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PBC Foundation

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All posts for January 2013

I so waited to see neurologist for all the pain I'm in and he discharged me as after all tests and scans and him being informed of my pbc

He says he can't help me as the pain isn't caused because of pbc help

karenlesley

•11 years ago

6 Replies

What next!

Finally got round to having my smear done, with all the upset caused by diagnosis of PBC this had been sidelined for a while. I have got a small cervical polyp...

Finally got round to having my smear done, with all the upset caused by diagnosi...

Hidden

•11 years ago

2 Replies

Just about to take my first Ursogal.

3 x 250 mg per day. Can I still take Lansoprazole (acid blockers)?

berg944

•11 years ago

19 Replies

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Foods that fight Chronic Pain.

An informative slide show I already eat pretty much everything that is listed, although not on a regular basis. I will have them more often now....

An informative slide show I already eat pretty much everything that is listed, ...

Hidden

•11 years ago

4 Replies

LFT's

Hi i just wondered about my LFT's i didnt really take every thing in at the consultants app... i have noticed on a few Q and A's i was told that a normal test...

Hi i just wondered about my LFT's i didnt really take every thing in at the cons...

sooty1

•11 years ago

2 Replies

how long for esa support group payments

I won support group esa and still wating for my back paytment, they would not give me dla on seccond appeal so im now going to appeal again as have 5 stents in...

I won support group esa and still wating for my back paytment, they would not gi...

steve787

•11 years ago

3 Replies

When does liver scarring start to show? I'm hoping I'm only early stage PBC!

Hi, I'm 25 and after been sick and having elevated LFT I received a high AMA reading and was diagnosed with PBC, Dec 2012. I had an MRI scan which showed two...

Hi, I'm 25 and after been sick and having elevated LFT I received a high AMA rea...

Trista

•11 years ago

2 Replies

"The Liver - Health & Support of the Chief Metabolic Organ" - an interesting and easy read.

Worth having a look, by PBC people as well. In the end there are some bits about liver-friendly diet. http://www.pscpartners.org/PSCConf07/Liver_Health.pdf...

Worth having a look, by PBC people as well. In the end there are some bits about...

Cristina_Romania

•11 years ago

2 Replies

At least I tried

i used to work in a very demanding job, working fulltime and oncall weekends and nights. My blood results and fatigue began to take a hold so I gave up work...

i used to work in a very demanding job, working fulltime and oncall weekends and...

June9961

•11 years ago

9 Replies

ESA - Work related group need advice to be move onto the support group please

Hi Everyone, Im wondering if anyone can help me i have read on here about a few people having PBC and being in the support group for ESA, i have just received...

Hi Everyone, Im wondering if anyone can help me i have read on here about a few ...

louiseb1982

•11 years ago

9 Replies

PBC diagnosis??

Hi, I feel that I have been in limbo regarding PBC diagnosis and wondered if anyone could give me some advice. Following routine blood tests in 2007 (I...

Hi, I feel that I have been in limbo regarding PBC diagnosis and wondered if ...

Lammasue

•11 years ago

5 Replies

does having pbc affect your immune system in so much as it is weaker?

I have had pbc for 15 years. My first GP understood it and was very good but sadly has now retired. I now have a new GP who I dont think is clued up. I...

I have had pbc for 15 years. My first GP understood it and was very good but sa...

June9961

•11 years ago

19 Replies

I was diagnosed with PBC in Dec, because of elevated ALP & AMA. Had a biopsy last week. It came back as, "inconclusive."

I was diagnosed with PBC in Dec.2012, because of elevated ALP & AMA. Had biopsy last week. It came back as, "inconclusive." Has now been sent to a major...

I was diagnosed with PBC in Dec.2012, because of elevated ALP & AMA. Had biopsy ...

WendyMarie

•11 years ago

11 Replies

what are the stages that are often mentioned

Philippastcarin

•11 years ago

2 Replies

Good news and not so good news!

Good news first! I was referred to Addenbrookes to see a Heptologist ( Excellent) as my G P was not happy with gasto consultant. The Heptologist knew all...

Good news first! I was referred to Addenbrookes to see a Heptologist ( Excelle...

sooo

•11 years ago

3 Replies

Why have a liver biopsy?

My liver "specialist" says he'd like me to have a liver biopsy. I was diagnosed with PBC ten years ago and have no symptoms apart from achy bones. I...

My liver "specialist" says he'd like me to have a liver biopsy. I was diagnosed...

kaywire

•11 years ago

5 Replies

My question is below

My liver "specialist" says he'd like me to have a liver biopsy. I was diagnosed with PBC ten years ago and have no symptoms apart from achy bones. I...

My liver "specialist" says he'd like me to have a liver biopsy. I was diagnosed...

kaywire

•11 years ago

5 Replies

What happens if I don't take my URSO is a impotent?

Karlimc93

•11 years ago

6 Replies

Life expectancy for PBC sufferers ?

My mum is 56 and diagnosed with PBC. Her consultant has said she has no scarring to her liver yet and she is taking 1000mg of URSO daily. She asked about her...

My mum is 56 and diagnosed with PBC. Her consultant has said she has no scarring...

Stokoev

•11 years ago

27 Replies

Hiatus hernia

Had endoscopy and told that I now have a hiatus hernia in oesophagus,together with z-lines. Anyone else told this, and given help?

Had endoscopy and told that I now have a hiatus hernia in oesophagus,together wi...

Mary48

•11 years ago

6 Replies

Fobroscan and AIH

Does anyone know if fibroscan can replace biopsy in the diagnosis of AIH. I had a biopsy years ago when PBC was first diagnosed but the ?AIH is a recent...

Does anyone know if fibroscan can replace biopsy in the diagnosis of AIH. I had ...

crundalite

•11 years ago

3 Replies

Can I still be an organ donor?

Obviously, if something were to happen to me, no one would want my liver, but could I still donate my other organs? Can people with PBC donate blood?

Obviously, if something were to happen to me, no one would want my liver, but co...

Nissa

•11 years ago

11 Replies

Pneumonia vaccination

Has everyone had a pneumonia vaccine?

Hidden

•11 years ago

8 Replies

This question just to people diagnosed over 15years, are any of you NOT on Urso?

I was on Urso more or less for 10yrs since diagnosis in 2002 but came off it in August just passed and unfortunately my lfts are on the rise (not that they...

I was on Urso more or less for 10yrs since diagnosis in 2002 but came off it in ...

littlemo

•11 years ago

7 Replies

This is personal but our love life has changed for the worse since pbc so tired all the time not going down well with husband help xx

karenlesley

•11 years ago

7 Replies

Please help me!

Hello. My name is Zaw Zaw and I'm from Myanmar.I have one younger sister.Last year,in August, my mother was diagnosed PBC.My mother is 47 years old.I and my...

Hello. My name is Zaw Zaw and I'm from Myanmar.I have one younger sister.Last ye...

theboyzaw

•11 years ago

3 Replies

I have been diagnosed with a trapped nerve in my back what anti inflammatory can i take whilst waitng for tretment currently taking nothing

jennyspringer

•11 years ago

13 Replies

awarness colour

does anybody no wot the awerness colour is 4 pbc coz wen ive looked it up it says black on quite a few websites but then others put it as green im only askin...

does anybody no wot the awerness colour is 4 pbc coz wen ive looked it up it say...

littleman

•11 years ago

11 Replies

Liver Biopsy Results

Hi. I was diagnosed with pbc in Oct last year and have recenty had gall bladder out and liver biopsy. Today was results day and to my surprise my liver looks...

Hi. I was diagnosed with pbc in Oct last year and have recenty had gall bladder ...

hannah1973

•11 years ago

8 Replies

Good news:)

Thought I would share my news:) went to my see my consultant today for the first time and he was amazing! I do have the ANA and AMA antibodies but I don't have...

Thought I would share my news:) went to my see my consultant today for the first...

Moomin900

•11 years ago

16 Replies

Posts - PBC Foundation | HealthUnlocked

PBC Foundation

All posts for January 2013

I so waited to see neurologist for all the pain I'm in and he discharged me as after all tests and scans and him being informed of my pbc

What next!

Just about to take my first Ursogal.

Foods that fight Chronic Pain.

LFT's

how long for esa support group payments

When does liver scarring start to show? I'm hoping I'm only early stage PBC!

"The Liver - Health & Support of the Chief Metabolic Organ" - an interesting and easy read.

At least I tried

ESA - Work related group need advice to be move onto the support group please

PBC diagnosis??

does having pbc affect your immune system in so much as it is weaker?

I was diagnosed with PBC in Dec, because of elevated ALP & AMA. Had a biopsy last week. It came back as, "inconclusive."

what are the stages that are often mentioned

Good news and not so good news!

Why have a liver biopsy?

My question is below

What happens if I don't take my URSO is a impotent?

Life expectancy for PBC sufferers ?

Hiatus hernia

Fobroscan and AIH

Can I still be an organ donor?

Pneumonia vaccination

This question just to people diagnosed over 15years, are any of you NOT on Urso?

This is personal but our love life has changed for the worse since pbc so tired all the time not going down well with husband help xx

Please help me!

I have been diagnosed with a trapped nerve in my back what anti inflammatory can i take whilst waitng for tretment currently taking nothing

awarness colour

Liver Biopsy Results

Good news:)

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