Hi everyone, Have now reached my 4th anniversary of PMR.Pred worked well for me and have always reduced carefully using the DS method. However for the past 12 months as I get below 1mg, back comes the recognisable PMR upper arm pain and stiffness. I find it hard to believe a mere 1mg could possibly have any effect and sometimes wonder if I have become mentally dependent ! However the last GP consulted, told me some people never get below 1mg. It was actually nice for the first time to see a GP who seemed to have some experience of the condition! Like many surgeries mine has constantly changing docs, difficult to see the same one twice and I have really been left to self manage, ordering prescriptions online. Of course this forum has been invaluable to that management. Thank you all. I am not unduly worried at the prospect of remaining on this minimal dose forever but it is frustrating to be so close..........
The elusive zero: Hi everyone, Have now reached my... - PMRGCAuk
The elusive zero
Written by
Wells77
To view profiles and participate in discussions please or .
4 Replies
•
PMRproAmbassador
You may find it difficult to believe that 1mg has an effect - there are plenty of people who will tell you it does! Not least the ones who got off it on exactly that grounds - and within weeks had a decent flare developing!
And as you have found - there are some doctors who think so too!
What s the DS method. 🙄
Dead slow nearly stop ,I'm going for it and seems, ok ,learnt from here , on 8 at the moment . Greek thick yogurt about 5 am with prednisolone. Woozy sometimes, will be very happy to get to 5 . Thanks to everyone .
Not what you're looking for?
You may also like...
Finally reached zero preds!
if this is normal when going from 1mg preds to Zero! Quite frustrating, I was looking forward to...
Club Zero - Malfunction
as without Mark help yesterday my post wouldn't have been on any page...think I caused an awful lot...
Club Zero - I think...
far-away time zone for the past couple of months so some major jet-lag stress. Still feeling pretty...
At zero prednisone, almost a week
weekly.
Will see Rheumy second week of November. I would like to cut the meth out some more. If I...
ZERO. with a million thanks
5 years i have at last arrived at zero, my first mention is to all the people who have given me...