Losing my hope - Chronic Gastritis! - Pernicious Anaemi...

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Losing my hope - Chronic Gastritis!

Asddtr profile image
31 Replies

It’s almost a year that I’ve been suffering from chronic gastritis. I’ve done everything – endoscopies and biopsies – and it was found to be chronic gastritis. I have lost 5 kgs. How can I overcome this? If I reduce the medication, my digestive system doesn’t work properly, and if I take the medication, everything is fine. Right now, I am taking DDR 30, Laxiza sachets, and C2 Win 1mg. If I reduce the dose, I start having the same burning sensation in my tummy. I am also careful about my diet, mostly eating roti, sabzi, rice, and avoiding spicy food. I still cannot eat red chili even after a year. Can someone tell me how long it will take to recover? Or is chronic gastritis curable or not?

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Asddtr
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31 Replies
Myoldcat profile image
Myoldcat

I sympathise, gastritis is horrible. Mine comes and goes, but I don't take any medication, just try to adapt foods and eating habits. I know some people are better if they avoid wheat and dairy, so maybe you could try that, as you mention eating roti. Have you tried taking a probiotic? Folk on here mention Symprove as being helpful, and I have used a liquid called Restore from Naked Biotics which also includes stomach soothing herbs. It really seemed to help, although if you plan to cut down your other meds alongside taking it, I would suggest doing it very slowly.

Asddtr profile image
Asddtr in reply toMyoldcat

Thanks for sharing . I’ve been avoiding spicy food, oily food, sugar, and—on my doctor’s advice—refined wheat flour/all-purpose flour for the past year. I haven’t eaten any of that in all this time.

If I take the medicines, everything stays fine. But if I skip even one day, the same issues return. It feels like this is a kind of drug that my body has gotten used to—like it needs it now, almost like a habit.

My diet is good, but still, without the medicine, I have constipation issues. I drink 2 liters of water daily, and I also take rice and yogurt regularly to improve gut health.

Still, if I skip C2 Win 1 mg even for a day—or at most 2 to 3 days—I start feeling this heavy, full sensation in my stomach. I want to reduce these medicines, but whenever I try to decrease the dose, my body doesn’t adjust well.

Now I’ve decided to slowly phase them out—like skipping 2 days a week at first, then 3 days a week, and so on.

If anyone has tried this kind of tapering method, please share your experience.

Wwwdot profile image
Wwwdot

Hi Asddtr

How I relate to how you feel - I tried so many things and my only salvation was adopting an Auto-Immune Paleo diet - after years of suffering, I had improvements after two weeks.

What is fascinating about the Auto-immune Paleo diet is that it goes beyond the traditional starting points of gluten, wheat, dairy and into a deeper understanding of how lectin proteins, A1 and A2 casein affect our gut and distinguishes between grains in a different way rather than on the basis of gluten. It transpires that even some gluten free grains are not our friends when we are suffering gastritis and that is the case for fruit and vegetables.

I adopted the auto-immune paleo diet in September 2023 and I have not looked back - I do have blips when I make a mistake, dine out, etc but on the whole my gut is happy!

Once my diet was improved (ie the primary irritant was under control) I then used probiotics and enzymes to rebuild my gut health. When I have flare ups I take high concentrations of pure turmeric from British Supplements (about 6 capsules a day.)

This would be my starting point.

Best of luck

🤗🤗🤗

Technoid profile image
Technoid in reply toWwwdot

I don't doubt your experience but the Auto-Immune Paleo diet is a fad diet which has been disowned and debunked by one of its most prominent one-time popularizers, Sarah Ballantyne, who went by "The Paleo Mom". It's well worth listening to her story of how she started out promoting the diet and eventually rejected it as based on pseudoscience and switched to a more evidence-based approach, grounded in good nutrition science.

Dietary lectins are a non-issue unless you're eating raw beans.

m.youtube.com/watch?v=wwEjH...

m.youtube.com/watch?v=jDd5r...

Wwwdot profile image
Wwwdot in reply toTechnoid

Technoid

I am sharing how I achieved being 18 months free from gastric suffering after years of misery.

As the saying goes … the proof of the pudding is in the eating - not the reading!

🤪🤪🤪

Technoid profile image
Technoid in reply toWwwdot

Yeah, as I said, I don't doubt your experience. Just providin' the science.

Wwwdot profile image
Wwwdot in reply toTechnoid

Not all science is as it seems - you only have to look at the “science” behind statins to realise that!

There are always polarised views because that grabs attention and makes life simple for some. But the reality for most things is that we don’t know the whole picture and “science” is often led by commercial interests.

So for those of us suffering I think keeping an open mind gives us the best chance of finding our health recovery pathways.

🤗🤗🤗

Technoid profile image
Technoid in reply toWwwdot

I have looked extensively into the science behind statins but that would likely take us into a 55 message off-topic thread where we would be talking across each other. I'd be happy to go into that (again) but I don't think it's really something Gambit is going to allow, and I'd rather not have my messages or the thread deleted as it wastes my time.

If you're really interested in that though, I'd be happy to discuss it on pm.

Polarization of viewpoints is an interesting topic but I don't think that polarization happens primarily because people want to simplify their lives. In fact, in many cases, holding particular viewpoints, especially extreme right-wing or conspiratorial viewpoints causes extreme social and familial disruption that can sometimes destroy lives and families. There's a lot that could be said about how different features of modern society and technology increase viewpoint polarization, but simplifying peoples lives would be pretty far down the list in any serious consideration.

It's fair to say that some scientific studies are driven by commercial interests but that's something that needs to be take into account when assessing any study or assessing the scientific consensus in any area (such as statin effectiveness for example). It's intellectually lazy to dismiss scientific consensus because "commercial interests".

Just because a trial or study is funded by a particular commercial interest does not mean that, inevitably, the results of the science will back up the commercial interest of the funders. I have seen studies funded by the beef checkoff which have concluded with results that were NOT favorable to the consumption of significant amounts of some meats. It is fashionable among social media contrarians and quacks to claim that all science is irredeemably corrupt and flawed to a degree that it should all be ignored (usually in favour of the contrarians poorly supported ideas).

Of course, it's important to look for independent studies and be aware of conflicts of interest, and you dont use a single study or paper , or even a single meta-analysis to make a decision about a topic. There are flawed and biased studies, poorly constructed meta-analyses and many other hurdles. Understanding how to properly assess scientific literature is a non-trivial undertaking. But it's lazy to dismiss a consensus scientific position because "commercial interests" when such a position has been arrived at with a full understanding of potential conflicts of interest in the literature.

It's good to keep an open mind, but not so open that you can be convinced of any kind of nonsense, no matter how ill-founded it might be.

Asddtr profile image
Asddtr in reply toWwwdot

Thanks for sharing.

I’ve been avoiding spicy food, oily food, sugar, and—on my doctor’s advice—refined wheat flour/all-purpose flour for the past year. I haven’t eaten any of that in all this time.

If I take the medicines, everything stays fine. But if I skip even one day, the same issues return. It feels like this is a kind of drug that my body has gotten used to—like it needs it now, almost like a habit.

My diet is good, but still, without the medicine, I have constipation issues. I drink 2 liters of water daily, and I also take rice and yogurt regularly to improve gut health.

Still, if I skip C2 Win 1 mg even for a day—or at most 2 to 3 days—I start feeling this heavy, full sensation in my stomach. I want to reduce these medicines, but whenever I try to decrease the dose, my body doesn’t adjust well.

Now I’ve decided to slowly phase them out—like skipping 2 days a week at first, then 3 days a week, and so on.

If anyone has tried this kind of tapering method, please share your experience.

Nackapan profile image
Nackapan in reply toAsddtr

My daughter was on Medication at some point for gut mobility .She used fodmap as a base .

Somewhere to start to find a diet she can tolerate .

Her symptoms were severe and miserable.

She read and read on nutrition .

Dieticians at that point were wanting her to take liquid foods and it was a near miss avoiding tube feeding.

I made broths ,smoothies instead

It took a long time.

She personally is better gluten Free, diary free ' Fructose free .

She hax recently reintroduced eggs very slowly.

She can now eat fish and chicken.

Red meat still in the tiniest of portions makes her ill ?

She had loads of green veg .

She tolerates chilies we grow and chard and kale.

To me that doesn't make sense but good as she needs loads of folate to stay in range . And supplement .

But very few fruits

.

Berries are fine .

Can't tolerate apple banana

Rice is okay now .

High salt needed .

No garlic . No onions .

Off all medications for the gut for years now .

For her Medication for POTS also changed her life and of course regular b12 injections 10 weekly .

Avocados have always been a good food and digested okay as has fortified almond milk .

It's a minefield but s detailed food diary can help .

Also a hospital dietician supported her .

My mum also had years of endoscopys and tests.

She is better on a low roughage diet.

Diary free .

Soya fine .

Eats gluten. As made little difference coming off it .

Eats loads of brocoli with everything.

8 weekly B12 injections

My reflux issues ,nausea were there at the Start but so much was going on I can't even remember when they got better.

That feeling of food just sitting there horrid .

I still put cider vinegar on the last few mouthfuls of a meal .

Have live natural yoghurt.

I avoid chilli 🌶

But mild spice curries fine as is garlic and onions . Grated ginger good.

Regular B12 injections and eating little and often helped me

I hope you find a way of what to eating when , that helps alleviate your symptons .

Well worth the effort.

I cooked for everyone recently.

Can you imagine the concentration that took !!

Brain function must be improving still !

Asddtr profile image
Asddtr in reply toNackapan

Thanks for sharing.

Regenallotment profile image
Regenallotment

have you looked at SIBO? I’m re reading Supergut by Dr William Davies and highly recommend.

Very likely you can improve your gut microbiome, I have Hashimoto’s among other conditions and following his advice and paleo type auto immune diet has helped me too. It’s very individual.

Wwwdot profile image
Wwwdot in reply toRegenallotment

Hi Regenallotment

Great point well made. I tried for years to get a SIBO test and H. pylori to no avail as I couldn’t afford to go private. Dr Davies offers useful guidance too

Having done the research combined with my symptoms I concluded on balance of probabilities that I had both SIBO and H. Pylori as many in the western population do.

I self treated over a period of 3 months and I improved hugely but from a scientific point of view I crossed over with the natural treatment of SIBO and H. Pylori with starting the Auto-immune Paleo diet. But I finally was offered a H. Pylori test last year - ironic as I am now symptom free - and it was negative.

Jury’s out as they say!

🤗🤗🤗

wedgewood profile image
wedgewood

Have you joined our forum because you are a Pernicious Anaemia patient ? If so , did you know that P.A, can also be called Autoimmune Gastritis ? Are you receiving B12 injections?

I am a diagnosed P.A. patient, and I had awful gut pain with this condition . I treated it myself with the liquid called SYMPROVE. whjch is a probiotic. I now make my own milk based Kefir a powerful probiotic . The good bacteria keep the gut in good condition and replace the bad bacteria that comes with gastritis .I now no longer suffer from painful gut issues . There are other probiotic foods like real yoghurt , sauerkraut and kimchi which are excellent . But kefir was the very best for me .

P.A patients have low or no stomach acid ( Hypochlorhydria/ Achlorhydria) caused by the destruction of Parietal cells in the stomach .

I maybe “ barking up the wrong tree” assuming that you could have P.A. But the thought sprang to my mind . Best wishes .

Asddtr profile image
Asddtr

I’ve been avoiding spicy food, oily food, sugar, and—on my doctor’s advice—refined wheat flour/all-purpose flour for the past year. I haven’t eaten any of that in all this time.

If I take the medicines, everything stays fine. But if I skip even one day, the same issues return. It feels like this is a kind of drug that my body has gotten used to—like it needs it now, almost like a habit.

My diet is good, but still, without the medicine, I have constipation issues. I drink 2 liters of water daily, and I also take rice and yogurt regularly to improve gut health.

Still, if I skip C2 Win 1 mg even for a day—or at most 2 to 3 days—I start feeling this heavy, full sensation in my stomach. I want to reduce these medicines, but whenever I try to decrease the dose, my body doesn’t adjust well.

Now I’ve decided to slowly phase them out—like skipping 2 days a week at first, then 3 days a week, and so on.

If anyone has tried this kind of tapering method, please share your experience.

Nackapan profile image
Nackapan in reply toAsddtr

Are you on B12 Injections for a deficiency?

Asddtr profile image
Asddtr in reply toNackapan

No.

I have to do some blood tests, but my doctor didn't suggest that I do that. I think there is no need for that for me.

Nackapan profile image
Nackapan in reply toAsddtr

It would be a good idea to get your B12 levels done. Even if not Pernicious Anaemia B12 absorbtion slows with age .

So even if a 'pure vegetarian ' diet has kept you healthy for many years that can change.

That happened to my sister .

Same diet but absorbed less B12 as less stomach acid.

She needs s daily b12 supplement as well now.

HBEd profile image
HBEd in reply toAsddtr

B12 injections can stop it all if you are deficient

Probiotics too essential ie optibac stops mine in its tracks

Marshmallow root another more natural supplement

HBEd profile image
HBEd in reply toAsddtr

Are you vegan or vegetarian as you need a b12 supplement if so as b12 only in meat

Wwwdot profile image
Wwwdot

Morning Asddtr

I do understand and relate to slow transit of food and that horrible heavy internal pressure. Wedgewood makes a good point - do you know if you have low stomach acid?

I have low stomach acid and if I don’t take two Betaine and Pepsin before a meal then I will suffer slow painful transit of food and eventually constipation. Have you considered low stomach acid as a potential cause?

If you need the C2 to clear your bowels of slow transit food it will be painful and unwise to stop it without addressing the root cause which may be low stomach acid.

🤗🤗🤗

Asddtr profile image
Asddtr in reply toWwwdot

I still experience a lot of burning even if I avoid chili. And I am a pure vegetarian.

wedgewood profile image
wedgewood in reply toAsddtr

Strict vegetarians can become very low in vitamin b12 . i would get tested.

HBEd profile image
HBEd in reply toAsddtr

Then you are at risk of b12 deficiencies for sure

Marigaux901 profile image
Marigaux901

I would definitely add apple cider vinegar, 1 tablespoon in filtered/spring water, at least twice a day. It soothes the digestive tract and restores the ph. It's also a great probiotic. Buy a brand which contains the "mother" and preferably organic. It is incredibly soothing the second you drink it.

Wwwdot profile image
Wwwdot in reply toMarigaux901

Hi Marigaux

Spot on! I buy organic Apple Cider Vinegar with the mother from Lidl - its about £1.50 a bottle - great for salad dressings and of course drinking!

🤗🤗🤗

scnuke profile image
scnuke

If everything is fine when you take your medications, why do you want to stop taking them? I don't understand. I have had gastritis, both autoimmine and hemorrhagic, for over ten years. It is mostly under control, but if I veer off course for more than two or three days with alcohol or spicy foods, it returns with a vengence just as bad as it ever was.

I am always perplexed when you find some medications or treatment routine that works well, but then immediately start trying to reduce the treatment that has made you feel better. I inject my B12 twice daily. It is what has made me feel better and I will continue this routine. I once had a physician that insisted I reduce injection to twice per week. In a spirit of trying to be cooperative, I agreed. Within a week some symptom started to return, and I resumed my previous injection routine. It took several months for the symptoms to abate again but taught me a lesson. I do not recommend MY routine for anyone else, but it is what works for me and I will continue it. Good luck on your journey.

Wwwdot profile image
Wwwdot in reply toscnuke

Hi Scnuke

I too have a similar routine to you. I need to inject several times a day to lead an active life without B12D symptoms - I too tried to reduce but it just didn’t work and I took weeks to get back on track.

I think the issue for Asddtr may be that the medication is a laxative I think so treating symptoms and not the underlying cause …but I could be wrong.

🤗🤗🤗

mountmuir27 profile image
mountmuir27

Have you been checked for Ehlers Danlos?

PaintLadie profile image
PaintLadie

I haven't had gastric pain in a while and my diet is as follow.... Fyi rice is hard on my stomach. So I only have it on occasion. I eat beans, broths, Turkey, elk meat, squash, sweet potatoes all kinds, herbs, greens, carrots, cucumbers, cabbages, broccoli and all their relations, blueberries, raspberries, blackberries, mug bean noodles are good. I can not go anywhere near onions, garlic, peppers, nightshades veggies, most fruits(I can have fruit only in very small amounts and infrequently.), dairy, corn, soy, chocolate, sugar, and odd enough anything with natural flavoring on the ingredient list even if it is organic, and anything fermented or high acid. I'm sure there are more food options for me but they would be in the more exotic food category and I don't have a ton of access to those. So I eat as clean and organic as possible and unfortunately that means not a lot of flavor spice wise. But your tastes will adjust and it will be worth it. I truly think our society puts way to much emphasis on food, it's almost an obsession. Food is meant to nourish your body and give you energy and really that is it. The fact that it tastes good is a bonus. Most organic foods do taste really good plain and when you retrain your brain to not need the fancy, processed, spiced, art on a plate kind of foods it gets a lot easier to eat more simply.

Also mastic gum and probiotics are a must during flareups.

and fiber. Fiber is good for you.

and as of now I'm not on any meds for my gastritis and am managing just fine. The meds I felt never helped me.

Iheartb12 profile image
Iheartb12

Im sorry you are suffering. Gastritis pain is horrible and makes it hard to enjoy anything or function day to day.

I have been dealing with severe gastritis and gerd non stop for almost 2 years. I had an endoscopy that confirmed gastritis a couple month ago. A CT scan revealed that I also have a hernia which was not seen, perhaps not active, on the endoscopy.

I refused ppis for past 2 years. I've heard they are not good for you and can cause worse issues when you stop taking them. So I just suffered. Tried every diet and was unable to identify a trigger. I finally tried digestive enzymes and those were a game changer for both pain and other gastritis symptoms. I also used mucilage and anti inflammatory teas and foods which put the symptoms at bay enough for me to function better. The hiatial hernia makes all issues worse. Doing jumping Jack's after eating a large meal was also a game changer. It forces my stomach out of my diaphram and back into place. I've found since I started walking and using rebounder regularly my stomach mostly stays in place and I'm not getting acid reflus. The reflux for me was mich worse than any other symptom. It gave me a constant cough, losing voice, nausea, insomnia, dry mouth and throat plus more.

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