Posts - PBC Foundation | HealthUnlocked

PBC Foundation

9,391 members • 8,002 posts

All posts for November 2016

Organic vs Gluten free

Hi all. I have been trying to improve my diet since finding I have PBC. I opt for organic options where available and have also read that gluten free might...

Hi all. I have been trying to improve my diet since finding I have PBC. I op...

KatherineM_PBC

•7 years ago

6 Replies

So lonely,so I'll, but nearly there.

As a follow up from my last rant, thanks to everyone for the help, I may have a diagnosis. Consultant suspects autoimmune Chronic pancreatitis. I see him this...

As a follow up from my last rant, thanks to everyone for the help, I may have a ...

Lisacj

•7 years ago

5 Replies

What pain medication is safe to use?

Hello I am wondering what over the conter pain meds are safe to take when you have a headache etc? I have PBC with cirrhosis diagnosed in Sept 2016. Thanks

Hello I am wondering what over the conter pain meds are safe to take when you ha...

Sweetness_1

•7 years ago

9 Replies

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Imodium

Is it safe to take Imodium. Had diarrhoea assuming from starting urso for days now and can't keep anything down. Need a bit of relief from it!

Is it safe to take Imodium. Had diarrhoea assuming from starting urso for days n...

Chazzy

•7 years ago

9 Replies

ama positive blood test

Blood test came back with ama positive, liver biopsy was fine. Why was blood test ama positive?

Blood test came back with ama positive, liver biopsy was fine. Why was blood te...

sa03183

•7 years ago

6 Replies

Urso Side Effects

Been taking it for over a week now, all fine until last night when was sick and have been all night. Felt bit nauseaous during day but god do I feel rough now!...

Been taking it for over a week now, all fine until last night when was sick and ...

Chazzy

•7 years ago

12 Replies

Clinical trial

Has anyone been asked to participate in a new trial of FFP104 if so what are your thoughts?

Has anyone been asked to participate in a new trial of FFP104 if so what are you...

Kieraferret

•7 years ago

11 Replies

Scan and endoscopy results

Hi all. Had my liver scan and was informed it was normal nothing to show! Endoscopy also showed no varicese but did show a little acid which consultant told me...

Hi all. Had my liver scan and was informed it was normal nothing to show! Endosc...

Lindymarie

•7 years ago

3 Replies

Fibroscan

Does anyone know what their fibroscan number is? What do the numbers mean?

vvannic

•7 years ago

41 Replies

PRAYING FOR ALL OF US WITH PBC

I am 55, married to my child hood sweetheart and I have 1 son. After many test and more to go, I was diagnosed with PBC this morning. I have been researching...

I am 55, married to my child hood sweetheart and I have 1 son. After many test a...

Tina19603

•7 years ago

4 Replies

New on here with PBC

Hi all. I was diagnosed in 2013, quite by chance. Although I have a NHS Consultant who I see annually, I have rather buried my head in the sand as the only...

Hi all. I was diagnosed in 2013, quite by chance. Although I have a NHS Consult...

KatherineM_PBC

•7 years ago

5 Replies

liver pain

for the past little bit, I've been feeling a dull pain where my liver is. I'm not a doctor but that can't be good. I've also gained a TON of weight since my...

for the past little bit, I've been feeling a dull pain where my liver is. I'm no...

Becca75

•7 years ago

5 Replies

New to this forum...have a question.

Have any of you heard of getting insurance to pay for tanning as it helps with the horrible itching? I tanned 1-2x / week in may and June to prep for a trip to...

Have any of you heard of getting insurance to pay for tanning as it helps with t...

Hidden

•7 years ago

3 Replies

My specialist thinks I have PBC at age 19

My liver specialist thinks I might have PBC at age 19 just after having a baby boy. It started out with severe itching with what everyone thought was obstetric...

My liver specialist thinks I might have PBC at age 19 just after having a baby b...

Tagatha

•7 years ago

7 Replies

Iron injections - are they safe?

My ferritine level is very low (12) and I have been thinking whether I should have more iron throuhg injections (I suffer from hair loss, muscle cramps etc)....

My ferritine level is very low (12) and I have been thinking whether I should ha...

saarima

•7 years ago

3 Replies

Liver biopsy

I am booking in for a liver biopsy tomorrow, I am very nervous is there anything I should know before hand. Like. What to expect during and after 😰😰

I am booking in for a liver biopsy tomorrow, I am very nervous is there anythi...

Marysla

•7 years ago

21 Replies

Here's me too!

Me and my husband at a wedding recently 😊

Kathy71172

•7 years ago

10 Replies

I am new to this forum and interested in Diet and itching

I have had PBC for about 10 years but just recently the itching has become unbearable, it is so good to read the posts on here and know I am not alone! Has...

I have had PBC for about 10 years but just recently the itching has become unbea...

JTay

•7 years ago

13 Replies

Itching and me

For some of us this seems to be a difficult problem to deal with and I am hoping someone may have the same experience and can help with my question. In the...

For some of us this seems to be a difficult problem to deal with and I am hoping...

butterflyEi

•7 years ago

5 Replies

It's been an interesting journey

Hi all! I've been following for about 8 months. This is my first post. I was diagnosed with pbc and aih in December of last year (2015) after many years of...

Hi all! I've been following for about 8 months. This is my first post. I was dia...

Kathy71172

•7 years ago

5 Replies

Here's me 🤗

Thought I would put a picture on of me, as nice to see a name to the face 😁

Shazzamattaz

•7 years ago

30 Replies

Longevity

I am very lucky was diagnosed with pbc in december 1998, I have taken urso since that date. I do suffer with fatigue and recently the itch has returned but...

I am very lucky was diagnosed with pbc in december 1998, I have taken urso since...

paulineemily

•8 years ago

12 Replies

Access to specialist nurse

Do any of you have access to a nurse in gastroenterology who can offer support between clinic appointments ?

Do any of you have access to a nurse in gastroenterology who can offer support b...

spoul

•8 years ago

12 Replies

I'm new here

wow..a whole community. Im not alone. I was diagnosed about 25 years ago and have been taking urso for the whole time. My elevated enzymes were 600 when i...

wow..a whole community. Im not alone. I was diagnosed about 25 years ago and ha...

Bonnieanne54

•8 years ago

4 Replies

Posts - PBC Foundation | HealthUnlocked

PBC Foundation

All posts for November 2016

Organic vs Gluten free

So lonely,so I'll, but nearly there.

What pain medication is safe to use?

Imodium

ama positive blood test

Urso Side Effects

Clinical trial

Scan and endoscopy results

Fibroscan

PRAYING FOR ALL OF US WITH PBC

New on here with PBC

liver pain

New to this forum...have a question.

My specialist thinks I have PBC at age 19

Iron injections - are they safe?

Liver biopsy

Here's me too!

I am new to this forum and interested in Diet and itching

Itching and me

It's been an interesting journey

Here's me 🤗

Longevity

Access to specialist nurse

I'm new here

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