Hi. I was diagnosed with pbc in Oct last year and have recenty had gall bladder out and liver biopsy. Today was results day and to my surprise my liver looks ok, im at stage 1 with an estimate of approx 20 years until the word transplant needs to be mentioned, if at all.
It was interesting to know my consultant carried out a mayo risk score, this is a mathematical calculation used to review disease activity and estimate survival in the event of a transplant.
I dont know my score, i should have asked really but I was told there was nothing for me to worry about because despite a positive AMA my liver is working ok. I am going to stay on the Urso by the way.
I do have symptoms, tiredness, muscle and bone pain, weakness, nausea etc occasionally, unfortunately though I just have to manage it as best I can because there is no easy answer to stop it.
All in all it could have been worse so I am grateful for some positive news for a change.