Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,270 members • 37,951 posts

All posts for February 2015

Seriously fed up with this now

I was diagnosed with GCA in September last year, and after being passed from Ophthalmology clinic to Rheumatology, had it confirmed that I had been suffering...

I was diagnosed with GCA in September last year, and after being passed from Oph...

•9 years ago

Alendronic

Hi every one,can I just ask what are the long term effects of alendronic acid please, I have been on them 3years now as I do have osteo and poorly spine,I will...

Hi every one,can I just ask what are the long term effects of alendronic acid pl...

•9 years ago

Best gadget

Just before Christmas brought a new steamer a morphy richards intelligent one square in shape 3compartments with timers .Makes life so easy can put baby...

Just before Christmas brought a new steamer a morphy richards intelligent one sq...

•9 years ago

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Problems

I was diagnosed with polymialga 18 months ago and had bone density scan after 12 months of treatment which showed high risk of fractures I have been taking B3...

I was diagnosed with polymialga 18 months ago and had bone density scan after 12...

•9 years ago

PMR and GCA vs Aorta

Referring to long term GCA and PMR, has anyone been screened for aorta structural damage as descirbed in Kate Gilberts book? It seems I might have been...

Referring to long term GCA and PMR, has anyone been screened for aorta structura...

•9 years ago

STRUGGLING AGAIN!

After a flare 4 months ago (GCA) I have been very careful with trying to keep a happy medium with the steroids. I have been on 10mg now for 4 months but...

After a flare 4 months ago (GCA) I have been very careful with trying to keep a ...

•9 years ago

Too low too soon.

After two weeks on 15 mg Pred, my doctor wanted me to drop to 10mg but I persuaded him to let me go to 12.5 mg. he agreed that I should take this for two weeks...

After two weeks on 15 mg Pred, my doctor wanted me to drop to 10mg but I persuad...

•9 years ago

Beginner

I'm new to PMR and have been taking prednisolone 15mg for only a week. At first the results were miraculous. The pain almost disappeared and the fevers and...

I'm new to PMR and have been taking prednisolone 15mg for only a week. At first ...

•9 years ago

Tray...Aludronic Acid

Hello again! This forum is becoming more addictive than Facebook now and I am finding myself rushing home from work ( supposed 4g signal rubbish in our...

Hello again! This forum is becoming more addictive than Facebook now and I am f...

•9 years ago

Reducing the Steroid Sparers

Hi to all, I'm looking for some advice on how you reduce your steroid sparers. I'm using the really slow reduction plan to great effect. No flares at all and...

Hi to all, I'm looking for some advice on how you reduce your steroid sparers. ...

•9 years ago

Dentist

Hi all. Just come from dentist and I am not happy! One of my teeth is very loose and causing me a lot of pain, but would he help me, no he wouldn't . He told...

Hi all. Just come from dentist and I am not happy! One of my teeth is very loos...

•9 years ago

Leg rest

This sounds daft what hight should a footrest be just got of phone with GP heart is OK recommended that I put my legs up when sitting was so pleased forgot to...

This sounds daft what hight should a footrest be just got of phone with GP heart...

•9 years ago

Headaches

I started on 15mg of pred at the end of Nov./ beginning of December and have now decreased to 13.5mg and am about to decrease to 12mg. I do have though very...

I started on 15mg of pred at the end of Nov./ beginning of December and have now...

•9 years ago

Vit d3

Hi all. Just wondering if i should top up Vit d levels with cod liver oil capsules? I bought and took one today as the pharmacist said it was okay but, I was...

Hi all. Just wondering if i should top up Vit d levels with cod liver oil capsul...

•9 years ago

Tingling Legs

Does anyone else experience tingling/prickly sensations in their legs? I was diagnosed with PMR about 3 years ago and am now on 10mg pred (for about 6 months...

Does anyone else experience tingling/prickly sensations in their legs? I was dia...

•9 years ago

Tapering steroids after flare

I need some advice. After successfully reducing very gradually (more gradually than recommended by rheumy) I had a flare up which didn't settle and I...

I need some advice. After successfully reducing very gradually (more gradually...

•9 years ago

New Symptom

I have reduced to 17mg prednisolone from 30 and have had no problems, except the usual sleeplessness, which is lessening, but recently I have had on several...

I have reduced to 17mg prednisolone from 30 and have had no problems, except the...

•9 years ago

Calf pains

Calf pains in both legs. Came down from 7mg to 6mg pred is this the cause? Not able to walk

Calf pains in both legs. Came down from 7mg to 6mg pred is this the cause? Not a...

•9 years ago

Cutaneous Vasculitis.

Hi, just to ask what others out there might do when their vasculitis is ''switched on'' by stress. Unfortunately I am not under control of rheumy at the moment...

Hi, just to ask what others out there might do when their vasculitis is ''switch...

•9 years ago

Hello everyone

Firstly a big thank you for all your replies to my post concerning the shakes and pain in the groin, thigh and hips. However I'm still not clear as to whether...

Firstly a big thank you for all your replies to my post concerning the shakes a...

•9 years ago

Newbie

Hi everyone. I'm facing a work tribunal as had so much time off sick. I'm only (!) 54 and want to work, but as you know the minds willing but the flesh is...

Hi everyone. I'm facing a work tribunal as had so much time off sick. I'm only (...

•9 years ago

Had to increase PREDs need advice

Been reducing as RHMY dosnt think I've got PMR and wants me off steroids . So does the cardio lady. My original PRED was 15 mg and I've had a few hick up...

Been reducing as RHMY dosnt think I've got PMR and wants me off steroids . So do...

•9 years ago

Still doing quite well but I hope I am not experiencing a flare.

First thing to say is thanks to all contributors, I have found this forum so helpful in coping with GCA. The advice regarding tapering Prednisolone helped me...

First thing to say is thanks to all contributors, I have found this forum so hel...

•9 years ago

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