation. https://www.medpagetoday.org/endocrinology/osteoporosis/81986...

Surprising effects seen in randomized trial: actual adverse effects seen with su...

gifford7

•5 years ago

41 Replies

Moving time of Pred dose.

I'm so sorry to be a pain again - just trying to clarify in my head. When I started Pred 2 1/2 years ago I took it in the morning. Then moved to taking it...

I'm so sorry to be a pain again - just trying to clarify in my head. When I st...

Slosh

•5 years ago

11 Replies

Tapering from 3mg Pred

I’ve had PMR for a few years now. I have been on 3mg Prednisolone for two weeks and feel ok after a slow taper I’ve got this far. I will talk to my doctor...

I’ve had PMR for a few years now. I have been on 3mg Prednisolone for two weeks ...

cassie1208

•5 years ago

8 Replies

GROIN PAIN and OTHER THINGS RHEUMATIC

I read that article and found it discouraging. It's clear that much is still not well understood. It was quite technical, and I need to check on some...

I read that article and found it discouraging. It's clear that much is still not...

Christophene

•5 years ago

15 Replies

Awaiting biopsy

Im 40 and undergoing tests for GCA Had previously visited hospital as eye felt huge like too big for my face, nausea and extreme fatigue. They suspected GCA...

Im 40 and undergoing tests for GCA Had previously visited hospital as eye felt h...

DonnaHope

•5 years ago

17 Replies

What next.??

Just returned from opticians ,after scans and tests ,have now been diagnosed with glaucoma, and refered to a consultant, I don't know how to cope anymore ,just...

Just returned from opticians ,after scans and tests ,have now been diagnosed wit...

Lancashirelass07

•5 years ago

38 Replies

Undiagnosed PMR

Wondering if anyone has come across any articles concerning people who apparently had PMR for years without being diagnosed. I wonder of pmr is worse for...

Wondering if anyone has come across any articles concerning people who apparentl...

Linny3

•5 years ago

34 Replies

Stopping statins

So, last January Dx’d with PMR; both local MD and Rheumatologist said to stop my statin. I have a strong family history of stroke but I said OK. Started on...

So, last January Dx’d with PMR; both local MD and Rheumatologist said to stop my...

Joblow

•5 years ago

17 Replies

PMR Trigger?

Perhaps someone could enlighten me. 3-4 years ago I inexplicably started to slowly lose weight. Over 12 months I lost a stone(14lbs). In every other aspect I...

Perhaps someone could enlighten me. 3-4 years ago I inexplicably started to slo...

Cycleman

•5 years ago

10 Replies

Information on statins

https://www.europeanscientist.com/en/features/do-statins-really-work-who-benefits-who-has-the-power-to-cover-up-the-side-effects/ This link may be useful to...

https://www.europeanscientist.com/en/features/do-statins-really-work-who-benefit...

suzy1959

•5 years ago

8 Replies

Alendronic acid

Hi, I've just been reading the leaflet that has come with my alendronic acid, it says some people can't take it, one of these reasons is if you have digestive...

Hi, I've just been reading the leaflet that has come with my alendronic acid, it...

Poppylop

•5 years ago

12 Replies

3 opinions regarding headache

Symptoms: I have PMR and on 5mg Prednisone. Past month having consistent pressure on head. Monday- urgent Care for eyes. Went to get headache checked fearing...

Symptoms: I have PMR and on 5mg Prednisone. Past month having consistent pressur...

Heinrich7

•5 years ago

7 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for September 2019

Learning all the time

Question about calcium supplements

Please watch Video (Giant Cell and PMR and Tocilizumab)

One good thing about PMR

Off Prednisone... Quick Journey... Again..

Let’s avoid fake news.

Initial tapering in GCA

Guys, asking for advice once more!

Tapering after a flare up

Pred and pressure

Help please!

The journey on the other side of PMR/pred?

Dumb question of the day

Still here and pain in hip,groin and knee

Feeling wierd

'YOUR EARS': RESEARCH RESULT: 8TH CRANIAL NERVE INVOLVEMENT.

Change of time to take pred

Hair loss

Vitamin D: High Doses Don't Strengthen Bones

Moving time of Pred dose.

Tapering from 3mg Pred

GROIN PAIN and OTHER THINGS RHEUMATIC

Awaiting biopsy

What next.??

Undiagnosed PMR

Stopping statins

PMR Trigger?

Information on statins

Alendronic acid

3 opinions regarding headache

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