Having felt pretty unwell for the last 2 weeks with no energy and sleeping a lot through absolute necessity accompanied by viral feelings throughout my body, I experienced a frightening and severe pain at the base of my skull yesterday. Nothing had any impact on it - even left over Tramadol. I have not raised my Prednisalone dose of 5.5mgs during this period having been assured by the Endocrinologist that my pain was Pred withdrawal. I am aware that my Adrenal function is below par through the Synacthen Test. Out of desperation I took 7 mgs in total yesterday and experienced relief within about an hour. I have just woken at 5 am because the pain is back and have taken 7 mgs earlier than I would take Pred normally.
You can imagine my terror at the prospect of a long haul flight in case this is GCA related. We are due to fly on 29 March ( Australia). The grandchildren will be so disappointed if I can’t go. I am hoping that this is a PMR flare perhaps. 2 mgs wouldn’t relieve a GCA headache surely? Again I can feel it easing.