Organ donor card: Hi guys hope your all well... - PBC Foundation

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Organ donor card

BabyK profile image
13 Replies

Hi guys hope your all well. A wee question...can you give blood and have an organ donor card if you have pbc?

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BabyK profile image
BabyK
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13 Replies
Oidra profile image
Oidra

In my forties I gave blood twice and the third time was rejected. As I felt as fit asa fiddle I never bothered to find out why and never tried again.

At 60 I was diagnosed with PBC.

bev5779 profile image
bev5779 in reply to Oidra

Did you give blood knowing you had PBC??? or did you find out you had PBC by giving blood....

Oidra profile image
Oidra in reply to bev5779

No I hadn’t got PBC in my forties, I just decided when I was refused that that was it.

I found out I had PBC when a heart murmur was being checked in 2000.

It does make you wonder if the signs were there in my forties so I am glad I never investigated why I was refused and had many blissful years of ignorance

emerich profile image
emerich

Hi Baby, I've wondered that. Interested to hear the answer.

butterflyEi profile image
butterflyEi

Hi BabyK

Your profile does not say which country you live in and I suspect the answer to your question will depend on the country. After 20 plus years of being a blood donor I no longer give blood in the UK but I believe that if you are a rare blood type and there is a need they may take your blood. As to organ donation I asked a question on the NHS Organ Donation face book page and this was their answer :-

"Having a medical condition does not necessarily prevent a person from becoming an organ or tissue donor. A healthcare professional will decide whether some or all organs and tissue are suitable for transplant, taking into account your medical history."

I hope this helps.

Wingding profile image
Wingding in reply to butterflyEi

How long have you been diagnosed with PBC and was it your decision to stop giving blood or was it refused because of your condition?

butterflyEi profile image
butterflyEi in reply to Wingding

diagnosed 2006. gave up during difficult menopause which led to a hysterectomy but would have had to give up by now due age. I was not refused on grounds of PBC as I was not diagnosed until after I had given up being a donor.

cazer profile image
cazer

As we have a dodgy type of antibody it would seem logical not to donate but this is only my personal thought on it... Sure gp surgery would know... Best wishes cazer.

Sandymh profile image
Sandymh in reply to cazer

I think the same as you cazer

BabyK profile image
BabyK in reply to Sandymh

Thanks guys

I'm in the UK and have been told I cannot give blood. Not sure about donating organs...suspect not though.

bev5779 profile image
bev5779 in reply to

Theres certain conditions where we could give organs, Ive put down that i will donate anything they want, Limbs, skin, eyes, if its good to use then they can take it... :) x

bev5779 profile image
bev5779

Cant give blood in the UK but they will take certain organs/skin/eyes/ bits and pieces thats needed at the time....

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