Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,925 members • 39,411 posts

All posts for April 2018

“My Rheumy Rocks”

Those that can't do.... rant. https://rantingsofamadwomanblog.com/2018/04/19/my-rheumy-rocks/ Quelle surprise! No "warning," ... suitable for everyone.

Those that can't do.... rant. https://rantingsofamadwomanblog.com/2018/04/19/my-...

Hidden

•6 years ago

18 Replies

Going back to work

I have been back to work now for 4 weeks and I am coping. Pred reduced to 10 mg, the first few days were hell, I thought I had a relapse. My body soon adjusted...

I have been back to work now for 4 weeks and I am coping. Pred reduced to 10 mg,...

Horizon12

•6 years ago

9 Replies

No rhyme or reason

I’m stumped. I’m feeling lousy. Diagnosed and on prednisone for 6 weeks. Was feeling 70% better. Have not done anything out of the ordinary ( I think). Last...

I’m stumped. I’m feeling lousy. Diagnosed and on prednisone for 6 weeks. Was fee...

aladymo

•6 years ago

28 Replies

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Wish Me Luck! Update #1

A week or so ago I put up a post entitled “Wish Me Luck!” because I was just starting a challenging 6 Week food elimination programme designed to support...

A week or so ago I put up a post entitled “Wish Me Luck!” because I was just sta...

xdbx

•6 years ago

33 Replies

Going away for country break not near hospital. How much pred should I take to ward off GCA in case of symptoms. 2nd time PMR.

Wish to take some pred with me as a precaution. When I had PMR the first time I took 60 mg with me each time. Wondering if the guideline has changed over the...

Wish to take some pred with me as a precaution. When I had PMR the first time I ...

janimaths

•6 years ago

10 Replies

Rheumy appointment

Saw Rheumy this morning - came away disappointed and annoyed. Usual statements made - been on steroids over a year / currently on 16mg, only give 15 mg for...

Saw Rheumy this morning - came away disappointed and annoyed. Usual statements ...

Hidden

•6 years ago

68 Replies

Eye clinic

hi is there anyone with gca living in Shropshire would love to know what treatment you are receiving I am so frustrated with my care doctors did not realise I...

hi is there anyone with gca living in Shropshire would love to know what treatme...

Ellesmere321

•6 years ago

10 Replies

Well that was an interesting day!

Have been feeling quite rough following my return from holiday, 0 energy, scalp quite tender, some symptoms of PMR returning, tongue felt swollen, teeth/jaw a...

Have been feeling quite rough following my return from holiday, 0 energy, scalp ...

Mike1964

•6 years ago

17 Replies

Big toe pain this morning

Hi well this is wierd, I woke up this morning to a very painful big toe. It felt a bit like cramp , Throbbing etc. I had a Pilates class at 10 which did seem...

Hi well this is wierd, I woke up this morning to a very painful big toe. It felt...

9lives

•6 years ago

18 Replies

2nd appointment with consultant & the goalposts seem to have shifted!

As I said in my 1st, rather anxious Post on this forum just over a week ago, I was pretty apprehensive about my 2nd appointment with the consultant today. At...

As I said in my 1st, rather anxious Post on this forum just over a week ago, I w...

Hidden

•6 years ago

17 Replies

Sed rates and IVIG (gammagobulin infusion).

I get gammagobulin every month through a 6 hr infusion for CVID. Got it on Weds and saw rheumatologist on thurs for the GCA/PMR. She had sed rate fine on...

I get gammagobulin every month through a 6 hr infusion for CVID. Got it on Wed...

Leeleep

•6 years ago

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Disillusioned

Well all, after my JC appointment today. I really have lost the plot. I am expected to work 40 hours a week and have to travel up to 90 minutes each way for...

Well all, after my JC appointment today. I really have lost the plot. I am expec...

morrison

•6 years ago

27 Replies

Prolia side effects

Hello, I have been diagnosed with GCA for 6months and wrote a couple of weeks ago re alternatives to alendronate as I have suffered from GERD for 15 years and...

Hello, I have been diagnosed with GCA for 6months and wrote a couple of weeks ag...

jennifer15

•6 years ago

8 Replies

Poly or fibro?

Hi again..some NEW symptoms have begun to pop around---- oh joy! Initially, my GP diagnosed me with polymyalgia, due to the weakness and pain in my arms,...

Hi again..some NEW symptoms have begun to pop around---- oh joy! Initially, my G...

billinSurbiton

•6 years ago

5 Replies

Gabapentin Trip!?

I had a good experience at my GP appointment yesterday; he listened to all the feedback I received from many of you (Thank you!) about the dosing protocol for...

I had a good experience at my GP appointment yesterday; he listened to all the f...

billinSurbiton

•6 years ago

17 Replies

Today's the day!

We don't know whether the teddy bears are having their picnic, but the NICE guidance for the use of tocilizumab (Roactemra) are published this morning on the...

We don't know whether the teddy bears are having their picnic, but the NICE guid...

Polywotsit

PMRGCAuk team member•6 years ago

11 Replies

GCA And PMR

Having GCA and PMR since July 2015 cannot get below 15 without a flare Doctor said must stay at 15. Has anyone else had this problem?

Having GCA and PMR since July 2015 cannot get below 15 without a flare Doctor sa...

Skrtjg

•6 years ago

8 Replies

Hi

Hello. I am new. Thanks

Uritron

•6 years ago

7 Replies

Another day done.

Well just to keep you all posted. I had the photographs done today for my home. They were so nice. I would have bought my own home. Made me feel sad because I...

Well just to keep you all posted. I had the photographs done today for my home. ...

morrison

•6 years ago

17 Replies

Autoimmune Deficiency and the Second Genome

The BBC’s programme “The Second Genome” (second episode today at 11:00am) describes how the contents of our gut bacteria can dramatically affect our health....

The BBC’s programme “The Second Genome” (second episode today at 11:00am) descri...

Richard_yeayea

•6 years ago

12 Replies

do doctors know what they are talking about

I doubt it I had polymyalgia for a long time and a consultant at the hospital finally pronounced me cleared so I could go away and not have to be seen by...

I doubt it I had polymyalgia for a long time and a consultant at the hospital fi...

kingharold11

•6 years ago

6 Replies

Prescribed Latanoprost for elevated eye pressure

I had saw my eye specialist last week and was told my eye pressure was high in my right eye. My optic nerve and field of vision show no GCA damage or...

I had saw my eye specialist last week and was told my eye pressure was high ...

Mstiles

•6 years ago

23 Replies

PMR What The Heck

Diagnosed in March 2018, placed on 40mg of prednisone a day. Been weaned down to 15mg a day. Prior to being placed on pred, it felt like I lifted weights all...

Diagnosed in March 2018, placed on 40mg of prednisone a day. Been weaned down t...

zag1999

•6 years ago

18 Replies

Flare after zero pred for 6 months?

Hi Everyone, feeling confused as i have been off Preds since Oct 2017 after tapering very slowly. Have generally been doing ok with minor occasional aches. My...

Hi Everyone, feeling confused as i have been off Preds since Oct 2017 after tape...

PJPS

•6 years ago

39 Replies

Hello

Hi I’m a 63 yr old male, who’s had PMR since the end of 2015 . Before getting this annoying illness I had been a regular runner for nearly 30 years . My...

Hi I’m a 63 yr old male, who’s had PMR since the end of 2015 . Before getting th...

Runnerman

•6 years ago

15 Replies

Just to say Thank You.

Thank you all so much for you kind words, special messages and thoughts. I am so sorry for worrying you all. Just had a really bad week with everything. The...

Thank you all so much for you kind words, special messages and thoughts. I am so...

morrison

•6 years ago

16 Replies

It’s our own fault we are ill!!!

Taking note of doctors whilst in hospital recently I realize: I don’t drink enough (1 1/2 ltrs per day) I don’t eat enough (has anyone come accross a hospital...

Taking note of doctors whilst in hospital recently I realize: I don’t drink enou...

Constance13

•6 years ago

25 Replies

MRI with injection

Hi all, I’m not on often but look at all and appreciate all the information. I just watched a tv program about chuck Norris’s wife and what happened after she...

Hi all, I’m not on often but look at all and appreciate all the information. I j...

dinhal

•6 years ago

11 Replies

Poopadoop!

I can’t reply to you. I just got catapulted to a list of posts with a space for me to do a new post at the bottom. Why can’t they just leave it alone, maybe...

I can’t reply to you. I just got catapulted to a list of posts with a space for ...

SheffieldJane

•6 years ago

21 Replies

Diagnosed 7 days ago

Hi. I was diagnosed (on my birthday) with PMR after 5 weeks of worsening hip, bum and thigh pain and stiffness, plus falling asleep and generally feeling...

Hi. I was diagnosed (on my birthday) with PMR after 5 weeks of worsening hip, b...

JoanS

•6 years ago

56 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for April 2018

“My Rheumy Rocks”

Going back to work

No rhyme or reason

Wish Me Luck! Update #1

Going away for country break not near hospital. How much pred should I take to ward off GCA in case of symptoms. 2nd time PMR.

Rheumy appointment

Eye clinic

Well that was an interesting day!

Big toe pain this morning

2nd appointment with consultant & the goalposts seem to have shifted!

Sed rates and IVIG (gammagobulin infusion).

Disillusioned

Prolia side effects

Poly or fibro?

Gabapentin Trip!?

Today's the day!

GCA And PMR

Hi

Another day done.

Autoimmune Deficiency and the Second Genome

do doctors know what they are talking about

Prescribed Latanoprost for elevated eye pressure

PMR What The Heck

Flare after zero pred for 6 months?

Hello

Just to say Thank You.

It’s our own fault we are ill!!!

MRI with injection

Poopadoop!

Diagnosed 7 days ago

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