Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,612 members • 38,758 posts

All posts for March 2019

GCA/PMR

After quite a busy seven days I went for a routine steroid injection to a very painful knee and my GP had just received a blood test from the hospital here in...

After quite a busy seven days I went for a routine steroid injection to a very p...

Hidden

•5 years ago

17 Replies

Anyone not taking prednisone

Hi is anyone not taking prednisone? If not how are you managing PMR? Thank you. Thank

Hi is anyone not taking prednisone? If not how are you managing PMR? Thank you....

ptm2018

•5 years ago

15 Replies

Cataract surgery complication

Anyone else had issues with cataract surgery after taking pred for PMR and GCA? Now have a new thing called Blepharitis in one eye after cataract removed and...

Anyone else had issues with cataract surgery after taking pred for PMR and GCA? ...

Reeceregan

•5 years ago

33 Replies

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Flair or Prednisone withdrawals

I have been wondering how to tell if I am having withdrawal or flair. I base most of my assumptions on what my labs say. If they are higher than last lab I...

I have been wondering how to tell if I am having withdrawal or flair. I base mo...

Hidden

•5 years ago

17 Replies

Pmr confirmed

Further to my first post last week, saw my gp today who confirmed pmr due to huge lowering in esr levels and crp levels since taking the prednisolone. He has...

Further to my first post last week, saw my gp today who confirmed pmr due to hug...

Lola5670

•5 years ago

40 Replies

Gca steroids

I was at doctor today, have had jaw pain, blurred right eye, headache, this is all on the rights side. Doctor put my prednisilone up from 17.5 to 60, she...

I was at doctor today, have had jaw pain, blurred right eye, headache, this is a...

Fifelassieo

•5 years ago

28 Replies

ENT doctor said I have “terrible” TMJ

Due to my constant worry about GCA I saw an ENT doc for my TMJ which I have had for 30 years. I have always had locking, clicking, crackling, but for the past...

Due to my constant worry about GCA I saw an ENT doc for my TMJ which I have had ...

3daysinjuly

•5 years ago

16 Replies

Shingles Vaccination

A couple of weeks ago, one of our Practice Nurses suggested to me that I should have a shingles vaccination. I said ok, but it would need to be the Shingrix...

A couple of weeks ago, one of our Practice Nurses suggested to me that I should ...

Charlie1boy

•5 years ago

30 Replies

Daisy-Roots: my pill cutter

I just tested it, and successfully cut a 1mg tablet into 4. No crumbling. I bought this from my local chemist. The left side is the top, see the razor blade?...

I just tested it, and successfully cut a 1mg tablet into 4. No crumbling. I boug...

Soraya_PMR

•5 years ago

25 Replies

Anyone using the HU App?

I usually access the forum using the iPhone App but it hasn’t been working for the past few days. I’m not seeing any new posts, the latest was posted 5 days...

I usually access the forum using the iPhone App but it hasn’t been working for t...

GerriMc

•5 years ago

10 Replies

Oh No.....

....totally by chance! I had an appointment with my GP (lovely man) and this was for a steroid injection in my knee. My bloods had just arrived from the main...

....totally by chance! I had an appointment with my GP (lovely man) and this was...

Hidden

•5 years ago

14 Replies

Interesting Read

Diagnosed with PMR an have been taking prednisone for about nine months, started at 15mg am now at 7mg an stuck for three months now. Recently read a very...

Diagnosed with PMR an have been taking prednisone for about nine months, started...

Dkathcart

•5 years ago

2 Replies

One For The Bikers (OH on 12.5 - 10mg Pred)

6 days ago OH decied to go for a run on the Buell - approx 50 miles to Parys Mountain old copper mine on Anglesey. 40mg end of June 2018 when PMR/GCA diagnosed...

6 days ago OH decied to go for a run on the Buell - approx 50 miles to Parys Mou...

Nuff1

•5 years ago

6 Replies

Overload...

Hi - I joined the forum several years ago, when the membership was quite small. I have found it a wonderful source of information and support. Now, though, the...

Hi - I joined the forum several years ago, when the membership was quite small. ...

venezia1

•5 years ago

14 Replies

First time Rheumatologist, not happy

Hi everyone, had PMR for 5 and a half years, started on 15mg of pred and had got down to 3 mg, then had my first flare last November and had to go back to...

Hi everyone, had PMR for 5 and a half years, started on 15mg of pred and had got...

kate1978

•5 years ago

87 Replies

Always look on the Bright Side.

Trying to get out of bed thanks to my dodgy hip,I fell forward and managed to bang my head on the edge of the dressing table.I now have cracked ribs an ugly...

Trying to get out of bed thanks to my dodgy hip,I fell forward and managed to ba...

Seagu11

•5 years ago

23 Replies

good cbd oil info

I thought this would be something many of you would be interested in, how cbd oil can help us. Very informative and from a doctor....

I thought this would be something many of you would be interested in, how cbd oi...

gtate1914

•5 years ago

16 Replies

Difficult getting below 5mg

Hi! I managed to get to 3mg prednisolone going down by 1mg each month but after a few days on 3mg I am experiencing severe fatigue again. This happened before...

Hi! I managed to get to 3mg prednisolone going down by 1mg each month but after ...

Suin555

•5 years ago

9 Replies

Diabetes Type 2 finally.

Have mentioned this in a reply to another post. Today my doctor has prescribed me Metformin to address my blood sugar levels. I have tried (not massively but...

Have mentioned this in a reply to another post. Today my doctor has prescribed ...

IdasMum

•5 years ago

25 Replies

CANADIAN WEBSITE

Is there a Canadian web site for PMRGCA as l live in Canada?

Ryliefew123dogcat

•5 years ago

37 Replies

Diet

RE: Diet Thanks to all the members who replied to my post yesterday. The advice and encouragement was just what I needed. I feel far more positive today. The...

RE: Diet Thanks to all the members who replied to my post yesterday. The advice ...

Jeanjean16

•5 years ago

3 Replies

Tapering from 20mg to 15 mg

Well my journey continues with PMR 2/12 30 mg on prednisone 3/5 tapered to 20 mg 3/26 will go to 15 mg Anybody had any effects when going to 15 mg so far I...

Well my journey continues with PMR 2/12 30 mg on prednisone 3/5 tapered to 20 ...

jensen0518

•5 years ago

5 Replies

Pred & Blood Glucose level effects - Example

Oh takes his pred between 5 & 6 am (both of us getting up for loo) Being a nightowl his breakfast is some hours later, any time between 10 and 11.30. Example...

Oh takes his pred between 5 & 6 am (both of us getting up for loo) Being a night...

Nuff1

•5 years ago

18 Replies

Lost emails

Hello. I am wondering if anyone can help. My daily email for the previous day's posts ceased after the 12th March. Does anyone have any idea why and what...

Hello. I am wondering if anyone can help. My daily email for the previous day'...

Hidden

•5 years ago

4 Replies

GCA. & Myself!! "Be Careful Out There!" Watch That Shin With The Roids! Ouch! Another One!

Shinned it again! No rational explanation other than not wearing slippers! To any mates out there mind those socks on the stair carpet! " Will I ever learn!!...

Shinned it again! No rational explanation other than not wearing slippers! To an...

Hidden

•5 years ago

20 Replies

HOW TO GET CORTISONE INJECTION IN THE UK on NHS

I was diagnosed with PMR in February. Then put on prednisone. I have high blood pressure and have read that if one has high blood pressure one should have...

I was diagnosed with PMR in February. Then put on prednisone. I have high blood ...

Granny72

•5 years ago

17 Replies

Insomnia with Dexamethasone

Hi I was diagnosed with PMR in January. I was prescribed Predisolone at first which caused stomach problems. I am now on Dexamethasone which gives me...

Hi I was diagnosed with PMR in January. I was prescribed Predisolone at first w...

Juleslancs

•5 years ago

13 Replies

Ladies' underwear: Sadie the bra lady. Sorry guys - though the wife might be interested

A few weeks ago there was a thread about fitting ladies underwear and I mentioned Sadie. I had the newsletter today and she is retiring :( I thought the...

A few weeks ago there was a thread about fitting ladies underwear and I mentione...

PMRpro

Ambassador•5 years ago

6 Replies

Diet

After putting on two stone over the three and a half years of steroids (5m.g. At the moment). I decided to join Slimming World. First week I lost 7 pounds, I...

After putting on two stone over the three and a half years of steroids (5m.g. At...

Jeanjean16

•5 years ago

84 Replies

PMR or migraine

I’ve had a pain right across the back of my skull for five days with nausea and feeling not quite with it. Doctor says PMR doesn’t normally cause neck pain and...

I’ve had a pain right across the back of my skull for five days with nausea and ...

Pinkpepper

•5 years ago

16 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for March 2019

GCA/PMR

Anyone not taking prednisone

Cataract surgery complication

Flair or Prednisone withdrawals

Pmr confirmed

Gca steroids

ENT doctor said I have “terrible” TMJ

Shingles Vaccination

Daisy-Roots: my pill cutter

Anyone using the HU App?

Oh No.....

Interesting Read

One For The Bikers (OH on 12.5 - 10mg Pred)

Overload...

First time Rheumatologist, not happy

Always look on the Bright Side.

good cbd oil info

Difficult getting below 5mg

Diabetes Type 2 finally.

CANADIAN WEBSITE

Diet

Tapering from 20mg to 15 mg

Pred & Blood Glucose level effects - Example

Lost emails

GCA. & Myself!! "Be Careful Out There!" Watch That Shin With The Roids! Ouch! Another One!

HOW TO GET CORTISONE INJECTION IN THE UK on NHS

Insomnia with Dexamethasone

Ladies' underwear: Sadie the bra lady. Sorry guys - though the wife might be interested

Diet

PMR or migraine

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