Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

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Active B12 test in USA?

Has anyone ever been able to find and take an active/functional B12 test anywhere in the USA? It is so frustrating that this test is unavailable in America.

Has anyone ever been able to find and take an active/functional B12 test anywher...

Greeneyecolor

•12 hours ago

2 Replies

very high B12 no injections or supplements

Has anyone had very high B12 ? My B12 has been 2000 for years .. I have peripheral neuropathy which I was told 21 years ago was caused by low B12 .. had 12...

Has anyone had very high B12 ? My B12 has been 2000 for years .. I have peripher...

lynnwin

•1 day ago

20 Replies

Stopping B12 Injections

Hi all I've just been for my 3 monthly injection only to be told that I might not be able to have them anymore!!! The nurse said that everyone who currently...

Hi all I've just been for my 3 monthly injection only to be told that I might no...

NFFC_NO1_FAN

•1 day ago

18 Replies

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Folic acid dose at night?

Does anyone take their folic acid at night, then do the B12 injection the next morning. Just wondered if that would work so the folate is ready in the body to...

Does anyone take their folic acid at night, then do the B12 injection the next m...

Chickens44

•1 day ago

5 Replies

We are missing Nahwhal10.

Dear Narwhal10 . We are missing you , and hope that all is well with you .

wedgewood

•1 day ago

4 Replies

Psoriatic arthritis - anybody diagnosed with this?

Hi guys. Just wondering if anyone had been diagnosed with psoriatic arthritis? I've been told I have arthritis (via a private MRI a few years back) but my GP...

Hi guys. Just wondering if anyone had been diagnosed with psoriatic arthritis? I...

ClaireWF1346

•2 days ago

12 Replies

Can B12 injections help with tinnitus symptoms?

Hello! I wondered if anybody had any experience with tinnitus and b12 deficiency please? I have hashimotos/ underactive thyroid that is now being successfully...

Hello! I wondered if anybody had any experience with tinnitus and b12 deficiency...

MissMonty

•2 days ago

18 Replies

B12 and dementia, a brief mention

For anyone interested, this is a mention of some new thoughts on the impact of nutrition, B12 and homocysteine on dementia. From the authors of What Doctors...

For anyone interested, this is a mention of some new thoughts on the impact of n...

Myoldcat

•3 days ago

23 Replies

B-12 Injections frequency / Hair Loss

Like many of us my hair is falling out extremely bad & month been for over 6 months. I nearly have a bald spot on the top back of my head. I just got diagnosed...

Like many of us my hair is falling out extremely bad & month been for over 6 mon...

AmberBeaver

•3 days ago

13 Replies

So much acne

Can anyone advise what to do about the acne outbreak I've got from injections?

Popcorn12345

•3 days ago

8 Replies

Convincing my brain!

So at the moment I’m trying to tell my brain 🧠 that all this work going on with my nerves is not the enemy, and it doesn’t need to think that it’s bad and to...

So at the moment I’m trying to tell my brain 🧠 that all this work going on with...

Chickens44

•3 days ago

7 Replies

NHS Guidelines 2-monthly injections for B12 deficiency patients with neurological symptoms

Hello All, Browsing the internet (as you do!) and have come across two NHS-issued documents, stating those of us with neurological symptoms should be having...

Hello All, Browsing the internet (as you do!) and have come across two NHS-issu...

New144

•3 days ago

32 Replies

Worried high MCH & MCV

Good morning all has been a worrying time for me lately. I have just been through a cancer 2WW for colonoscopy due to high amount of blood in Q-Fit stool...

Good morning all has been a worrying time for me lately. I have just been throu...

Ipsofacto01

•4 days ago

15 Replies

is a glass or two of red wine so bad?

I know the whole subject of alcohol whilst on B12 injections has probably been debated to death but is it really that bad? Can it actually do any real harm to...

I know the whole subject of alcohol whilst on B12 injections has probably been d...

Chickens44

•4 days ago

11 Replies

I feel like crying ...

Hi Guys I need cheering up please. As you know I was dx with PA by my GP in Oct 2022 with a B12 0f 106 ng/L. Vitamin D and folate were also rock bottom....

Hi Guys I need cheering up please. As you know I was dx with PA by my GP in ...

Wwwdot

•4 days ago

37 Replies

PA and the Dentist

I have found someone who understand PA ! My new dentist. I have had PA since 2015 and this is only the second person. The other was a physiotherapist whose...

I have found someone who understand PA ! My new dentist. I have had PA since 2...

purpleabc

•5 days ago

28 Replies

MCV values

Hi all. Happy to post full bloods if need be, but wondered if any blood experts on here could explain why my MCV value would have gone from 96 just before I...

Hi all. Happy to post full bloods if need be, but wondered if any blood experts ...

Laverdista

•5 days ago

3 Replies

Intrinsic factor antibody test results

hi all, I have been experiencing a number of health issues recently and have had an Intrinsic factor antibody test. Please see photo for result, is this a...

hi all, I have been experiencing a number of health issues recently and have ha...

ClaireFa

•5 days ago

10 Replies

B12 blood test result explained?

hi all. I have been told my GP that my B12 levels are low and that I need to take a supplement lifelong. My results a show Plasma vitamin B12 level - 49...

hi all. I have been told my GP that my B12 levels are low and that I need to ...

HP12

•5 days ago

6 Replies

Numb lips

Random question, I've always had mouth ulcers and mild glossitis mainly tongue looks smoother and crimped around the edges when I'm due an injection. For the...

Random question, I've always had mouth ulcers and mild glossitis mainly tongue l...

Clare184

•6 days ago

8 Replies

IBS stomach issues

For years we have experienced stomach issues and pain while eating pretty much anything. We have tried the fodmap diet, and medications. We have now done a...

For years we have experienced stomach issues and pain while eating pretty much a...

Greenbulldogs

•6 days ago

3 Replies

folate injections

Hello, does anyone on here inject their own folate for deficiency? I’m thinking of doing this and would appreciate any help or new knowledge. Many thanks ☺️...

Hello, does anyone on here inject their own folate for deficiency? I’m thinking ...

Beck71

•6 days ago

6 Replies

folate deficiency and extensive bowel surgeries. Is there any causal link?

Dose any inject their own folate and is their anyone out there with Short Bowl Syndrome with vitamin and mineral deficiencies?

Dose any inject their own folate and is their anyone out there with Short Bowl S...

Beck71

•6 days ago

1 Reply

Query of whether I have Pernicious Anaemia

I have been told by one Dr that I have Pernicious Anaemia as my B12 was low this year and last year. My ferritin was also low. I had been on a high dose of...

I have been told by one Dr that I have Pernicious Anaemia as my B12 was low this...

Jacklover

•6 days ago

7 Replies

question with PA antibodies on our stomach lining

hello everyone, I have PA and gastritis and recovering from B12D on 4th month inj. lets see if I can word this correct with my question. So the antibodies...

hello everyone, I have PA and gastritis and recovering from B12D on 4th month i...

JesusMercy60

•6 days ago

3 Replies

Needles ?

Hi, Can anyone advise what needle I need for these ampoules, my current syringe is too small to draw up all the liquid in the ampoule & therefore I am...

Hi, Can anyone advise what needle I need for these ampoules, my current syringe ...

jamjar67

•6 days ago

6 Replies

Is it possible to overdo the self-injecting of B12?

Hello All! Hope everyone's doing OK today. I'd welcome thoughts on my SI journey so far. I've been injecting the B12 for a fortnight now (daily, with only...

Hello All! Hope everyone's doing OK today. I'd welcome thoughts on my SI jour...

New144

•6 days ago

10 Replies

High Intrinsic Factor

Hello, I am new to the group and full of questions. My father had pernicious anemia so when I started feeling off after months of trying to figure out what...

Hello, I am new to the group and full of questions. My father had pernicious...

ASHT007

•7 days ago

5 Replies

B12 Deficiency

hi everyone, just wanting peoples thoughts or advice on the following: I had a B12 serum test done which showed my B12 was low at 188 on the 28th of august....

hi everyone, just wanting peoples thoughts or advice on the following: I had a ...

Hammy2024

•7 days ago

13 Replies

Helicobacter Pylori

With my understanding of the medicial field including research I decided to study antibiotics as being appropriate for healing from B12 associated issues and...

With my understanding of the medicial field including research I decided to stud...

WIZARD6787

•7 days ago

8 Replies

Write a post or ask a question

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

Active B12 test in USA?

very high B12 no injections or supplements

Stopping B12 Injections

Folic acid dose at night?

We are missing Nahwhal10.

Psoriatic arthritis - anybody diagnosed with this?

Can B12 injections help with tinnitus symptoms?

B12 and dementia, a brief mention

B-12 Injections frequency / Hair Loss

So much acne

Convincing my brain!

NHS Guidelines 2-monthly injections for B12 deficiency patients with neurological symptoms

Worried high MCH & MCV

is a glass or two of red wine so bad?

I feel like crying ...

PA and the Dentist

MCV values

Intrinsic factor antibody test results

B12 blood test result explained?

Numb lips

IBS stomach issues

folate injections

folate deficiency and extensive bowel surgeries. Is there any causal link?

Query of whether I have Pernicious Anaemia

question with PA antibodies on our stomach lining

Needles ?

Is it possible to overdo the self-injecting of B12?

High Intrinsic Factor

B12 Deficiency

Helicobacter Pylori

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