Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,342 members • 38,113 posts

All posts for April 2018

Sweat Head is Around the Corner!

I am going to be reducing from 7 mg to 6 mg of Prednisone tomorrow and am excited to get down a bit more! As the weather here at home gets a bit warmer from...

I am going to be reducing from 7 mg to 6 mg of Prednisone tomorrow and am excite...

Amber1414

•6 years ago

15 Replies

recently diagnosed

I was diagnosed with Polymyalgia February 2018, had temporal biopsies bilateral 4-4-18 and tested positive for Giant Cell/temporal arteritis . They have...

I was diagnosed with Polymyalgia February 2018, had temporal biopsies bilateral...

pwalker801

•6 years ago

15 Replies

Fired by my rheumy reply

Thank you everyone for your replies and support on getting kicked out of the practice. Hopefully my GP will be Ok, and I can find a better doctor....

Thank you everyone for your replies and support on getting kicked out of the ...

Mstiles

•6 years ago

49 Replies

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Prednisolone & Mycophenolate withdrawal symptoms - severe night sweats and hot flushes. Is this withdrawal symptoms?

Please can anyone advice me if they got terrible night sweats, and hot flushes through the day, when withdrawing from Prednisolone, and how long it will take...

Please can anyone advice me if they got terrible night sweats, and hot flushes t...

lindyloo25

•6 years ago

13 Replies

An interesting article!

So I am always very wary of sharing info or theories regarding possible underlying contributors and causes of PMR. I am not a doctor or a scientist have no...

So I am always very wary of sharing info or theories regarding possible underlyi...

Mariemcdo

•6 years ago

4 Replies

Fired by my rheumy!

I just got kicked out of my rheumys practice because I’m still on 40 mg and didn’t reduce to 30 as he instructed several times. “Labs are perfect!” He...

I just got kicked out of my rheumys practice because I’m still on 40 mg and ...

Mstiles

•6 years ago

83 Replies

What PMR looks like on the inside

This is how it all started…..These are pictures of my left knee during an unnecessary surgical arthroscopic procedure. In 2016, I slipped on ice and my knee...

This is how it all started…..These are pictures of my left knee during an unnece...

Marie1479

•6 years ago

12 Replies

PolyBursitis Rheumatica & Bacon Sandwiches

Hello everyone, Had my 2 month visit with my Rheumatologist last week. My first question was what exactly happens in the body with PMR? She said PMR is...

Hello everyone, Had my 2 month visit with my Rheumatologist last week. My first...

Marie1479

•6 years ago

47 Replies

Clean bill of health

After a bunch of blood tests to get a baseline because of my great age, saw my doctor this morning. Everything is "great" and even CRP is normal, first time...

After a bunch of blood tests to get a baseline because of my great age, saw my d...

HeronNS

•6 years ago

29 Replies

AVASCULAR NECROSIS OF THE HIP

Hey Pollys, I was so happy to be diagnosed, a few months ago, withPMR, after 2 years of pain, and find myself, blissfully, pain free, thanks to the wonder of...

Hey Pollys, I was so happy to be diagnosed, a few months ago, withPMR, after 2 y...

caterpillar

•6 years ago

11 Replies

Rheumy appointment after root canal

Well I’m off to see the rheumy today and pretty apprehensive since I haven’t reduced from 40 to 30 as he wanted me to do. I had planned to print out some...

Well I’m off to see the rheumy today and pretty apprehensive since I haven’t ...

Mstiles

•6 years ago

6 Replies

Ask your doctor??

https://www.theguardian.com/commentisfree/2017/feb/09/three-questions-that-every-patient-should-ask-their-doctor While doing some "sideways" reading of today's...

https://www.theguardian.com/commentisfree/2017/feb/09/three-questions-that-every...

PMRpro

Ambassador•6 years ago

21 Replies

Flight socks

Marcy47

•6 years ago

9 Replies

Metatarsalgia

For the past year or so I have been suffering from sore feet (mainly the ball of the foot) which the Podiatrist calls Metatarsalgia. Also have fallen arches...

For the past year or so I have been suffering from sore feet (mainly the ball of...

podo

•6 years ago

14 Replies

Advice please

Have got down to 7 using the dsns method without too much drama. Aches in shoulders but fade as day goes on and been a bit more tired of late. Anyway my...

Have got down to 7 using the dsns method without too much drama. Aches in should...

Hollyseden

•6 years ago

25 Replies

Happy Birthday

Happy Birthday Dorset Lady🎉🎂🍧🎉

Baileyw06

•6 years ago

1 Reply

Birthday

Wishing DorsetLady a very happy birthday!! maryanne

MaryA_

•6 years ago

1 Reply

Steroid timing at low dose

Hello All, I’m at 7mg for GCA and am suddenly unable to get through the day energy wise. At higher doses Pred made me feel drunk so it has suited me well to...

Hello All, I’m at 7mg for GCA and am suddenly unable to get through the day ener...

SnazzyD

•6 years ago

18 Replies

Interesting paper on steroid effects on fat cells by time of day.

https://medicalxpress.com/news/2018-04-stress-hormone-pulses-weight-gain.html Paper explorers how and when cortisol normally leads to fat being deposited in...

https://medicalxpress.com/news/2018-04-stress-hormone-pulses-weight-gain.html Pa...

Stravaman

•6 years ago

11 Replies

Birthdays

Happy Birthday, Dorset Lady, have a lovely day. I, too, had my birthday on 30th March. I was 70, can't believe it, where have the years gone. We celebrated...

Happy Birthday, Dorset Lady, have a lovely day. I, too, had my birthday on 30th...

PatB1948

•6 years ago

9 Replies

New to PMR

Hi, I was diagnosed with PMR about a month ago. First dose of Prednisolone was 20 mg for 2 weeks, then 15 mg for 2 weeks and I am now a few days into a daily...

Hi, I was diagnosed with PMR about a month ago. First dose of Prednisolone was 2...

BellaBoo61

•6 years ago

39 Replies

guess who has a birthday wed 4 april?????????????????

HAPPY HAPPY BIRTHDAY, DORSETlady. May you have a truly marvellous day, and be spoilt rotten!! Thank you for all your wise words, encouragement, and top tips...

HAPPY HAPPY BIRTHDAY, DORSETlady. May you have a truly marvellous day, and be sp...

karools16

•6 years ago

129 Replies

Update on the Downdate.

Delightful appointment with my GP. He was stunned by my collapsed discs and the osteoarthritis, offered to prescribe a shopping trolley, but thought a Dopler...

Delightful appointment with my GP. He was stunned by my collapsed discs and the ...

fren

•6 years ago

34 Replies

I’m getting my positive head on...

Last 3 days I’ve walked 10 miles (total) and do feel better when I push myself to walk rather than letting the fatigue drag me down. So 2 walks today, a mile...

Last 3 days I’ve walked 10 miles (total) and do feel better when I push myself t...

Soraya_PMR

•6 years ago

33 Replies

Paradoxical reaction to prednisolone? Help!

I've been posting on the LupusUK site for a while, but have what seems to be related to my response to prednisolone. It is so severe that I am now housebound,...

I've been posting on the LupusUK site for a while, but have what seems to be rel...

whisperit

•6 years ago

5 Replies

Replys to my question.

I would just like to thank everyone who has taken time to reply to my worries. Having only been diagnosed with GCA 7 weeks ago, they are very helpful and...

I would just like to thank everyone who has taken time to reply to my worries. H...

sharonnorfolk

•6 years ago

3 Replies

Biologics Differ in Safety Risks - Infection risks higher for Tocilizumab (aka Actemra)

Hmmmmmmm? https://www.medpagetoday.com/rheumatology/arthritis/72107

Hidden

•6 years ago

38 Replies

Moonface

Does it ever go? Will it get better the lower my dose of prednisone? I know it shouldn’t matter but it does ☹️

Does it ever go? Will it get better the lower my dose of prednisone? I know it s...

1964-karina

•6 years ago

35 Replies

Chocolate can’t do this???

Some of you may remember my post about the nutritionist visit and I’ve been off gluten and sugar past two months. I’ve also been tapering down using tortoise...

Some of you may remember my post about the nutritionist visit and I’ve been off ...

Allsgrandso

•6 years ago

75 Replies

2 weeks on 15mg - what next?

Thank you all for being there and for your continued advice. I have been on 15mg prednisolone for 2 weeks. When i was diagnosed with PMR my GP prescribed 30mg...

Thank you all for being there and for your continued advice. I have been on 15m...

MakingDo

•6 years ago

14 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for April 2018

Sweat Head is Around the Corner!

recently diagnosed

Fired by my rheumy reply

Prednisolone & Mycophenolate withdrawal symptoms - severe night sweats and hot flushes. Is this withdrawal symptoms?

An interesting article!

Fired by my rheumy!

What PMR looks like on the inside

PolyBursitis Rheumatica & Bacon Sandwiches

Clean bill of health

AVASCULAR NECROSIS OF THE HIP

Rheumy appointment after root canal

Ask your doctor??

Flight socks

Metatarsalgia

Advice please

Happy Birthday

Birthday

Steroid timing at low dose

Interesting paper on steroid effects on fat cells by time of day.

Birthdays

New to PMR

guess who has a birthday wed 4 april?????????????????

Update on the Downdate.

I’m getting my positive head on...

Paradoxical reaction to prednisolone? Help!

Replys to my question.

Biologics Differ in Safety Risks - Infection risks higher for Tocilizumab (aka Actemra)

Moonface

Chocolate can’t do this???

2 weeks on 15mg - what next?

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