After a flare 4 months ago (GCA) I have been very careful with trying to keep a happy medium with the steroids. I have been on 10mg now for 4 months but recently had a bad chest infection & was given penicillin by GP. The last few days I have felt unbalanced & tender around my scalp/left ear & then last night the full blown headache came back. I have increased my Pred this morning to 12mg & already the pain is subsiding. However, I am suffering with an attack of "The Dismals" as the steroids seem to give me every side effect possible! my GP is very understanding & is happy for me to increase as necessary but how long should I stay on this higher dose & should I start reducing by the slowly, slowly method?
I am 20 months since diagnosis & sometimes I must admit that I do feel it will never get better.
Sorry to moan, just feeling down.