Longevity

[paulineemily]

I am very lucky was diagnosed with pbc in december 1998, I have taken urso since that date. I do suffer with fatigue and recently the itch has returned but fingers crossed only when I am tired or hot. I amso lucky to still be here and just push pbc to the back of my mind and keep going, I am 72.

[kingerm]

Well done you!

[Hidden]

Lovely to read a positive post, especially at this early hour of the morning when sleep has eluded me yet again.

[janetfolley]

Good on you yes i feel the same having had PBC for 15yrs keep fit eat healthy and push on

[Ljonesfnp in reply to janetfolley]

Am wondering if you follow gluten free diet ??

Have both PBC and autoimmune hep it seems

Have apot with liver dr next wed

[paulineemily in reply to Ljonesfnp]

No I dont follow gluton free diet, but try to eat sensible and healthily

[Hidden]

It's good to hear someone talk with this positive attitude. Helps me face the long struggle with this condition

[chrissey7]

I to am 70 still work running my own business I have several ailments ie blood pressure border line osteoporosis and a really sore back from an ongoing back problem obviously life is a struggle sometimes but positive attitude for me is every thing trying to achieve day by day and not giving in to this damn illness and remembering there are so many people worst off is what does it for me best wishes to you

[Hidden]

Lovely to hear your positive post. Long may it continue.

Best wishes xx

[Wilmahair]

Wel done Pauline. I was shocked the other day when i had a Fibroscan done on my liver and have zero liver damage after 18+ years also. I too am feeling very blessed that I was diagnosed when I was and that Urso was always available for me at a very reasonable price.

[Becca75]

It sounds like you're doing well that's great! It's good to hear that as I was diagnosed in April and often think ahead to not knowing what's in store, but then trying not to think ahead and just live day by day. But that's a great post and I'm so happy to hear that you're doing well!

[Jules-S]

Fabulous positive posts. This is what we need 😀!

[JanineNZ]

It is great to hear positive posts from people who have had pbc for many years as it gives hope that it doesn't always progress quickly. Re diet, I was diagnosed with coeliac disease around 8 years ago and have been on a gluten free diet since then. I found out I had pbc in July - although I've been exhausted and have had odd lfts for at least a couple of years - so the fact that I'd been on a gluten free diet for around 6 years beforehand obviously didn't prevent the pbc developing. I'm now eating a much more antinflammatory diet in an attempt to prevent any more autoimmune conditions developing. Hard to give up sugar and the odd wine completely, though.