I looking for advice from anyone who is, or has been, very short of breath on exertion. I was doing fine on the dead slow taper and was at 15 mg, but in June I had a bleed caused by cardiac medications. The hospital Doc put me up to 30 mg so I had to start tapering all over again. By September, I was down again to 15mg, I developed shortness of breath when exerting myself at simple things like dishwashing, bed making, etc. I know this is a great excuse to lie on the couch all day, but trying to maintain a life here.
My GP keeps telling me I have steroid myopathy as I have muscle weakness in arms and thighs and must keep the taper going. Now at 12.5 mg on alternate days, the breathlessness is not improving. Lungs are ok after CT scan of arteries, heart (2 stents) ok. I can walk 2-3 blocks despite being short of breath.
Thanks for your advice and best wishes to all.