Hi all. I was diagnosed in 2013, quite by chance. Although I have a NHS Consultant who I see annually, I have rather buried my head in the sand as the only symptom I have is the itching, but even this comes and goes. I recently had stomach pain and went to my GP who ran blood tests. I happened to see the Liver function test (normal range 0-50), mine was 88!!! The Doc said, try not to worry, you are seeing the Consultant next week so ask him if it's of concern!? For the last week I've been dwelling on things, have logged back onto the PBC Foundation site and registered on Health unlocked tonight, in the hope that I might be able to get reassurance from fellow PBCers!
I have never received any advice from my Consultant about diet, medications to avoid or cutting out alcohol. That will be tough, I love a glass of wine. However I have started to dwell on if/when I deteriorate, I'm only 48 with a family and I'm scared that symptoms may become unbearable.
How are you all feeling and how do you cope day to day - positive stories please
Best wishes Katherine