Plaquonil

[kandiepat]

Hi All, Anyone with PBC and Sjogrens? the hospital has just put me on Plaquonil and I read the contra indications and now Im too scared to take them! Im 76 and my hands are hurting all the time. Im on Urso and Blood Pressure meds. Im inclined to just not bother taking it. Has anyone any good experiences with it? thanks Kandiepat

[jane1964]

Hello I have pbc sjogrens and vasculitis.I have been on urso for about 10 years.I started treatment for the vasculitis just over a year ago, with hydroxychloroquine ( like plaquenil) and a couple of months later added azathioprine.I found the hydroxychloroquine helped my symptoms quite a bit but I needed more treatment so the rheumatologist consultant added the azathioprine in both cases after discussion with my liver consultant, and I haven't had any side effects my doctor told me to get an eye test before I started them and every year after this.My liver has stayed ok, I am having monthly blood tests because of the azathioprine and so far everything has been ok.I was pretty scared too reading the leaflets but am glad I gave the treatments a go as they have helped me.

[mtrafter]

Hi, I have had PBC for 12 yrs and another auto immune disease Polymyalgia Rheumatica for 2yrs I have been on Plaquenil and the steroid Prednisilone since diagnosed with PMR, plenty of side effects from the steroid but none that I can tell from the plaquenil.

[Hidden]

Hi. I was diagnosed with PBC in 2014 and was put on urso. About a year prior to PBC diagnosis I was put on hydroxychloroquine due to pains in my hands and wrists. I've not noticed any side affects from either. Last year my Rheumatologist suggested I try and drop the hydroxychloroquine down to 2 tablets a day but within a few weeks I noticed the pains returning so I've gone back up to taking 4.

[Erinlynn]

I've used Plaquenil for about 6 years now. It is pretty benign overall. No side affects to speak of for me. The worst part is the eye tests they do to ensure there's no damage to your optic nerve. They aren't painful, just frequest - every 6 months.