Good news first! I was referred to Addenbrookes to see a Heptologist ( Excellent) as my G P was not happy with gasto consultant. The Heptologist knew all about PBC and they run a special PBC clinic, they have about 5000 patients . He has upped my URSO to 1000mg a day from 500mg. Blood tests results after 6 weeks on URSO look encouraging !
Not so good news! I need to go and have a Lumbar Puncture as they think I have M S, as well as an Underactive Thyroid and Sjorgans syndrome. From blogs I have read this seems to be the norm if you have one auto immune disease you seem to have others as well ! Does anyone have similar to me ? If so how are they managing with work etc?