Myeloma in families??

Hi everyone.. Need aome advice pkease... My sister had MM just over ten years ago and is doing amazing now.. I have been having problems with discs and two breaks in the small bones of my back and these were also one of the symptoms that she also presented with... Where can i get the best advice on the risks that i could also have this?? Ive tried to google but as you all know thatsnot a good thing to do sometimes!!! Thanks!!!

[PMRpro Ambassador]

Think you are probably in the wrong place - we all have polymyalgia rheumatica (PMR) or giant cell arteritis. PMR is the name given to a set of typical symptoms including muscle stiffness but they themselves aren't the illness, they are due to one of several possible underlying disorders. While MM may present with the symptoms we call PMR, I don't think anyone on here has MM.

However, your GP is the person to speak to, they can do various blood tests to see if you have any signs of MM. Don't sit there worrying - ask if they have done the usual blood tests.

[Hidden in reply to PMRpro]

Thank you for getting back to me so quickly!! X

[EdithWales]

As PMRPRO says you are in the wrong place however you really must discuss this with your GP

Google is wonderful for providing a whole host of information but you need someone who can properly assess you

I am so pleased your sister is doing well, I have a friend who had treatment 13 years ago

Take care

[Hidden in reply to EdithWales]

Thank you for getting back to me so quickly!!! Xx

[EdithWales in reply to Hidden]

Good luck Laraine

[arvine]

hello Laraine, I am on this forum, diagnosed with pmr oct 2016, and oddly enough my son started having symptons of MM around the same time, but was not diagnosed until june 2017 with MM, this is probably not the right forum to talk about that as someone indicated, however, I am interested in learning more about your sister,s history, and what treatment she has had, you said she was diagnosed 10 years ago, and is doing amazing, my son had a stem cell transplant jan 2018, and has been on a maintenance drug for last 9 mos, he too is doing ok, with a couple of hiccups along the way, but for now doing good, if we can,t use this forum to talk about your sister,and yourself, maybe we could communicate in some other way, ie email, facebook etc, let me know what you think, thank you

[PMRpro Ambassador in reply to arvine]

You can always use the Chat facility - private messaging. The Chat icon is on the top strapline. Or you can click on the person's name which takes you to the profile page where there is a Message box. It's exactly the same as posting in a thread except only the person or persons named can see the posts - you can include one or a lot in the conversation.

[arvine in reply to PMRpro]

oh thank you PMRpro

[PMRpro Ambassador in reply to arvine]

And I see no reason why you can't say here that there is a conversation going on if anyone else would like to join in by contacting you.

Since MM is something that should be ruled out in anyone with PMR symptoms it is relevant but probably not something YOU particularly want to talk about in public.

Glad to hear he's doing well though.

[arvine in reply to PMRpro]

Oh thank you, yes he is doing fairly good , ups and downs here and there, but for mostpart, pretty good,

[nymima01 in reply to arvine]

I had PMR first and then I was diagnosed with NHL - Also a blood cancer. My PMR was an inflammatory response to the cancer. When I treated for the NHL with Rituxan, my PMR went away too. Is this what you are referring to?

[readingbooks]

What is MM?

[PMRpro Ambassador in reply to readingbooks]

Multiple myeloma - the title of the post just says myeloma, but the term multiple myeloma is often used.

[Blondenettie]

My sister had MM and siblings are at slightly higher chance of getting MM. I would get to your family doctor to have blood work drawn. Low Calcium level is key as well as low WBCs and low RBCs

[Blondenettie]

Sorry meant to type high calcium levels

[PMRpro Ambassador in reply to Blondenettie]

You can edit your other post to correct it - click on the More box with a downward pointing arrow and select Edit.

[castingcollectives]

I have something called MGUS which means have protein in blood making more likely will develope to myloma have blood tests 2 year also broken vertebra. Have you had this test? I probably will never develope it but everyone who has myloma has this protein.No one in my family has it. I would ask to have meeting with your sister's consultant to discuss this. There is also loads on internet about it. Please don't worry too much I'm so pleased your sister is doing so well.