Bring on the Locusts: I'm NOT saying I'm unlucky... - PMRGCAuk

PMRGCAuk

20,925 members39,411 posts

Bring on the Locusts

33 Replies

I'm NOT saying I'm unlucky, BUT...

There is of course the 2 years of pain and anguish wasted on the misdiagnosis of PMR. Then, the diagnoses of BOTH PMR & GCA. The "aggressive tapering" schedule that didn't work. The unusually "high tolerance" to steroids, requiring me to be prescribed more than average to get same results. The unexpected reaction (pustules all over my face!) caused by the Facial Hair Removal Cream, for Sensitive Skin. The steroid withdrawal "sensitivity" whereby reducing by 5 mg, puts me in a "crash and burn" for about a week. And the unfortunately, abbreviated visit of my daughter and grandson; which was however, just long enough for him to pass the "Dreaded Lurgy" onto his loving Grandma, before moving on to their next port of call!

I thought I was unusually lethargic over the past several days... and last night it was all made crystal clear! The dry persistent cough, that plagued me all weekend, morphed into a Sputum Fest (Hmm, perhaps too much information?) It was/is accompanied by a runny/stuffed nose, scratchy throat, dull achey head and (if you can imagine) an even more lacklustre ME!

At this point, I am quite sure, if I look out the window I will see the swarm of locusts heading into Brighton.

Just sayin...

Read more about...
33 Replies
Pongo13 profile image
Pongo13

Just about to launch into the day and sitting in my own sputum nest .... I am going to pinch your wonderful way with words - and Lob it literally at the culprit who coughed their way through my sessions last week. I am going To invest in a face mask. I was feeling aggrieved and sorry for myself but as usual you cheer me up and I thank you once again. X

in reply to Pongo13

Ohhhh Pongo, Happy to help!!! ... but sorry you too were contaminated!

Please know that I am sitting here, laughing, in between the fits of coughing!!!

If I don't laugh... I will surely cry!

Now to just get those sheets changed without being caught? Shhhhhhhhhhhhhh.

Pongo13 profile image
Pongo13 in reply to

Indeed, laughing too much brings on a Tena moment this end, or should I say my other end.....and imagine after years of this "phrase" explaining to the hub last week that no, it didn't mean throwing tenners around...... Priceless. Have a good one. X

in reply to Pongo13

I somehow missed your explanation of that phrase... can you message it to me, please?

I am however already keen on the thought of you throwing tenners around!

GOOD_GRIEF profile image
GOOD_GRIEF in reply to

Fold a flat sheet into thirds, place it crosswise on the bed with the folds against the matress, and tuck it into the sides. Then change the pillowcases. That should hold you for a couple of days.

If you need to extend further, just rinse and repeat the replacement parts, and wait for better days.

in reply to Pongo13

My neices used to call me AJ FOR aunty Jan. Now they called me TL...yes tena lady.

PMRpro profile image
PMRproAmbassador in reply to

We used to wonder about asking for sponsorship or the charity from Tena...

SheffieldJane profile image
SheffieldJane

That makes sense Melissa. I almost welcome acute things as being “normal”. It will of course hit you harder, so no tapering and bed rest. I remember dabbing Chamomile lotion on my grandson’s chicken pox after an oatmeal bath and feeling faintly dramatic about “ the things you do for love”. I came out of it completely unscathed.

I envy you the sea air!

It can be like the plagues of Egypt. Take good care and get better soon. You actually strike me as being unusually resilient. 💐

in reply to SheffieldJane

OH SHITE!

Saturday was taper down day; from 65mg to 60mg!!!!

I've already tapered!

Should I go up?

Should I stay at 60mg??

in reply to SheffieldJane

PS - I won't actually see the locusts as they swarm into devour me, because we have "Jack the Ripper" weather conditions! It's pea soup out there!

SheffieldJane profile image
SheffieldJane

It’s your call, but it does explain why it’s been so hard. You may get away with it at the higher doses. Listen to your body and rest a lot, naturally. Is there no one else to put you in crisp clean sheets? Mr mamici1?

in reply to SheffieldJane

Yup, fool me once... I'm listening. I'm all wrapped up, snug as a bug in a rug, in the extra duvet on the couch, drinking second cup of decaf tea. Won't be moving too far from this spot the rest of the day. And you're right "screw" the sheets! I'll make Mr White (Amici is my alias!) help me tomorrow! Cheers

This is one natural remedy I like and has worked. Cut about an inch of fresh ginger into small slices. Place a cup and a half of water in a pan and boil for 5 mins. Strain into a cup with sliced lemon and honey. Ginger dries up mucus, honey lines your tubes and vit c in lemon. I might just have a cup even though I feel ok cold wise .

in reply to

Of course others might prefer a whisky Mac. That's whisky and green ginger.

in reply to

Mmmmmm, sounds warming and lovely!

Rimmy profile image
Rimmy

Oh Melissa if you HADN"T got that bug from your grandson it would not really be part of the 'normal' experience of being a grandparent. I 'fondly' remember the joys of having our THREE at 4, 2 and 1 year(s)- yes TRUE - all with what at drop off was described as 'a little bug' and 24 hours later - all (except for my partner) sitting on the bathroom floor throwing up TOGETHER !!! - oh the 'joys' of grandparenthood. In fact for a while they ALWAYS (between them) had something and even though I would do my best to avoid it all - I was often sick for weeks after they got better - which is also typical. And speaking of locusts we have some large crickets currently bouncing around our orchard - so who knows WHAT will happen next - so yes laughing is the best we can manage - and dare I say it ' 'Get Well' soon

in reply to Rimmy

So true Rimmy! So true! The first thing he's "shared" with Grandma! : )

Ahhhh, the thick fog must have scared my "locusts" away and shooed them away to you! Be careful, they are just disguised as crickets!

Insight329 profile image
Insight329

Oh gesh, the crud caught you! Hydrate, rest, hydrate, rest, hydrate, rest, hydrate, rest...you get the picture. And throw a couple of bowls of hot and sour soup in there. (Not sure of any medicinal benefits, but it always makes me feel better. Psychological, I’m sure.)

Hope you feel better soon!

(No answering the door if you hear buzzing sounds with the words ‘Candygram’...it’s those darn locusts trying to get in,)

in reply to Insight329

Hahaahahahahaha. Yes, the "crud," indeed!

Not feeling too badly at the moment... have been on the couch or working on an art project at dinning room table... and hydrating, hydrating, hydrating! Hope your day is going well Insight!

Ohhhh, there's the buzzer... I wonder who that can be?????

Sandy1947 profile image
Sandy1947

Hope the Locust take a detour! You have certainly had beyond your share of challenges from PMR/GCA. The message of slow down constantly screams at you. Living life in the crawl lane doesn’t seem to fit your personality. My sympathies.

in reply to Sandy1947

Cheers Sandy1947! Yes, the message has been coming through LOUD AND CLEAR from this amazing community, from my body, from the Universe! God knows I try... I do! However, after 50+ years of running, going, doing, seeing, managing, fixing, making, controlling, averting, designing, preventing, building, did I say CONTROLLING? It's impossible to stay in the Crawl Lane of life. I know that's the lesson. I know change won't take place until I learn the lesson, but I'll use the "excited puppy in the box" analogy... I succeed only in peeing all over myself and ending up in the corner of the box exhausted. : []

Sandy1947 profile image
Sandy1947 in reply to

Great analogy! I’m no longer a puppy but an older dog! I take lessons from my 13 year old blind, arthritic Coton de Tulear.

Pat9442 profile image
Pat9442

Has anyone found any Tena lady pants which do Not make you feel as though you are a 90year old incontinent? Like you just had the lurgy plus vomiting bug so many ‘oops’ moments. Roll on Spring

PMRpro profile image
PMRproAmbassador in reply to Pat9442

I use the mini ones - they have been all I ever needed and no different to our younger days. And if it is any consolation, it DOES improve. I'm using up left-overs now with the coughing from my lurgy but normally I don't need them.

Pongo13 profile image
Pongo13

I've survived work. Haven't a clue how I private message anyone so, mamici1, I am sure you may now have guessed a "Tena" moment is one where you lose a little bit of wee when you sneeze, cough, laugh, jump(?) etc. And Tena is the product purchased to capture said excitement....

HeronNS profile image
HeronNS in reply to Pongo13

For future reference, you can private message by clicking on your target's name. You'll go to their profile where there's an option to private message. :)

Pongo13 profile image
Pongo13 in reply to HeronNS

Right! Now I know. Thanks so much.

in reply to Pongo13

Ahhhhhhh have lots of those!!!!!! I still like the other version of the meaning where you are throwing tenners at me!!!!

PMRpro profile image
PMRproAmbassador

Ditto!!!!!!

Zebedee44 profile image
Zebedee44

It seems it never rains but it pours in your life, mamici1. Isn't rain another one of the plagues?

I take bea propolis at the very first sign of a cold and it usually wards it off. But I heard on Radio 4 today that chicken soup, garlic and ginger laced vegetable soup, and Levi Roots goat curry make you feel much better very soon.

Whatever your medecine (and I don't mean more pred) I hope you feel better very soon, take care, hugs 🤗 from me, Chrissie

in reply to Zebedee44

Many thanks. Your post made me hungry!!!

Locust snack was well sought after, crunchy and highly nutritious, apparently. The price is too high, though.

S4ndy profile image
S4ndy

Ever for a bargain and finding the silver cloud, I discovered that Tena, wanting to attract all us women who love to laugh, give away free sample packs on their website. You can have one pack every six months and choose between their products. They also send you a money off voucher. Not that I care as all my friends and family know how much I love a good laugh, but they are sent in "discreet" packaging so as not to offend your postie :D

Not what you're looking for?

You may also like...

DVD/ information for families on PMR

I recall reading that there is a DVD available for the families of those of us living with PMR . I...

Thanks for the support on this site

Hi all, I just wanted to say a big thankyou to the advice and support I received on this site...

Question regarding the cause of PMR

I was trying to explain to someone what PMR was and part-way into my explanation, they interrupted...

2nd appointment with consultant & the goalposts seem to have shifted!

As I said in my 1st, rather anxious Post on this forum just over a week ago, I was pretty...

The Lighter Side of PMR - some Alternative Experiences on the Journey? ;-)

Greetings All Well, there’s no question that PMR changes our lives. And, the powerful drugs that...