I was diagnosed with GCA in September last year, and after being passed from Ophthalmology clinic to Rheumatology, had it confirmed that I had been suffering from PMR for probably a year prior to that. Having started on 60 mg pred I am now down to 17.5 mg, but am reluctant to step this down further as the head pain, jaw and tongue pain are back. I don't get to see my rheumatologist until 3 March, and my ophthalmology appointment has been postponed till 17 March. They still want to keep tabs on me as I had eye damage original, though my sight was saved by the pred. I also have SVT and will be seeing cardiology again in May. I'm feeling really low today, having had to disperse my stud of Welsh Cobs due to not being able to cope with them over the winter. My last baby went at the weekend and all I have left is a couple of retirees. I know that probably by depression is partly due to tiredness, having driven 300 miles to take the boy to where he is being trained, but I am so fed up with planning my life around taking pills! If I took them and felt on top of the world I could cope, but the side effects are getting me down. I don't recognise my face in the mirror any more, and my hair is falling out, and I have a tummy for the first time in my life. I am used to people being astounded that I am 65, and querying whether I qualify for pensioner discounts, and this doesn't happen any more! Sorry, lost my sense of humour for a while. I apologise for off loading, this forum is probably the only place where people will understand how I feel.
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