Would appreciate it if any one can answer this question
I have very thin skin I’m on steroids morphine blood thinners etc and any little bump causes problems
What I would like to know is if I could manage to cut down on steroids on 7 and a half at moment would that help with skin problems also how long would it be before the pain came back if it was going to come back
I’m in pain if I move at the moment ie going from a to b getting in and out of bed onto wheelchair so I presume I would know if pain got any worse if things were working or not
I’ll be wrapping myself up in bubble wrap soon lol
Thanks to anyone who might have some answers to this horrible thin skin
I would love to be able to communicate with someone in same position as myself
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Rusty8
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Double Base Gel, and your GP can prescribe it because you are on pred. If they refuse, you can buy it Over the Counter.
Follow the instructions to the letter...........use it before you shower and after you shower.
Don't shower every day - each time you do you strip all the natural oils off your skin and that just does not help.
Wash you hair either with just water or use Johnson's Baby Shampoo. I only wash my hair with the shampoo about once a fortnight, water the rest of the time and not everyday.
When I was a younger, many moons ago, bath was on Friday night, the bath came off the hook in the yard and water out of the boiler. Rest of the week, it was a flannel wash. I do not remember anyone smelling.
BTW, soap in a block does not have micro plastic in it, those bottles of hand wash do and so do washing pouches............I have reverted back to powder for the wash and ditched the hand wash, back to soap. I could not believe that there was micro-plastic in hand wash and washing pouches.............I wonder what else we will find contains those damaging little balls.
Thank you for reply I had to laugh to myself I have been doing what you are doing ie baby shampoo cream etc
My husband always used soap wouldn’t use anything else I have a special qv wash from docs but now wondering if going back to soap would help
Yes you are correct years ago bathhouse days Sunday’s before going to school and we never. Smelt I can remember my doc 54years ago telling me not to bathe my son every day as you said it was no good for skin
I don’t know if a bar of soap some water is all you need lol
Yes sheep's fleece supposed to be go if expensive. One in your chair that sort of curls rounds you legs would help and I am sure I saw shin protection that isn't too medical looking like the boots. It depends how concerned you are.
Others sites are out there. This was first I came across. No bubble wrap though 😉
I'm glad you put the bit about weekly baths and no one smelling - that's how I remember it too. I don't get the obsession with showering every day. I think it does more harm than good.
They should have stated it quite clearly that we eat fish.................so we have plastic in us already, if you eat fish of course. I eat fish and I wonder - but at 8 score years plus 1 I am not worried about me, it is the kids.
I looked at the bottles I had on the ingredients (using a magnifying glass) label and understood about 10% of it..................needed a degree in chemicals. Nowhere could I find the word 'plastic'..............I wondered if they used another word. Obscurity rules KO.
There's no way we can avoid the contaminants. We all have glyphosate in us, a known carcinogen and at high doses an endocrine disrupter, liberally applied on food crops in much of the world, especially North America. And even if microbeads are banned the plastic already in the environment is constantly breaking down into smaller and smaller pieces and becoming micro fragments. This is why young people are becoming angry and desperate. They know their world is increasingly unsafe to live in and raise a family. I wish more of them would rise up. Obviously the boomer generation simply through the sin of omission has allowed this to happen. My generation is the one which should have called a halt to this, but tragically too few of us were even aware and even fewer seemed to care.
No - sins of comission too. When plastics were invented there was a triumphant "it will last for ever" - which anyone thinking should have questioned! Once I understood it and could afford it I did all I could to avoid plastic - especially clothes!! Upset a shop assistant once when she showed me something - I said I didn't want plastic thank you. "It's not plastic, it is polypropylene (or something)" That's right - plastic ...
Here everything plastic is called nylon - only the names have been changed to confuse the innocent!
Have you seen or heard about leg protectors and what are your views on them I spoke to pharmacist about them and she advised to see doc which I haven’t as yet
I think it would depend on what kind of injuries you might be getting. A few months ago there was a rash of people posting pictures of horrid injuries on the level of playful dogs ripping vulnerable shins. In that situation i'm pretty sure I'd be wearing some sort of skin protection!
Sorry DL , you know how my funny brain works I couldn't stop laughing at your comment about taking shares out in Bubble Wrap.
Especially as I read the next part of your reply as though you were suggesting that we should wrap our whole bodies in it!!
I was so busy imagining myself wrapped up like a Mummy apart from the leg in its fracture brace , bubbles popping as I walked , I forgot that having the brace on means I have an even slower wobble for a wee.
Absolutely desperate, I knew I wouldn't make it and had to shout through to my OH in the office for assistance . The poor , long suffering , fool has just had to struggle as swiftly as he could carrying me up the stairs to the toilet , yelling , "OW!!!", as he went as my brace kept whacking him in the back.
Hilariously , after he had managed to plonk me in view of the loo he observed , with uncharacteristically quick humour , that he had never expected that this was the threshold he'd be carrying me over 16 years ago.
I had to agree it wasn't the way I imagined beginning our wedding anniversary either , it is past midnight on 4 the July in the UK and we've been married 16 years today!!
Thanks for beginning the festivities for us, we should know that we can rely on a Scandi Goddess like you to put a bit of "romance " back in our lives !!😋😂😂😂😂😂xxxx😘😍
( And yes the irony of the date was deliberate for any keenly observant American Friends !)
Thanks , I will just have to plan regular toilet breaks if I plan to have any more fun today , if the poor old OH has to carry up the stairs again we could both end up in braces side by side at A and E !!
Technically speaking we've been together for over 21 years , and the two girls were on the scene before that so we thought we had better get around to it 😋😂😂😂
We were together 5 years before we got around to marrying. So I have known OH for 34vyears now over half of my life!! Scary!! Also realised I have always been a northern girl At heart but I have been in the south for over 37 years!! Ni wonder my mum says I talk posh!!
I agree that moisturising is helpful, but it seems when things become too dire it's important to also protect the skin with some sort of barrier. This seems to have good reviews. They do claim to be suitable for wearing even in hot weather.
The dermatuff protectors Heron mentions are said to be good - someone on one of the forums got them.
I don't think anything short of stopping the pred altogether will help and even then it will take a long time. Like jinasc the only soap I use is after the toilet - never in the shower, water only. We've both had little trouble with our skin. I don't even bruise badly - when I do it is not the pred but my anticoagulant medication. And as soon as you get below the dose you need for the PMR the pain will be back very soon.
Morning you have me thinking now when you mentioned your blood thinners I have been wondering for awhile now if some of my problems are related to change over from warfarin to apixaban as I believe all this bleeding hematomas and bruising appeared after change over I am not sure but what are you views. On this
I am on Pradaxa/dabigatran and I have always noticed that every few months bruises appeared - and then I started spreading the doses a bit further apart for a few days, they are 2x daily and instead of 12 hours I left them 16 hours or so and it was better. Just recently I happened to read that it shouldn't be taken at the same time as one of the other drugs I take for the strial fibrillation: It increases the level of the anticoagulant in the blood. Because of the timings I was taking one of the a/f tablets at the same time as one of the anticoagulant so I have changed that, inconvenient but there do seem to be no new bruises.
My husband had a similar situation with rivaroxaban - which I think is similar to apixaban. He takes a heart medication that also increases the amount of the anticoagulant in the blood. When he was admitted to hospital at xmas with bleeding his blood level was 10 times what is should have been! The haematologist has now taken over his supervision and he is back on Warfarin. He was astounded he'd been put on it when he was already on the heart drug, has been for years.
What happens is that the baseline level just keeps creeping up and eventually gets quite high because the dose is too high and it isn't excreted fast enough - if that makes sense. Some of these new drugs have antidotes but not all. I chose mine specifically because it had a short half life and an antidote - but neither applies for the one OH was on. The surgeons at xmas said they see it all the time.
So - the question is, are you on anything else? I'd expect you are if you need anticoagulants at all.
Yes I am a few others verapamil for a/f tacrilimus for transplant azathiroprine for transplant longtex (morphine)
Apixaban steroids digoxin that will do for now lol so a mixture won’t help I think I will just have to plod on as my friend would say jockingly you are alive lol
Like PMR Pro , I think I'd need to know more about any of the conditions you have , and the drugs you are on , if that is not to personal a question to ask?
These things can make a big difference to what is best for thin skin.
Completely understand , and don't worry about sounding like a hypochondriac , we are not Doctors and realise if you are ill , you are ill!!
I'd have to be a hypochondriac with a capital H if it stood for someone with so many parts that are falling apart that shares in superglue might be a good idea.
I also think a few shares in bubbles rap could come in handy too!😋😂😂😂
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