Hi. I was diagnosed (on my birthday) with PMR after 5 weeks of worsening hip, bum and thigh pain and stiffness, plus falling asleep and generally feeling unwell, then followed 2 weeks of the same affecting my shoulders, arms and neck which left me barely able to turn in bed as everything hurt so much and creeping around wondering just what was happening to me. Im 62 and and had been leading a full energetic, active fun life.
The blood tests with elevated inflammatory markers, led my doctor to diagnose PMR.
I had sort of expected this diagnosis, having searched so many websites, but It still hit me badly, I felt upset, shocked and very anti steroids.. but was persuaded that without prednisolone, this condition would not recover. The doctor told me that within just a couple of days I would feel as I had before the symptons, Id be energetic, feeling i could take on the world.
Ive been started on 15mg x 2wks, reducing down over 6 weeks to 10mg,, and going from there.
So im on day 7. Yes i am 75% free of the pain and prob similar on the stiffness, though i still have limited left arm range of movement and still have to haul myself out of the car. But i cant believe how fatigued i feel,, i have a" heavyness' sometimes foggy head and just want to do nothing.
But i hate not doing anything, i'll go mad with boredom. Im trying to potter around tackling jobs indoors and the garden and go for a daily walk, but i feel im running on empty,, even when the muscles arnt hurting, i just cant 'get going'.
I guess i just read and believed so much about how euphoric i would feel by day 3 of going on steroids,,,, but im wondering, is this the reality ? I would be so very pleased to hear how others started their journey. Thank you