Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,342 members • 38,113 posts

All posts for July 2019

Any ideas: Naltrexone vs Prednisone

Hello people. I have been getting better as per pain management on the whole. Legs still ache at beginning of winter in the southern hemisphere. I was told...

Hello people. I have been getting better as per pain management on the whole. ...

Sunny465

•5 years ago

4 Replies

SPINAL STENOSIS and prednisolone

Hi everybody, some weeks ago I mentioned spinal stenosis and the long wait to see physios. I have now seen musculaskeletal depatment. As I now have trouble...

Hi everybody, some weeks ago I mentioned spinal stenosis and the long wait to se...

Reethebeat

•5 years ago

8 Replies

Asking for yet more expert advice from you wonderful people

I had been reducing per DorsetLady’s plan pretty successfully down to 24 in April. About 10-5% a month. In May, I was suddenly having consecutive days of...

I had been reducing per DorsetLady’s plan pretty successfully down to 24 in Apri...

kellykel

•5 years ago

8 Replies

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BURNING PAIN IN THIGHS

Has anyone had burning pain in both thighs (front part) that keeps you up at night? Lately I have noticed in my arms as well.

Has anyone had burning pain in both thighs (front part) that keeps you up at nig...

Robinre

•5 years ago

17 Replies

Cough!

I have developed a persistent cough and believe it could be coming from one (or more) of my tablets. Would it be alright to stop all the tablets, except pred,...

I have developed a persistent cough and believe it could be coming from one (or ...

Constance13

•5 years ago

49 Replies

Swollen knee

No work 2 days. Have doc appt wed and thru. Let everyone know This new drama !!!Stay tuned !! Thxs everyone for and support. I count on all of you. And read...

No work 2 days. Have doc appt wed and thru. Let everyone know This new drama !!...

Mjhollywood1

•5 years ago

10 Replies

Grateful for support

Morning! Recap: on prednisone a year. Thought I was better. Off for 2 weeks after weaning slowly. Some symptoms returned so back on 2mg. More symptoms returned...

Morning! Recap: on prednisone a year. Thought I was better. Off for 2 weeks afte...

Heinrich7

•5 years ago

18 Replies

Enthusiastic gardening!!

This is an excerpt from an email I sent to a friend today! At a guess I’m sure many will identify with it? Ever onward and upward! ‘ I decided I would plant...

This is an excerpt from an email I sent to a friend today! At a guess I’m sure m...

Whatgrange

•5 years ago

23 Replies

Anyone taking leflunomide (ARAVA) for PMR?

Hello all from the U.S. Has anyone taken leflunomide (ARAVA) as a Methotrexate substitute? I didn't do very well on Mtx. so my rheumy ordered leflunomide....

Hello all from the U.S. Has anyone taken leflunomide (ARAVA) as a Methotrexate ...

lizg0017

•5 years ago

20 Replies

Feeling really ill

Hi everyone,thankyou I advance for all ur very helpful information, I have been on steroids for 9mths mths now I take 60mgs, I still feel very tired and still...

Hi everyone,thankyou I advance for all ur very helpful information, I have been...

geordiegirl1947

•5 years ago

11 Replies

Nordic Walking

People have mentioned Nordic walking, about which I know little. Do I need classes to learn how to do it, and are their poles you would recommend? I checked...

People have mentioned Nordic walking, about which I know little. Do I need class...

Thelmarina

•5 years ago

17 Replies

Stonycreek

Why can’t stonycreek get replies - says he was kicked off?

Daffodilia

•5 years ago

7 Replies

Fatigue

Prednisolone has definately helped with the pain I was experiencing with PMR. Was on 15 mg for 7 weeks then have dropped to 14mg for the past month and all has...

Prednisolone has definately helped with the pain I was experiencing with PMR. Wa...

jaycee444

•5 years ago

29 Replies

On methotrexate and pred, have been exposed to fungal skin infection. First aid advice please.

Hi I am currently on 23 mg pred and 25 mg methotrexate subcutaneous and I'm doing fine. But today I had a visit from a very dear friend whom I've not seen in...

Hi I am currently on 23 mg pred and 25 mg methotrexate subcutaneous and I'm doi...

Dontwannabesick

•5 years ago

10 Replies

Knock Knock..."Who's there?" GCA called out suspiciously. "PMR!"

GCA and PMR are often mentioned in tandem; as though the two conditions, very often, go together. As a GCA patient, I'm wondering at what point, in the GCA...

GCA and PMR are often mentioned in tandem; as though the two conditions, very of...

Blurry62

•5 years ago

20 Replies

Prednisolone and kidney stones

Has anyone experience of developing kidney stones from taking Pred? I also take prescribed Adcal calcium supplement to counteract PRED side effects so not sure...

Has anyone experience of developing kidney stones from taking Pred? I also take ...

Hidden

•5 years ago

8 Replies

SEVERE PROBLEMS WITH WITHDRAWAL FROM PREDNISONE

Hi Again, I haven't been chatting in the last six months since I have been very, very slowly tapering off for the third time. Since I was going so slowly, all...

Hi Again, I haven't been chatting in the last six months since I have been very,...

Robinre

•5 years ago

29 Replies

Relapse

Hi everyone. You have been so supportive. Yesterday I got taken back into hospital for very high calcium and inflammatory markers. In a lot of pain in back...

Hi everyone. You have been so supportive. Yesterday I got taken back into hospit...

Bfp1

•5 years ago

12 Replies

Holiday problems

My elder son kindly took us for a holiday in the West Country. My OH was taken ill and into hospital where he still is. My son had to be back at work on...

My elder son kindly took us for a holiday in the West Country. My OH was taken i...

prunus

•5 years ago

41 Replies

stonecreek-- help

would someone please send me a message. I seem to have got kicked off and have not been on this web page for about a month. Miss it sooo much. How do I get...

would someone please send me a message. I seem to have got kicked off and have n...

stonecreek

•5 years ago

7 Replies

does hydroxychloroquine affect esr and crp results

hi, I have been taking hydroxychloroquine 200mg for 4 years for inflammatory arthritis. the doctor is ? polymyalgia rheumatica so I have blood tests next week....

hi, I have been taking hydroxychloroquine 200mg for 4 years for inflammatory art...

dillydally1

•5 years ago

9 Replies

ESRorCRP

I have read a lot on this but cannot remember which was the most important. I remember reading in Europe from some individuals they stopped doing the one test....

I have read a lot on this but cannot remember which was the most important. I re...

Robinsnest72

•5 years ago

9 Replies

Possible connection between prednisone and skin cancer

I have suffered from PMR twice and in both manifestations of the disease I took prednisone. I was fortunately able to do so at low dosages (never over 10 mg)...

I have suffered from PMR twice and in both manifestations of the disease I took ...

MaryClark

•5 years ago

24 Replies

Bowel habit changes

Hi all, just wondered if anybody has had softer motions due to all the medication e.g. Steroids, Adcal, K2, magnesium etc. Plus loads of fruit and veg and...

Hi all, just wondered if anybody has had softer motions due to all the medicatio...

edmonton

•5 years ago

14 Replies

How do you all control your pred mgs?

Keep reading how each of you change the amt. of prednisone as needed. Here in the US I have to wait for the rheumatologist to do that, can’t just take...

Keep reading how each of you change the amt. of prednisone as needed. Here in t...

composition

•5 years ago

49 Replies

Knee swollen

Hi. This is he first time with a swollen knee. 2 years in with Pmr. Anyone else. ???

Hi. This is he first time with a swollen knee. 2 years in with Pmr. Anyone els...

Mjhollywood1

•5 years ago

19 Replies

Pulsatile tinnitus

I was recently made aware that there maybe a direct correlation between PMR/ GCA. If anyone has Pulsatile tinnitus, are you all familiar with...

I was recently made aware that there maybe a direct correlation between PMR/ GCA...

farzana100

•5 years ago

10 Replies

Follow up post weird 'allergic' reaction / dry mouth.

Hi all - just wanted to let you know what's happening and ask for input: I had posted previously about weird allergic type reactions I was having to perfume,...

Hi all - just wanted to let you know what's happening and ask for input: I had p...

Slosh

•5 years ago

42 Replies

Adrenal nodules?

Hi wonder if anyone else has Adrenal Nodules? How do they affect PMR and Prednisone? I have a nodule in each Adrenal. Apparently they do not produce...

Hi wonder if anyone else has Adrenal Nodules? How do they affect PMR and Predni...

Gary1310

•5 years ago

23 Replies

Deletions

Why have Mark Benjmin's posts been deleted, please? He is a highly respected member of this community, a fellow sufferer, who has been a guest speaker at...

Why have Mark Benjmin's posts been deleted, please? He is a highly respected mem...

sennetta

•5 years ago

28 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for July 2019

Any ideas: Naltrexone vs Prednisone

SPINAL STENOSIS and prednisolone

Asking for yet more expert advice from you wonderful people

BURNING PAIN IN THIGHS

Cough!

Swollen knee

Grateful for support

Enthusiastic gardening!!

Anyone taking leflunomide (ARAVA) for PMR?

Feeling really ill

Nordic Walking

Stonycreek

Fatigue

On methotrexate and pred, have been exposed to fungal skin infection. First aid advice please.

Knock Knock..."Who's there?" GCA called out suspiciously. "PMR!"

Prednisolone and kidney stones

SEVERE PROBLEMS WITH WITHDRAWAL FROM PREDNISONE

Relapse

Holiday problems

stonecreek-- help

does hydroxychloroquine affect esr and crp results

ESRorCRP

Possible connection between prednisone and skin cancer

Bowel habit changes

How do you all control your pred mgs?

Knee swollen

Pulsatile tinnitus

Follow up post weird 'allergic' reaction / dry mouth.

Adrenal nodules?

Deletions

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