Although I have not been heard from lately, I always follow what is going on in the GCA/PMR world. I thought I would share my latest happenings to see if anyone else has the same problem. Although I have had GCA?PMR for 3.5 years and have often wondered why unlike most people I attend the Nephrology clinic. Last week whilst waiting for my turn to see the consultant I was approached by a nurse who took me into a small room and asked if I would consent to taking part in research into people with rare kidney illness as I was the only one in the area with this illness. Of course I agreed but was amazed that no person had ever told me I had rare kidney illness. I have asked many doctors but to no avail. I have of course since found out that GCA can affect the kidneys and this is why I take Mycrophenolate every day. To make things worse, the clinic could not find my file so after two hours of waiting I was actually told this and then told the doctor had been called away. Thus I could not ask for an explanation. I have another appointment for the 21st January when I will.
Has anybody out there been told that their kidneys are affected by GCA and if so what does this mean. As I am stuck at 7mg of Prednisolone, I think I will stay there until I find out more.
Thanks to everybody out there and the funny letters. Please keep them up.