Intro time. 58yo male, living in Australia (Sydney) and 'contracted' (or whatever) PMR about mid May following a shoulder operation in February and a 'perfect storm' of silly things - travel to Adelaide and poor bed/sleep, unaltered evacuation exercise (walked down 27 floors whilst still de-conditioned from the op) and a few stressors to top it off. The pain and discomfort was something else - sleeping, showering, dressing, basically everything was so damn hard. I got lucky though. I am in the military (RAN) and the doctor took one look and said PMR - you've got it! Blood tests (CRP 27 : ESR 29) then 25mg Prednisalone and that was an instant god-send, what a relief, and a bit of a confirming salvo for PMR. Next stop rheumatologist who confirmed the diagnosis, as much as they are willing to do, and I am now on the journey. I have been reading all the posts on this site, and the replies and a few comments, for what they are worth from a newbie:-
1. Great site - I bought the e-book by Kate Gilbert - compulsory reading. Not using incomprehensible doctor speak, but plain, good straight forward education and advice - great start.
2. Gaining knowledge is vital - this site is a fantastic source - the depth of experience from users is invaluable in knowing you are not alone and forming an opinion on treatments, side effects and the path of illness - they do not all count for each case, but forming a comprehensive picture is really smart.
3. Other items - I am starting on a course of MBCT (Mindfulness Based Cognitive Therapy) - using an e-book and recordings. For MBCT - read meditation, alternative pain management is the reason I am doing this - try to help me and the prednisalone along - we will see how that goes - good so far - I am mentally in a better place!
4.Remain positive. I have this PMR - it is unexpected and unwanted - but no use dwelling on the how and why, time to manage the illness and the side effects over the next months/years and maintain work life balance and a good mental outlook.
Well, that is me - I have been reading all your posts for a couple of weeks now and thank you, seriously - it does help to know you are not on your own!
All the best