Should I wait and retest!

[Rainycats]

I was diagnosed with gastritis recently, and when I looked it up thought PA could explain some of my symptoms. I also have Hashimoto’s, as well as hEDS, POTS, and MCAS. I’ve been feeling so bad lately, I went ahead and had the bloodwork done without waiting four months, just in case it was clear. It had been two months since daily B Complex.

Well, it’s not clear. But I’m wondering if there’s enough indication to retest in another two months. There are some things that are high or low end of the range, but everything is in the lab range.

I’ll add photos of my labs if I can figure out how to add more than one!. (I know TSH is still too high and could explain some symptoms)

Thank you!

Symptoms:

-Tinnitus and noise sensitivity 

-Tingling feet-standing, walking, and lying down.

-Vibrating sensation 

-Numb hand at night

-Nightly leg and foot cramps, muscle tightness, foot twisting  and seizing (used to be helped by magnesium and calcium supplements, but started up again terribly even with those)

-Shortness of breath with minor exertion

-Drops in oxygen saturation to as low as 78. Pulmonary function fine.

-Palpitations  and pounding heart

-Scalloped tongue

-POTS 

-Blood pressure highs and lows, narrow & wide pulse pressure

-Dizziness and lightheartedness 

-Acid reflux, but low acidity

-gastritis

-Betaine HCl and baking soda home tests indicate low acidity

-Acid reducers make GI symptoms worse

-Bloating

-Flushing

-Cold extremities

-chills without fever, inability to warm up

-Heat intolerance

-Fatigue

-Vertigo, motion sickness triggered by watching some movies/shows and loud music,

-Narcoleptic episodes evening before usual sleep time

-Episodes of nighttime agitation and restlessness 

-Restless legs

-History in past labs of of low alkaline phosphatase, albumin, D25, and calcium (without supplements)

-Blood pooling

-Dark around eyes— dark circles from thin skin since childhood but much worse recently and to the side and above eyes

-Pain in neck, back, hips, joints

-Headache if I lie on my back

-Have hypermobility type EDS, POTS, MCAS, Hashimoto’s

[Nackapan]

Are you on medication for Postural Orthostatic Tachycardia syndrome?

All thise symptoms very familiar to my daughter who also has Ehlers danlos heds and Pots and reflux abd b12 ferritin vitD folate deficiency

And some to me that hasn't.

It may be of help if I list my symptoms without extra conditions to deal with .

I am light and noise sensitive.

Is getting better over the yesrs but any stress or B12 due much worse .

Migraines and headaches.

Again greatly improved .

Tinnitus daily. Worse typing thus on a phone. Also if out

Nausea with fatigue and reflux again improved alot

Pattern glare and supermarket syndrome .

Vertigo

Leaden legs ( both at the start )

The other symptoms you list my daughter has them all.

She had a sore mouth and tongue

Remedied by daily folic acid and B12

He gastritis under control by a complete change of diet and way she eats .

Prebiotics were not enough .

Vertigo

Infected saliver glands present at the start ( b12 )

Heart palpitations ( Pots)

I got them at the very start but went when ferritin level abd B12 raised .

As for thyroid results my daughter deemed sub clinical

So a minefield .

My daughter benefits from;

10 weekly b12 injections

Folic acid daily

Special yoga for body pain 1:1

Fludrocortisone ( after struggling and wheelchair user )

Gluten Free diet

Dairy free

Fructose free

Red meat Free

Although she introduces things back slowly and can now eat fish, eggs ,chicken .

Back to back contraceptive pill ( menstruation brings on severe pots symptoms .

You cs be B12 deficient with in range results.

Bloods show some of the picture only .

Hope this helps .

It's a horrid mix of symptoms to deal with

[Rainycats in reply to Nackapan]

Thank you for sharing your experiences! They are awful symptoms. I especially hate the nighttime ones. I just added a comment with my other labs. It wouldn’t let me add any photos yesterday.

[Cornwaller]

Your symptoms appear to be similar to those widely reported by people with b12 deficiency. Also your mcv is quite high. Do you have a b12 serum test result. If not that would be a good first step. If you have a result I would suggest you consider posting it here for the forum to discuss as many GP s tend to not recognise low b12 levels as a deficiency for reasons best known to themselves.

[Rainycats in reply to Cornwaller]

Thank you for answering. I just added a comment with my other labs. For some reason it wouldn’t let my post more photos even in a reply.

[Rainycats]

I don’t know why, but I can’t add photos in my reply to post my other labs. I’ll list some here

B12: 325

Folate: 9.2

Ferritin: 49

D,25: 36

Intrinsic Factor AB: 1.0 (0-1.1)

Anti Parietal AB: negative

MMA: 127

Homocysteine: 8.2