Posts - PBC Foundation | HealthUnlocked

PBC Foundation

9,391 members • 8,002 posts

All posts for May 2019

Nausea with Urso

Hi everyone, I was diagnosed 6 months ago and am taking Urso 500 mg twice per day. It seems to be working, at least my liver labs haven't gotten worse. My...

Hi everyone, I was diagnosed 6 months ago and am taking Urso 500 mg twice per da...

lilygrower

•5 years ago

7 Replies

Knee pain

Hi everyone, I was diagnosed PBC negative, early stage, and have been taking Urso for 5 weeks now. For the past 2 weeks I have had a lot of pain in my knees...

Hi everyone, I was diagnosed PBC negative, early stage, and have been taking Urs...

Spanishnan

•5 years ago

7 Replies

Liver Biopsy - to ask or not to ask

My question is regarding a liver biopsy when testing positive for PBC - high reading, liver tests ok, but fatigue and a strange tight feeling around my upper...

My question is regarding a liver biopsy when testing positive for PBC - high rea...

spalatin

•5 years ago

26 Replies

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Confusing labs

Is it possible to have both PBC and Lupus?

James24

•5 years ago

10 Replies

Sleeping

Hi ladies, Last nite my husband and I were chatting and I said how tired I had been all week and been sleeping a lot, he had been away working. And his words...

Hi ladies, Last nite my husband and I were chatting and I said how tired I had ...

kimphoebe

•5 years ago

20 Replies

Plaquonil

Hi All, Anyone with PBC and Sjogrens? the hospital has just put me on Plaquonil and I read the contra indications and now Im too scared to take them! Im 76...

Hi All, Anyone with PBC and Sjogrens? the hospital has just put me on Plaquonil...

kandiepat

•5 years ago

4 Replies

Organ donor card

Hi guys hope your all well. A wee question...can you give blood and have an organ donor card if you have pbc?

Hi guys hope your all well. A wee question...can you give blood and have an orga...

BabyK

•5 years ago

13 Replies

LFT bloods weird

Hi, I hope everyone’s day is great, Isn’t this usually the impression we try to hide behind when we’re not really at our best? Hopefully it will apply to a...

Hi, I hope everyone’s day is great, Isn’t this usually the impression we try to ...

P13jne

•5 years ago

16 Replies

Elevating alp/alk

Am I rejecting Urso or is it quitting on me? My alk elevated 20 points two months ago, now it’s 91 which is 10 points higher than last month. Still in range...

Am I rejecting Urso or is it quitting on me? My alk elevated 20 points two month...

Jennyhadenough

•5 years ago

5 Replies

Red hands

I have been told I have GCA a due to see Consultant I have got red mottled hands is this to do with my liver. I am takin 60mg steroids. Thanks

I have been told I have GCA a due to see Consultant I have got red mottled hand...

jaws58

•5 years ago

20 Replies

wbc slightly elevated common with pbc

Hi everyone, my latest labs my doctor says were great however I noticed my wbc count was high at 12.9 and it was never mentioned. My plate count was normal at...

Hi everyone, my latest labs my doctor says were great however I noticed my wbc c...

tnchikadee

•5 years ago

1 Reply

Pain meds?

Pain med? With PBC my doctor doesn’t want me to take nsaids. What do people here take for pain that doesn’t change their platelets ?

Pain med? With PBC my doctor doesn’t want me to take nsaids. What do people here...

redhead1226

•5 years ago

23 Replies

New here! Question about Diagnosis

Hello! Thanks for including me in your group! A quick background on me: I am 37 years old, female. In 2014 I started getting sick with a range of symptoms,...

Hello! Thanks for including me in your group! A quick background on me: I am 37...

KEB03

•5 years ago

15 Replies

Isle of Wight - new group

Hi - I’d just like to thank Keith (hope I’ve got your name right) for arranging our first get together on the island. It was good to talk to other people with...

Hi - I’d just like to thank Keith (hope I’ve got your name right) for arranging ...

IOW-gal

•5 years ago

11 Replies

Can someone help me please

I felt a biting and burning sensation and pulled this from under the skin under my nail. To the naked eye it looked like dead skin. Zooming in with my camera...

I felt a biting and burning sensation and pulled this from under the skin under ...

Sherry4319

•5 years ago

1 Reply

Posts - PBC Foundation | HealthUnlocked

PBC Foundation

All posts for May 2019

Nausea with Urso

Knee pain

Liver Biopsy - to ask or not to ask

Confusing labs

Sleeping

Plaquonil

Organ donor card

LFT bloods weird

Elevating alp/alk

Red hands

wbc slightly elevated common with pbc

Pain meds?

New here! Question about Diagnosis

Isle of Wight - new group

Can someone help me please

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