Hi guys. Just wondering if anyone had been diagnosed with psoriatic arthritis? I've been told I have arthritis (via a private MRI a few years back) but my GP is convinced it's osteoarthritis and that physio is the only way forward. I would really like to hear if anyone had this condition and whether this could be the reason for my B12D.
I am seeing my GP this week after I noticed some weird things happening with my toenails but I have lost all faith in the NHS and expect to be sent away despite all the aches and pains I have that are getting worse. Just trying to work out what is causing what! 🫣
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ClaireWF1346
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I suspect that I have it. An MRI showed arthritis and my Doc said it was probably psoriatic arthritis, rather than osteo, as I have psoriasis. But no specific treatment or tests were done. My knees feel like the top part of my leg bone is rattling around in a cup, if that makes any sense. My only advice was to put up with it as long as I could, then 'apply' for knee replacements! Gotta love NHS logic - wait til it falls apart, then think about doing something about it😏
Sounds about right 🤨 I'll be thinking about that description next time I get knee issues - my hips and shoulders seem to be taking over at the moment. The type of pain I get in my knees is usually a gnawing type of pain in the joint from the side, with swelling etc. Do you have any issues with your toenails at all, if you don't mind me asking?
Is it day to day pain? Or worse with exercise? I wake up most days as stiff as a board. I'm only 40 but first thing I am walking like someone much older, especially down the stairs. If I exercise too much, I get pain and stiffness. If I sit down too long, I get pain and stiffness.
Hello ClaireWF1346,I don't have psoriatic arthritis but I do have patches of psoriasis. And my sister has psoriatic arthritis, and B12d/PA runs in my family. Actually I can't say I don't have Psoriatic Artritis because I haven't been tested and I do have other types of arthritis like osteoarthritis, lyme arthritis and they thought rheumatoid arthritis six is why I saw my reumy last week. Now they're saying they don't think so anymore. RA gets confused with Lyme disease arthritis because they have the same markers. So for years I was told that my leg weakness and the pain throughout my body was fibromyalgia, and osteoarthritis. And it might very well be. But there's something else wrong with my blood and it's affecting my muscles and everything else, like my lungs, brain stomach, everything. When I walk my legs get very fatigued and my muscles get very sore. To where i can't take one more step and often have to sit, even on the ground, right where I am. My MPV and my MCH, P-ANCA, is always off on my medical records. I've been pointing it out for years and Dr's kept saying yes it's high but it's not that high and just poopooing it. Then I showed my rheumatologist some pictures last week of what I look like in the mornings everyday and she was pretty surprised at how swollen my face is every day and the rash that I get all over and really how swollen my legs and everything were, as well as my HR goes very low while I sleep like 43 BMP. To look at me, I look very healthy. Which is very difficult because people think there's nothing wrong with me. I'm almost 6 ft tall so I'm not a fragile looking person. So it's very difficult for people to think that there's anything wrong with me. But I insisted that there was something wrong with my blood and after I showed her those pictures she decided to run a a bunch of tests on me, two of which are called Beta-2 Glycoprotein 1 IgM and Beta-2 Glycoprotein 1 IgG. Those tests showed that my blood was too thick. Which means that it can clot and thick blood makes it very difficult to move around. you get out of breath it's like running your car on mud instead of oil. It's really just very difficult to get around and I get very fatigued and out of breath. So in 12 weeks I have to have these tests again to find out if it's still thick which I know it will be. Then I guess they'll put me on blood thinners.
This condition I think is called APS. It can really cause a lot of body pain, exhaustion, tiredness breathlessness, confusion in your brain, headaches, liver and kidney pain, Etc. B12 PA, is linked to APS. I did Google at one time if psoriatic arthritis was linked to pernicious anemia and I do believe I did read somewhere that is can be. A lot of things are linked to pernicious anemia. When you have one autoimmune condition you have many. A lot of the things that come with pernicious anemia are Hashimoto's, fibromyalgia, lupus, Sjogren's, and the list goes on so many other autoimmune conditions can be linked to it. Whether it caused it or not, other autoimmune conditions do develop.
My very long point is that don't dismiss anything and never accept Dr's that say nothing is wrong when you know it is. Persist, insist and take pictures of your symptoms. If I hadn't insisted time and time again, my blood could have cause blood clots, strokes, and heart attacks. And nobody was listening to me. This is a very serious thing so if something is wrong with you, then insist and persist. Until you find the answer. I know other people on here with pernicious anemia that have sticky blood. Don't settle for an answer that you feel is wrong.
Thank you technoid. I'm not sure i trust what they say, but one of those tests was supposed to be<20 and it was >55.7 I still have to wait another 12 weeks to take a secondary test before they can treat me for it in the meantime I feel pretty ucky.
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